March 2008 Voice Clinic,
Apollo Beach, Florida
L-R Wendy, Linda Jo, Lidia, Jackie, Mike, Ronda, Connie
|
Wendy – AD/SD
with tremor 2.5 years – one botulinum toxin injection,
acupuncture
I feel that I gained tools
to help me overcome my tremors. The instructors were very
knowledgeable and helpful. Having an instructor who understands
the emotional as well as the physical components of SD was
invaluable. I appreciated the individual sessions, which helped
focus on my personal recovery. But I also found the group
sessions to be very constructive in expressing myself in front
of others. It has truly been healing and inspirational to
share this experience with others who struggle with the same
disorder. I am enjoyed making some good friends too.
Linda Jo –
MTD – 2 years; traditional voice therapy: one botulinum
toxin injection
During the clinic
I learned how to use less effort in voicing and not push or
force my voice. My voice improved 70% as I learned to hum
to focus my voice into my face. I learned how to breathe more
deeply into my belly and fill up to a greater capacity.
The empathy and understanding
from the participants was wonderful. The group dynamics cannot
be achieved with individual consultation and therapy. Just
to share a common problem and frustration with those who are
experiencing the same is “great company”. With
Connie’s SD and her ability to truly relate to this
disability is priceless. Her expertise and sincere desire
to help achieve the voice within is a rare find. Being equipped
with the tools and techniques that really work to improve
voice and breathing will help me to recover my voice. After
attending the clinic, I can and I will be able to be “free
to speak” again.
Lidia
– AD/SD with MTD 4 years – botulinum toxin
injections; traditional voice therapy; repeating the clinic
experience since June 2007 following increased voice demands
at work and a spinal fracture.
My voice has started
to improve after a set-back. I recognized the need to “check-in”
and relax and let go of effort. The body-work during the clinic
reminded me to pay attention to this area. Life has a tendency
to interfere with any part of rehab, and due to at set-back,
I felt I needed to return to the clinic. I was very glad I
did. I had made progress but needed some reminders of the
basis techniques. The intensive nature or the clinic provides
you with that uninterrupted time to look after yourself, always
guided by two selfless, experienced, committed, dedicated
professionals. The approach is holistic, which ensures a more
complete strategy in overcoming this disorder. Having a professional
actually having gone through this is invaluable. Spending
time with other SD sufferers gives you support and understanding
that cannot be easily found. Every SD sufferer owes it to
him/herself to come to this clinic. It’s not a quick
fix – it is a lot of work, but it is much easier than
dealing with the life sentence that others claim/assert that
SD is.
Jackie
– Mixed SD 21 years – psychiatric treatment,
four botulinum toxin injections, self-directed holistic treatment
At the clinic, I acquired
a smoother, stronger and more confident voice. I learned to
breathe into my belly and my diaphragm is no longer “stuck”.
Voice improved 50% and I am overwhelmed with the amount of
new information I have learned about SD and what I can do
about it. I feel I can be in control of my recovery from this
disorder, finally!
This was an amazing
gift to myself. I am coming away a more healed and whole woman.
I am confident that I have tools to mend my voice and my broken
spirit. The healing began on the second day of the clinic
and continued to improve every day. With the support of Connie
and Mike, I know that I will be free from the fear of speaking
with an SD voice. This has plagued me for so long… a
great burden is floating away.
Ronda
– AD/SD 26 years – psychiatric treatment,
20 botulinum toxin treatments, with up to 9 injections per
treatment; worsening symptoms the past two years.
Ronda has lived with SD
since the young age of 23. She was diagnosed before there
was any type of standard for treatment and was told that there
was little if anything that would help her. Eventually, botox
was accepted as a treatment, yet it did not seem to help her.
Ronda did an incredible job just living life, raising two
children and working to support herself and them despite her
voice disability. Her mother began to research alternative
options as Ronda’s voice worsened. They had been told
that it would not get worse, yet it did. Ronda’s speech
intelligibility was deteriorating, so she agreed to try our
clinic.
“I learned that
my tongue and palate get in the way (of producing voice) and
the tools to help improve that. I learned how to breathe full
deep breaths into my belly. It was wonderful to be around
people that know how you are feeling and what you have been
going through. That was a plus for me. The tools that I came
away with will help me find my voice, I know! Attend this
clinic!”
|
January 2008 Voice Clinic,
Apollo Beach, Florida
L-R Mike, JD, Connie,
Jared, Leslie
|
Apollo Beach, Florida
- January 2008 Clinic
We had an intimate group
for the first of the New Year. It was a great opportunity
both to jump start our new expanded program in full, as well
as to welcome back a previous participant for a second time
around. We realized that a repeat of the program is not a
failure and that there are reasons our clients might want
or need to come back for a “refresher”. Leslie
helped us to define some of those situations. She had attended
the first clinic at maximum benefit from a botox injection,
and had returned to small doses after the clinic, which had
worked well for her. Leslie wanted to continue her voice rehabilitation
program, and had suggested a “refresher course”
once the botox had worn off. We are open to continuing to
expand, clarify and commit to whatever is needed to overcome
SD! This can certainly include those who receive benefit from
botulinum toxin injections in conjunction with voice rehabilitation,
with the goal of maximizing functional control of the voice
and re-programming of voice production.
JD – AD/SD
4 years – botulinum toxin injections regularly
3 years with voice therapy
“Connie and Mike generously
shared their knowledge of skills and attitudes shown to improve
our SD voices – all in a relaxing, positive and compassionate
group setting. Voice production improved 50% at the clinic.”
