Free to Speak Voice and Speech Therapy

 

Spasmodic Dysphonia Voice Clinic Participants Experiences Since 2005

Long Term Successes | Efficacy Studies

 

 

February 2013 Clinic - Apollo Beach, Florida

L-R: front row, Christine, LMT, Sharyn, Connie, SLP; second row, Corrine, Gary, Candace; back row, Dennis, LMT, Gordon, Chuck

Sharyn: AB/SD diagnosed in 1990 by Dr. Herbert Dedo, and again in 2012 by Dr. Albert Merati, but as AB/SD with MTD: Self managed well by humming and singing into speech until this year. One botox injection with bad side effects and no help to the voice.

I experienced a sudden shift in voice as a direct result of Connie’s insightful instruction.

There are choices in life. We didn’t choose to get SD, but we can choose how we deal with it. Botox is one choice. Doing nothing to treat it is another. But there is a third choice, less well known, but one that offers a bright beacon of hope for those of us who are tired of scopes and injections that are simply not working for us.

I will be forever grateful that I found Connie, with her broad toolbox of techniques that can help SD sufferers to improve their speech dramatically and remove the enormous effort we’ve been expending just to speak.

What would I say to others who suffer from SD? Give yourself the gift of hope, the chance to learn a new way to speak freely again with no drugs and no stress. You may find yourself like I did: sitting in Connie’s office with tears of joy streaming down your face as you say in a strong-again voice, “It’s working! My voice is working again!”

Corrine: AD/SD diagnosis in March 2010, MS diagnosed in April 2001. Botox injections once yearly for 3 years until the 3rd was a “disaster” with difficulty swallowing and aphonia.

By Day 2 of the clinic, I found where my voice should be instead of pushing down and scraping through my old strangled voice. I improved 99%, with slips only because of bad habits. I became conscious of posture and opening up for deep breathing and letting the voice flow up and out on the breath. The instructors were amazingly gifted and talented; exceeding my expectations.

Having had SD for 3 years and a Botox shot “gone bad”, requiring short-term disability from my job due to choking on food and aspirating in my sleep, I began searching for a better approach to this serious problem. I found Connie’s Free to Speak website, ordered her book and called her, whispering “help me!” She gave me tips and told me we would have to wait for the Botox paralysis to wear off. The February 2013 clinic timing would be perfect timing, which turned out to be God’s timing for me to start my recovery of being free to speak.

I anxiously awaited with great faith that this was the hope and resolution I had been waiting for. The clinic exceeded my expectations in so many ways.

Connie, having walked in “SD shoes” gives her personal experience. Her background in Speech Therapy is another blessing and addition to the “pot of chicken soup” I experienced and witnessed in myself and others in my group.

The clinic is a wonderfully loving, compassionate atmosphere where you witness different types of SD. Everyone encourages one another and you hear progress throughout the week.

Dennis’ examples of proper breathing and posture, Tai Chi and positive life-changing motivations help make changes beneficial to the whole mind-body experience.

Christine “rocks” wonderful blessings to be gifted to relax us with body massages, chanting and yoga techniques that I will continue to use.

All the wonderful people in the clinic were the right people at the right time. It was an amazing experience for my voice, mind, body and soul.

Gary: AD/SD diagnosed by the Mayo Clinic, Rochester, 2011. Three botox injections with various results, the 3rd having more side effects such as choking.

Background: I first detected a voice change in February of 2011. I went to a regional ENT in Bemidji, Minnesota who had been recommended by my GP. He scoped my throat and diagnosed a dysphonia. He asked me some questions about my professional and personal life. The Doctor then diagnosed me with a condition that was likely related to a fear of public speaking. I doubted that was true. I accepted his diagnosis of it being short term and perhaps psychosomatic and was optimistic that it would likely resolve over time. When I asked about further treatment he suggested I seek the services of a speech coach. When I asked him if there was one he knew of or that he could recommend he said no. I had no luck in finding a speech coach here in Northern Minnesota. In June I was back to see him and suggested that the condition had worsened. He asked why I was back, I told him it was because the condition had worsened and I did not feel it was psychosomatic; I felt that it was a physical condition. He scoped my throat once again and said “I cannot help you further”. He still stated he did not feel that it was SD. After this session I did some research on the Internet found out a bit about SD and decided to get a second opinion at the Mayo Clinic in Rochester. At the Mayo Clinic the speech pathologist that I met with again scoped my throat and diagnosed me with AD SD. I was pleased to finally receive a more specific diagnosis. She provided a good consultation about the condition and gave me some personal exercises/ideas for improvement such as: trebling lips, posture during speech, breathing more effectively and possibly a few sips of alcohol before an important speaking engagement. She asked if it was worse at times and I said yes in the evening or when I was tired. She also indicated that the condition would likely worsen over a period of 18-24 months. She went on to recommend botox injections for temporary relief from the condition. Subsequently over the next ten months I had three treatments in about twelve week increments. The results were varied with the third injections having complications due to how it was administered.

As a result of the lack of effective results my wife did further exploration and learned of the “Free to Speak” clinics being held in Florida. Together we discussed the future and elected to consider a trip to the clinic in February. After a phone conversation with Connie I was committed to this approach and cancelled my next botox treatment that had been scheduled for December of last year.

We came to Florida with hope and anticipation – after reading both of the Free to Speak books and using some of the tools described I felt that there could be – would be much learned from the clinic that would lead to improved speaking.

The Experience in your Home Clinic:

Connie, from the greeting at the door you, your team and your home were each welcoming and encouraging. The other participants with SD (worth noting; other than our phone call I had never communicated with anyone else with SD) were wonderful and supportive. I have to say that for me it was both reassuring and a bit scary to meet and talk with other people with SD. This was particularly true when I learned that some of the people had been dealing with this condition for decades. Even after two years there was a great deal of personal uncertainty about the condition and although some initial steps toward acceptance, a taste of denial in terms of what this condition might mean in my life. (As a life coach, consultant and public speaker I had recently made the decision to no longer do public speaking and my consulting was now limited to very small groups. Coaching over the phone was a real challenge and I was grateful that my coaching clients were understanding and sympathetic.)

There was an excellent mix of group time and personal consult; with of course some time for practice and reflection. This holistic approach for me required surrender and you have created in your home clinic a sense of peace, safety, trust and love. The other clients quickly became friends and a community of support. The assessment delivered by Robbie was key to provide a mental health perspective to the process. Christine was wonderful in her gentle spirit, firm hands as a massage therapist, gracious in her food preparation and uplifting with her yoga instruction. Dennis provided an important compliment in his expertise on breathing and how we can improve our speech through body awareness.

Connie your listening skills are a key to this work. You have the ability obviously to observe, provide powerful questions, evaluate and then suggest. You have the skill to take what you are learning from your training and practical application to continue to become a wealth of knowledge