Jared – Hyperfunctional
Voice/ AD/SD– 2 years; traditional voice therapy
6 months
“With SD, you get
overwhelmed with all kinds of information. What I have discovered
is that a majority of the information is incorrect or misguided.
Connie’s clinic helped me put some perspective around
SD; what it is, and what can be done to counteract it. I just
needed guidance and a plan. Most of all, she and Mike provided
the biggest thing we all need – which is HOPE. When
all of our renowned, well-schooled doctors and therapists
tell us it won't get any better or to look into temporary
relief, Connie and Mike provide help and hope for a permanent
solution. Not everyone is the same, and that is difficult
with SD – some programs and exercises work for one person
and totally different programs/exercises work for another.
There is no magic pill, no quick fix; but over time, with
devotion, faith and dedication, many people have overcome
this sometimes paralyzing disorder. To those who have SD;
empower yourself with the right information and attend this
clinic. Give yourself a chance. To those who have overcome
SD, I look forward to joining you in the months ahead!”
Leslie – AD/SD
7 ½ years – botulinum toxin injections;
traditional voice therapy
“I would really encourage
anyone to take the clinic the first time and even a second
if needed. Both Mike and Connie have quite a depth of resources
to help, and are more than willing to help you adjust your
particular remedy for the specific problem. They are great
at diagnosing each one’s particular problem, which is
unusual with SD. Other healthcare professionals tend to deal
in a more generalized manner with SD. It was a great experience.”
|
Voice Clinic November 2007,
Apollo Beach, Florida
Left to Right - Mike, Joanna, Christine, Pam, Debbie, Connie,
Adam, Loreen
|
| Joanna –
AB/SD 2.5 years
“I believe that
my stay at this voice rehabilitation clinic has provided me
with the springboard to recovery. It has given me the confidence
and determination toward recovery. I have been given expert
advice on how to use the necessary tools and exercises to
re-educate my body and voice. I realize my voice is still
there. I am the only one who can really work out my own programme.”
Christine - Mixed SD/MTD 15 years – botulinum
toxin injections 10 years, traditional voice therapy
“I knew I had
developed a lot of bad habits but didn’t know what to
do about them. Now I do, and it works! Hearing my loud, strong,
clear voice for the first time in 15 years was an experience
I can’t even find the words to describe. Overall voice
improvement was 30% but with moments of 100%. “
Pam –
AD/SD 5 years – traditional voice therapy
“I have such
wonderful things to say about these five days with Connie
and Mike. I have learned so much from them and from the other
five participants in the clinic. We have become a great big
family. The group experience is the way to go! The clinic
is intensive, but we also learned to relax and let go of things
that restrict in many ways. We have learned to be more positive
and encouraging. We have laughed, cried and grown! A dynamic
experience! I realize the ability to change my voice; to drop
or unlearn bad habits by replacing them with good habits and
techniques. Voice improved 80%.”
Debbie –
AB/SD 1.5 years
“I definitely
understand the combination of breathing, voice, mental and
relaxation therapy. But the essential glue to the mix is group
therapy. The clinic held in Connie’s home is ideal for
making sure that everyone is relaxed and supported by one
another. I started the clinic with trepidations and ended
up completely calm and prepared to fulfill my goals. The friendships
that I formed will work toward developing into a support group
that will only benefit my progress. I have seen such improvement,
even when my voice still comes and goes, that I will stick
to the program. I can fix my voice, improved 50% at the clinic.”
Adam –
AB/SD – 2 years – traditional speech therapy,
homeopathy
“For those suffering
with SD, be assured you are not alone. This clinic is the
perfect tool to put you on the road to recovery, run by Connie
Pike, who has first hand experience with suffering SD and
is now dedicated to helping others overcome SD. She is accompanied
by Mike, a breathing specialist who has great knowledge and
expertise to get the breathing back on track, which will contribute
to good voice production. The program requires dedication
and I know that I have to practice all I have been taught
to enable me to fully recover my voice. For those suffering,
there is a light at the end of the tunnel. For me, the journey
has just begun. I wish to thank Bob and Connie Pike for welcoming
us into their home and making us feel at home. I would like
to thank Bob, Connie, Mike and Robbie Goss (psychologist)
for the compassion and understanding shown throughout the
clinic and Christine for the wonderful upper body massage
– wow! OM, Shanthi, Peace!”
Loreen –
AB/SD – 9 years – botulinum toxin injections ineffective
“I learned how
to breathe and became extremely conscious of how bad my breathing
was. Years of stress and emotion can compound to create SD.
I learned that I try too hard and strain to push words out.
I can change the way I approach SD and reprogram/re-groove
the way I use my voice. I understand the holistic approach
and that SD is truly far more than a vocal cord issue. Voice
and breathing improved significantly at the clinic.”
|
Voice Clinic: July
26-30, 2007: Apollo Beach, Florida
L-R Mike, Rebecca, EM, Connie, Toni, Peter,
Esther, Debra
Esther – MTD
8 years, s/p medialization of vocal folds, vocal fold paresis,
traditional voice therapy.
“I feel so blessed
to be able to come to this clinic. I have been struggling
with muscle tension dysphonia for 8 years and this clinic
has really helped me recover in various ways. I experienced
significant changes not only in my voice, but also in my whole
being; mind, body and spirit. I still have work ahead but
now I finally feel I have the tools needed to end my journey
with MTD. Voice improved 75% during the clinic.
Debra – AD/SD 15 months
“This voice rehabilitation
clinic was so well organized and it gave me the hope and “encouragement
to overcome my SD. I was told by an ENT doctor that my voice
disorder was incurable and that the only form of treatment
for me was botox injections into my vocal cords every three
months for the rest of my life.
After researching for a
more holistic approach to this disorder, I found myself enrolled
in Connie’s clinic. I can’t thank Connie and Mike
enough for their knowledge, determination, professionalism,
and overall attitude that a person with SD can, in fact, overcome
this disorder with the proper guidance, support, faith, and
techniques of voice and breathing needed to find your natural
voice. I knew I was determined to overcome this disorder,
but I never expected to find my voice again so soon. Thanks
to Connie and Mike for giving me back the hope that was taken
away from me by my ENT doctor, to regain my voice at your
clinic, and having me focus on what I needed to “free
my voice. Compared to three months before the clinic, when
I could barely speak at all, my voice has improved 100%. I
now have a clear, effortless voice.”
Peter – AD/SD
15 years – botulinum toxin injections twice yearly (Dysport)
for 11 years
Peter is on staff with the
Dystonia Society of Scotland and had read Connie’s book
and heard her speak at the Dystonia Society of London in May
of this year. Peter had learned a variety of “tricks”
to help him through the times he was unable to have injections.
He was allowed only two shots per year, so the time in between
could be difficult. He plans to submit an article on this
approach and his success to the U.K. Dystonia Society magazine.
“I have lived with
Spasmodic Dysphonia/laryngeal dystonia for over 15 years.
I was optimistic that the clinic could help me, but apprehensive
too. I have been greatly impressed by Connie Pike and Mike
White both by their professionalism and their sensitivity.
The programme has dealt with general principles needed for
recovery of SD/LD but has also been tailored to deal with
my individual symptoms and to create a recovery programme
specifically for me. There has been a significant improvement
in the quality of my voice and I am hopeful that this improvement
will be sustained and improved. I have no hesitation in recommending
the clinic to anyone who is seeking either an alternative
to botulinum toxin therapy or a complementary therapy to it.
Voice improved 75% and breathing became freer and fuller as
a result of the clinic.”
Toni – AD/SD
diagnosed 3 years but with symptoms the past 30 years. 4 weeks
DVR January 2007.
“I learned so much
from both Connie and Mike during the clinic that I can’t
begin to thank them. The opportunity to work with a skilled
speech pathologist with many years of understanding the dynamics
of SD should not be missed. Connie has walked in our shoes
and shares with love her insights on what must be done to
overcome it. Her understanding of the mechanics of voice production
guided me towards rediscovering my lost voice. With Michael,
I finally found someone who could teach me to breathe properly,
which is one thing SD sufferers do not know how to do. That
will be the foundation of my recovery. A magnificent, inventive
man, he treats each client’s problems with unique solutions.
He will not give up or allow you to give up. Both he and Connie
are sensitive, caring people who rejoice in our successes
as much as we do, and when the emotions of this devastating
condition become too much, they are there to gently hold you
while you cry. I feel that I finally have the tools, exercises
and knowledge needed to overcome SD. It will take time and
some life-style changes but I k now I can get my life back.
The professional psychologist helped us deal with the psychological
component – a major “ah-ha” moment for me.”
Rebecca –
Mixed SD 3 years, traditional voice therapy, ZHT
“When I arrived at
the clinic, I spoke just one or two words at a time and that
was difficult, exhausting, and hard for others to understand.
I have more work ahead to really integrate what I’ve
learned, but today I am speaking full sentences in a mostly
clear voice. It’s so much fun to talk again. I especially
appreciate Connie and Mike’s holistic approach and the
care and empathy they’ve given each of us. Their technical
expertise and knowledge is superb. They know what they’re
doing and their confidence gave me confidence in myself. The
group setting and the total immersion helped make this clinic
successful. I felt so much support from the other participants
and we had a lot of fun together. Voice improvede 40% and
my whole body feels more open and larger with regards to breathing.”
EM – AD/SD
3 years
“50% voice improvement,
deeper and longer, less intentional breathing patterns, discovered
the ability to speak clearly and project the voice.”
Complete testimonial to follow.
Voice Clinic: July 5, 2007, Apollo
Beach, Florida
Scott:
- Mixed SD 4 years (2 botox injections, 1 week DVR, voice
therapy)
“I think that learning
or realizing that my breathing is forced and not relaxed is
my biggest insight/discovery. I feel like once I learn to
constantly relax my abdominals during speech, the throat and
larynx will follow. It is going to take time for me to re-groove
my breathing and release tensions. Once I do, I feel my voice
will be effortless. I felt the clinic was a true overall mind/body/voice
clinic, which is what it should be to be effective.”
Lisa – AD/SD
24 years (approximately 98 botox injections, SLAD/R (failed),
s/p silastic thyroplasty 3 years prior)
Lisa was finding less and
less relief from her botox injections and had switched to
myobloc as Botox lost it’s effectiveness. She had purchased
Connie’s book and had been practicing the exercises
for several months prior to the clinic. She felt the clinic
experience resulted in a 50% improvement in her voice.
“I wish I had known
about this approach before any surgeries. I don’t have
to be fearful and my voice is not as much of a handicap as
I think. Connie and Mike have designed a thorough, holistic
approach to overcoming SD. Connie is an inspiration to anyone
who wants to improve their voice. She knows exactly how you
feel and what you are going through. Mike is a brilliant breathing
coach who can teach lifelong good habits for overall health
as well as improving voice. Every aspect of my life was affected
by SD, and Connie knew that and brought in expertise from
different fields. They used singing to getting over the fear
of videotaping and recording the voice, used a computer program
to assist in achieving goals. You can feel the passion they
have to help others in all they do. They have thought of everything,
including a counselor to help change negative thought processes
that keep you disabled and a massage therapist to help relax
muscles. I felt comfortable and did not ever want to leave
Connie’s home and family. We even had a karoke party
with her family signing backup with us. I’ll never forget
the love I felt. This experience has changed my life forever
for the better.”
Ruth – AD/SD
with intermittent symptoms for 3 years, but diagnosed 3 months
ago
“This clinic has been
extremely helpful. I have gained new insight into my abilities
and feel that I can let go of the fear. I feel that I have
been given the tools to regain my voice and with hard work
on my part, I expect that to happen. Mike and Connie’s
coaching were invaluable in giving me support to let go of
my anxiety and find my voice. I’d highly recommend the
clinic to anyone with SD.”
Jann – AD/SD
1 ½ years
“The clinic is phenomenal.
Every aspect of SD seems to have been addressed. Just to be
aware of the many ways we can help ourselves by using all
the tools provided at the clinic gives so much hope. We all
have been so excited and encouraged by our progress. Both
Connie and Mike have tremendous knowledge in their areas of
expertise and they zero in on each person’s individual
needs. This holistic approach makes total sense – the
body will heal when given the chance. Connie is proof. She
has been there and has a great sense of understanding of all
aspects of SD. The support and connection with the others
has been wonderful and a very important part of the experience.
We have had joyful times to relax around each other and just
be ourselves and connect from a comfortable place within.
It is an empowering, well-rounded program.”
Jeroen – AD/SD
1 ½ years
Jeroen came over from Holland,
and we enjoyed his colorful clothing and hearing him belt
out Elvis tunes on Karoke night! His Dutch specialist told
him he had classic SD and that therapy would not work.
“If you want to get
rid of SD, if you want to be free and you want to work with
it, then this is the best way to start your road. These people
find the key to unlock the door and they want you to succeed.
I would recommend the clinic because you get FAITH! You will
see, hear and experience results. Forget about what the doctors
tell you. They don’t know what is possible. You are
given a choice, and choice means freedom. You don’t
have to be dependent on expensive drugs the rest of your life.
You are given tools to work with your body and voice. You
have to do the work. Don’t come if you want a quick
fix. You will receive support from your trainers and from
your friends in the group. When you get home after the clinic,
they are still here for you. If you overcome this voice inconvenience,
you will have so much more power in your life, and you can
make a difference to other SD people who are now in the dark.
You can make your own miracle. Nothing is incurable except
death.”
Ron – AD/SD
1 year (2 botox injections)
Ron had a long history of
episodic spasmodic torticollis since 1988. He had been successful
in managing it with physical therapy and biofeedback so thought
the clinic would be a good option when he was diagnosed with
SD. We were all amazed at Ron’s singing voice and the
awesome resonant sound that would come and go in his speaking
voice. Getting control seemed elusive, but overall, Ron felt
his voice improved 25%.
“This clinic
was an amazing experience. The instructors were dynamic, engaging,
and very attentive to individual needs. I had a productive
and wonderful time interacting with others with the same condition.”
|
May, 2007 Voice
Intensive, Apollo Beach, Florida.
Left to Right - Jill, Mike, Connie, Robin, Laura,
Donna, Bob
The May clinic
was another unique experience, as each clinic
has been. It is always exciting to see the variety
of personalities and hear the journeys of each
as we make our way through the maze of the various
manifestations of SD/MTD and see the improved
voices emerging. The participant testimonials
speak well of the experience:
Jill
– Adductor SD 18 months (2 botox injections)
Jill had heard
Connie speak at the Tampa SD Support Group along
with her physician husband, and decided she
should try this approach instead of continuing
with botox. She reported that she had been practicing
exercises in the book, Free to Speak: Overcoming
Spasmodic Dysphonia , several hours per day
in the months prior to the clinic and had experienced
significant improvements.
"The group
dynamics provided the benefit of fun interaction,
support, and camaraderie that were invaluable.
The common denominator was our voice dysfunction
and only that. There is an enormous enrichment
one gains in many other aspects of our human
condition. There is a positive approach and
certainty given to us by our teachers and fellow
participants that we will improve and heal.
My voice improved 70-100% throughout the clinic.
Perhaps miracles do happen and I’ve had
my last botox injection."
Robin
– Adductor SD 1 ½ years
"Through
this clinic, I discovered a viable route to
recovery. I’m not there yet, I would have
liked more time, but the way forward is clear.
The first component of this involved assessment.
Something was terribly wrong, what was it? Once
that became clearer, the means to correct the
problem became much clearer as well. Now comes
the practice and right repetition..
"I am
very motivated to achieve my goal – my
old voice – and to do what I need to maintain
it. Part of this will require vigilance to make
sure the old habits don’t creep back in
and the other part is to be aware of old habits
and address them as they do occur. I can’t
wait to get my groove. Voice improved 35% at
the clinic."
Laura
– Mixed SD 6 years
As a Christian
Science practitioner, Laura faced the challenge
of allowing herself to be here to receive the
voice and breathing training we offered. She
gained the following insights at the clinic:
"It is
ok to be here and I deserve to be able to do
this. Good is available in many different forms,
under many different names, but it is all the
same Mind at work. Using a variety of activities
and developing skills – physical and spiritual
– is a many pronged approach – a
more effective way to achieve the goal.
"I learned
practical ideas to take and use, sympathetic
support, a family atmosphere among participants
and beautiful and relaxing off-campus accommodations.
I would have liked more time just because it
was warm and fuzzy and I made daily progress.
I know that with what I have I can continue
to make progress."
Donna
– Abductor SD 7 years; s/p bilateral silastic
thyroplasty 3 ½ years ago, vocal tremor
"I learned
that emotions play a big part in the quality
of my voice and that I CAN practice breathing
and voice techniques that make my voice better.
A positive attitude is paramount. I can learn
to be mindful of giving my best voice each time
I speak.
"I would
encourage any person with SD to attend this
clinic. It was extremely worthwhile in improving
the quality of my voice and perhaps more importantly,
in changing my attitude so that I’m realizing
I can improve my voice through practicing the
skills I learned at the clinic. I am very optimistic
about re-gaining my normal voice, and even improving
that. Voice improved 50%."
Bob
– Adductor SD 2 years
Bob had read
Connie’s book and taken it to his local
speech therapist. They had been working through
the exercises together and he had experienced
some significant improvements, yet felt that
the clinic might yield more rapid progress and
a more comprehensive program. He was a good
encourager to the more severe cases by telling
them that his voice sounded just as bad before
he started his voice therapy.
"The
whole experience was great. The group setting
to me was the best way to understand and work
out the problems. Working in a group with similar
conditions helps put one at ease and promotes
the healing process. Connie and Mike are great
to work with and fun. They keep the mood light,
which is very important. They are a wealth of
information, new ideas and help. The breathing
development is so important and the biggest
help in my recovery. They good voice was in
there. I just had to bring it out. Voice improved
90%."
|
L - R Michelle, Connie, Karen, CS, Carl, Lorraine, BT, Mike is hiding inside!
January 2007 - Apollo Beach, FL
We all decided that Florida is THE PLACE to be in January as we watched the rest of the country ice over. We had six wonderful participants from as close as South Florida and as far as Sydney, Australia. The clinic experience seems to get better each time as Mike and I expand our model and incorporate more of the mind-body experience in healing the voice. The weather was too perfect not to take the boat out for our Sunday morning devotions. Kudos to Bob Pike for making that happen!
Testimonials from January: Michelle - AB/SD 3 years
My experience at the clinic wasn't just about my voice. It was about all of me. The knowledge that was instilled into me will help me heal all of me, including my voice. Four of the most worthwhile days of my life. Voice improved 80-90%. Karen - AD/SD 6 years, s/p Type II thyroplasty 2004
The Intensive Voice Clinic is intensive in many ways, not least in the sense of acceptance of where you are in your healing process and who you are as a person. It is a time for letting go of any heaviness of body and spirit and accumulated feelings, and a time for discovering and experiencing your free, easy and resonant voice. Mike and Connie serve as guides, coaches, and inspirations. They have each traveled a path of healing and recovery, and their personal experience is enhanced by the incredible tools and skills they share as professionals and experts in their fields.
They are like midwives, helping to bring to birth new hope and a future for persons with SD. Sometimes the births/breakthroughs are dramatic; sometimes there are glimmers of the new voice or a new feeling of ease in voicing. It all helps to get us into a new groove and gives us a new normal to visualize and work toward.
I leave the clinic knowing what I need to do to recover fully. And I leave having made new friends and with renewed hope and joy. Voice improved 50%.
Lorraine - AD/SD with tremor - 2 years; cancelled RLN surgery scheduled July 2006
There is another way to handle SD other than surgery or Botox injections. Voice therapy is the positive approach. Voice improved 95% Carl - AD/SD 7 years
This clinic not only provided me with the tools, support and hope that I needed, but it also gave me valuable insights into my overall well-being. Thank You! Voice improved 50%.
BT - AD/SD 6 years
The clinic provides a comprehensive evaluation of mind, body and spirit. A safe environment to explore and reveal the ability to regain the use of the voice. Meeting and working with a group of individuals who share a common purpose - to heal the mind, body and spirit. Voice improved 95%.
CS - AD/SD with tremor- 3 years
All of the techniques at the clinic are very beneficial, including the audio/visual techniques. "The Secret" was very inspirational. My pitch is higher and I have stronger resonance. I am more relaxed and able to speak without Botox. I realized I can have control of my voice by lifting my pitch and letting my voice flow smoothly.
|
L to R is Mike, Sarah, PG, JC, Gillian, Connie, Shona, KS.
December Clinic 2006 - Windsor, United Kingdom We were pleased to offer our first international clinic with the gracious donation of a boardroom by the Oakley Court - Windsor. While Michael and Connie were in a state of shock over the poor performance of our dollar against the British pound, we were pleased to be able to offer the clinic locally and to provide a talk to the Dystonia Society/London. While no further international clinics are currently planned, we invite our UK friends to join us for a US clinic. We promise elegant, affordable lodging and food, as well as delightful weather and shopping! The following testimonials were provided by the clinic participants.
Our participants included one of our veterans from the very first clinic, Sarah , who felt she had put her voice rehab on hold and needed a jump-start to get back on track. Sarah's voice soared, and her comments at the end of the clinic were: "Now I know this really works. Just do it, its brilliant."
Shona: AD/SD 10 years
Having been a dystonia sufferer for 10 years with Botox as the only treatment, this was the first time anyone had offered an alternative solution. At this point my life changed, and for the first time ever, I took control of my dystonia. The clinic was an inspirational experience that I would love everyone who suffers from this condition to have the opportunity to attend. Whether my voice returns or not (and I believe it will), the insights I received, the discoveries I made, will completely re-shape my life. I have a new understanding of my mind, body and voice that I would not have gained in any other way. I can now see, hear, and feel my voice. I know it is there. I discovered it during the clinic with my toolbox of therapies. I know I will bring it out permanently over time. Thank you so much Connie and Mike.
JC: Mixed SD with tremor from age 15
During the clinic I gained a new understanding of what was happening with my voice and breathing, and learned some effective ways of doing things differently. I know that they work because I heard the difference. The whole experience was very supportive and brought about more change than I imagined possible in the length of time of the clinic.
Gillian: AD/SD 10+ years
This clinic has totally and utterly given me hope that my SD can be healed, whereas I have never believed before that it could be. Connie and Mike are gifts from God who have provided me not only with the practical help in the form of exercises/instructions to heal, but also the inspiration and motivation that healing is possible. My voice has made a dramatic improvement since I started practicing the breathing and voice exercises and I am confident that my progress will continue. Everyone with SD should have the opportunity to do this course and it should be available on the NHS!
|
|
Left to right: Mike, Connie, Jim, Lorelei, Marsha, Margaret, KR not pictured.
October, 2006 Clinic, Maggie Valley, North Carolina
The October clinic in Maggie Valley, NC was attended by five SDers from various states in the US. Despite the fact that both Mike and Connie were stricken with laryngitis, we managed through to significant improvements in all voices, including our own! We were able to watch as the fall colors began to emerge and celebrate the emerging voices as well. As usual, the group dynamics and support were priceless.
Margaret (AD/SD, MTD) 1+ years:
This clinic was absolutely a wonderful experience, not only for working on the voice, but the whole person. The bodywork was phenomenol and it was amazing to see what just a few adjustments to the body could do for the voice. SD is most definitely a disorder that goes beyond the voice mechanism and needs to be treated in a holistic manner. This clinic provides just that in a warm and comfortable environment. It was evident that Connie and Mike truly care that each one of us succeeds. I leave with the knowledge that this is definitely curable and with the tools and techniques to completely recover my voice. My voice improved significantly in 4 days.
Lorelei (AD/SD, MTD) 2+ years:
Attending the clnic is the best thing that I have done for myself since I have had this voice problem. Just being with people that have the same issue and witnessing the improvement in a short time is truly encouraging. I hope that information about the clinic will reach everyone that develops SD or MTD, especially prior to meeting the (wrong) doctor.
Marsha (AD/SD) 2+ years:
This clinic with Connie, Mike and Robbie effectively touched my mind, body and soul. With compassion, tenderness and expertise, Connie and Mike guided me to get in touch with myself by teaching me tools and exercises to continue my journey to wholeness and restoring my voice. When I return home, I plan to share what I have learned to help and support others with SD.
Jim (AD/SD) 2 years:
The personal attention and individual approach to treatment provided an ideal setting for every participant to acquire a specific strategy for a complete cure. I personally experienced improvement during the four days of the clinic and am confident I will now have a complete recovery from the debilitating effects of SD.
KR (AD/SD) 3 years:
I truly appreciate Connie's approach to treating the whole person and not just the voice. I learned so much about myself and my potential. The group sessions were a wonderful way to connect, and gave all of us a chance to hear what the others needed as encouragement. The private sessions were great to identify the specific things we needed to work on. We were given great resources (books, CD, DVDs) to use during and after the clinic. This has been a wonderful experience and I am blessed to have Connie and Mike in my life.
Third Voice Intensive Rehab Clinic June 2006 Apollo Beach, Florida | More Photos |
|
June 7-11, Apollo Beach, Florida. We had an incredibly exciting mix of individuals for this clinic, including several attorneys, a singer/song writer, and a speech pathology major. The group solidified and provided excellent support and encouragement throughout the clinic. As promised, we addressed not only mechanics of voice and breathing, but attitudes, beliefs, life-style, nutrition, posture, strategies, and spiritual avenues. We had intense work as well as fun times together. The testimonials of the participants tell the story well.
Janet: Adductor SD (9 years) It is a blessing to work with a Speech Pathologist who has been there and has struggled with the grip of SD. She is encouraging, a great coach on what particular strategies may be the most helpful, especially how to optimize what voice one can utilize in the present. She has developed an excellent protocol of disciplines to provide a holistic approach and assembled a great team to help one effectively progress to one's own voice. My voice improved 80% during the clinic.
John Paul: Adductor SD (5 years) The Free to Speak Clinic is a breath of fresh air for those who are struggling with Spasmodic Dysphonia. A cornerstone of the clinic is that Connie, a veteran speech pathologist, is herself a SD survivor. Since the prevailing though in Western medicine is that SD is a neurological and therefore an incurable voice disorder, the irrefutable fact of Connie's full recovery -- of both her speaking and singing voice -- gives clinic participants inspiration and profound hope. But the clinic is in no way a one woman show. Connie has assembled a first class team with expertise in the areas of breathing with Michael White as well as neurolinquistic programming/neuromuscular therapy and psycho-social assessment. I found all (facilitators) to be caring, compassionate and committed. Another component of the clinic is the opportunity to interact with fellow participants in a safe and loving environment where one can learn, share, and experiment without fear of sounding or feeling foolish. Finally, the clinic has an element of Christian spirituality to it that I personally found meaningful. While nothing is shoved down anyone's throat, it is clear that Connie's faith in God was the basis of her recovery and she is comfortable sharing her journey in that context. If you are a SD sufferer who has tried everything else to no avail, then I highly recommend and strongly encourage you to consider the Free to Speak clinic. You will acquire all the skills necessary to overcome Spasmodic Dysphonia and leave with a plan of action to continue your recovery.
Dwight: Adductor SD (20 years) A great opportunity to learn techniques and strategies to significantly improve or cure your SD in the long run with continued practice.
Leslie: Adductor SD (5 years) I am supremely grateful that I was able to attend this (clinic). The atmosphere was very encouraging. We had wonderful workshops and excellent private sessions. The dynamics of the other participants provided a rich dimension. We were all supportive on one another. The stage was set for each of us to have our eureka moments, the times we discovered the voice that we thought was lost. We rejoiced in the midst of our problem. I am leaving wi6ht the tools I need for complete recovery. I go rejoicing.
Randy: Adductor SD (9 months) Connie provided exactly what I wanted - specific instructions that I could continue to use when I returned home, encouragement from her own experience that this condition can be overcome, and an experience in which I felt that it mattered to Connie that I get better. She made every effort to see that each of us received more than what we paid for. Her vivacious and warm personality was contagious and set the atmosphere for the entire clinic (experience).
Lidia: Adductor SD (2 1/2 years) It far exceeded my expectations. This weekend I had a breakthrough. I found a confidential voice (with Connie) and with Mike, found that elusive singing voice that I hadn't had for a long time. This clinic is the best because it includes so many aspects, it's the mental and the neuromuscular piece that flowed into the breathing piece, which flowed into the speaking piece. It all came together in a very supportive environment. Now I begin my quest and my mission with my speech pathologist in Canada. You guys are coming to Canada! |
Group shot of Jan 2006 participants - Left to right Nancy, EA, Marie, Micki, Connie Pike, M.A., CCC-SLP,
Mike White, Optimal Breathing Coach. Mascot is Connie's dog, Congo. More Photos |
Overview of Second Clinic January 2006 Apollo Beach, Florida
by Connie Pike
The January clinic took on a different climate. It was conducted in a retreat-like setting in Apollo Beach, just south of Tampa, FL. The intensity of the clinic remained intact, but was contrasted by times of relaxation by the pool, in the hot tub, or viewing the Manatees in the warm channel waters. Healthy drinks and snacks were plentiful and participants expressed their delight in the sunny warmth of a Florida "winter". As with the initial clinic, group dynamics and support were a key component. All participants gained insight into their specific problems; and agreed that while the work was intense, the fun times offered rest and relaxation and lots of laughter. Karoke night was a big hit!
Here are some testimonials from the January clinic:
Nancy (Adductor 20+ years):
I feel that I was led to a path that will prove fruitful. I benefited greatly from the knowledge and skills of the facilitators, as well as the empathy, compassion and wise counsel. I felt the time at the clinic helped me unravel some of the variables that have been blocking my voice progress. The holistic approach taken at this clinic is unique and helpful, as this disorder needs to be confronted via the emotional and spiritual journey as well as the physiological level. Connie's testimony was crucial for me as she is a terrific role model of persevering with composure, faith, grace and confidence - at the same time being honest and real about the struggle.
E.A. (Abductor 9 years):
One of the best things of the clinic is the personal one-on-one. SD is so individual that it needs to be repeatedly assessed and a recovery plan personally tailored for each person. The clinic was the one place where all of us were "normal" and Connie's true understanding of what it felt like was really important to me. It also helped to hear from each other what techniques were helpful. I can now actually see that SD is not always a life sentence, and it certainly isn't the worse thing to happen to me. If Connie could do it, so can I.
Micki (Adductor 6
years):
I have lived with SD for six years. During that time, I have read, researched, tried to speak differently, and tried every trick I heard of. I could not get a handle on the specific mechanical problems and how to correct them. It was like a condition with a hundred variables with no specific tests to tell what helped or hurt. Through speech therapy, I learned easy onset and soft voicing, but this did not fit my personality or profession. The Roger Love study benefited me greatly and my voice improved, but allergies caused me to lose those gains four months later. This clinic is different in that it is a holistic approach to the problem and the healing. Skilled diagnosticians were able to assess my specific mechanical problems with voice and breathing, and also understand and advise on the human factors that would help or hurt my recovery. The 3 ½ days was more like a healing and wholeness retreat for the voice than a clinic. I made significant breakthroughs with voice and breathing and know what to do to recover my voice fully.
Marie (Abductor 5 years):
I had had botox treatments which only minimally improved my voice. Not only that, but the botox injections would have to be continued indefinitely. This program has dramatically improved my voice (75%), but probably most importantly, it has given me the tools and insight to continue to help myself. I know that my SD will eventually resolve completely.
|
Overview by Connie Pike, M.A., CCC-SLP
August 18-21, 2005 - We held our first intensive voice rehabilitation clinic in Tampa, Florida. Connie organized the clinic format based on the model she used to restore her own voice over the past year (AD/SD) and outlined in her book Free to Speak: Overcoming Spasmodic Dysphonia. She was assisted by Michael White, Optimal Breathing Specialist. Robbie Goss, licensed mental health practitioner, consulted with each participant as well. We had five participants for the first clinic; one Adductor, one Mixed with secondary dysfluency, and three Abductor. Length of time from diagnosis ranged from 6 months to 12 years.
Intensive sums up the experience well. The first day consisted of individual assessments, including breathing analysis with Mike, Connie performing computerized acoustic analysis to determine habitual pitch levels, voice evaluation and beginning video tapes. Robbie had provided a psycho-social evaluation tool prior to the clinic, which he discussed with each participant. The second day, the hard work began. Connie and Mike both met with each participant for an hour individually to begin unraveling the mechanical issues at hand. Voices began to free up and strategies were explored and breathing blocks removed. Each person was uniquely different in their manifestations of the SD and their reactions to it.
In addition to individual work, we also had some group training around optimal breathing release techniques, laryngeal massage, and Roger Love's singing exercises. Each person was trained on a computer program which helped them visually identify their pitch level, and provided immediate auditory feedback of speaking samples. During times that they were not in a treatment session, stations were set up so that one could choose an activity of choice such as working at the computer, doing a taped relaxation exercise, reading selected stories, articles, and books, or narrating what they were learning on an audio tape. We also found that the interaction between various members of the clinic as they encouraged one another and provided feedback on their voice improvements proved invaluable.
We met as a group in the morning and evening on Saturday and Sunday to practice our best voices as we circled up and talked in a group. All five were very pleased with the increased ease in speaking in front of others and in sharing the strategies that were working for them. They were also given a choice of what to target for the last day. Some felt they needed more breathing work with Mike and some felt they wanted to work more with Connie.
There were a few highlights of the weekend that added to the camaraderie and fun which was a contrast to the intensity of our work. The first was when a delivery guy from the deli brought our lunch in. Mike and I were in sessions so one of our participants took the food. The young man asked what we were doing working on a Saturday and was told it was a voice course. When I came out to pay him, he asked, "So what kind of voices do you guys do?" to which I laughingly replied, "any kind we can.".
That evening, everyone was invited to Connie's house for a social. My teenage daughter was in and out and was introduced to everyone. As she left, she asked who all those people were. I explained that they were my voice clients and that I was helping them to get their voices back like I had. She said, "Oh, well they all sound fine to me." They were pleased when I shared her comment the next day!
On Sunday, we all went to a restaurant together. Everyone ordered their own food with ease, teased the waitress, and there was non-stop chatter and laughter the entire lunch. The waitress made the comment that we certainly seemed to have a good time together. No one overhearing us would have found anything strange or different about the voices that emerged. I was so proud of the group.
Each participant left with an armful of materials and brain full of strategies and information to use, a compliance contract, and renewed hope for continued success. Each completed an evaluation, and reported anywhere from 30-75% improvement in their voices over the weekend. Here are the testimonials of some of the individual participants:
Bonnie (Mixed SD, 12 years) "Connie definitely has a great understanding of SD, as well as the aspects that involve the throat and facial muscles. She is very sensitive to each person's needs, preferences, and feelings and very approachable. Mike is extremely knowledgeable about breathing mechanics and can find the natural voice in anyone. I feel quite confident that the knowledge and tools I have received will be all I need to continue building on the progress I made here at the clinic.
"The Voice Clinic was just what I needed to show me that it IS possible to overcome SD, and to motivate me to begin my own journey to true recovery. The detailed and specific information I received during the clinic helped me to realize exactly where my problems lie with regards to my voice production. I learned that SD is not one simple problem, but a combination of many incorrect breathing habits and other bad habits we pick up along the way to try to compensate for our "bad" voices. Connie's consistent emotional support and encouragement were great motivators."
L.S. (AB/SD, 5 years) "Both Connie and Mike are heart-centered in their work and clearly wish for the highest good for their clients. I leave this workshop feeling greatly encouraged that the skills and insights I have gained here will, with continued practice, enable me to steadily progress toward a voice that is functional under all circumstances. Connie and Mike have created a client-centered approach that is both comprehensive and highly individualized. They bring great heart and spirit to work that is much needed in this world."
Brenda (AB/SD, 6 months) "I was drawn to this clinic because Connie had suffered from SD and knew how I felt. She understood the devastating consequences of SD. She had put to use her knowledge of speech pathology and incorporated other methods, such as Roger Love's to help her overcome SD. I did not come to this clinic with illusions of returning home with a healed voice in 3 ½ days. I came so Connie could teach me the techniques. I was not disappointed. Connie is very up beat and optimistic, I had no where to go but up. She helped me find my optimum pitch and showed me how to practice. I learned through Mike that good breathing is the key to maintaining the voice. I believe I have all the tools I need to strengthen and maintain my new voice, improved 70% since I arrived."
Jay (AD/SD, 3 ½ years) "In my experience with SD, I have come to learn that breath support is crucial to maintaining an effortless voice. But it is very difficult to obtain that needed breath support when my vocal folds are tight. The Free to Speak Voice Clinic places a major focus on first freeing your breath, so that you can then produce an improved voice, and do so without effort. My voice improved 70% at the clinic."
Sarah (Abductor SD/ 7 years) "I have always felt that there must be ways of combating SD by natural means without resorting to botox injections. What is so significant about this course is that it is run by someone with personal experience of this condition who has greatly improved her voice through her own efforts. This in itself offers hope to SD sufferers everywhere. The course teaches a variety of techniques that may help improve one's voice. But more important than particular exercises or immediate benefit is the sense this course instills; that it is possible to improve one's voice by natural means. It is just a question of finding what works for you personally and putting the practice in. I am so please that I did the course as I feel that it has given me a totally renewed impetus and many tools to attack this problem."
***
Free to Speak Voice and Speech Therapy
Go to www.freetospeakvoicetherapy.com/register.html
to register.
Checks, Credit Cards and Paypal accepted.
|
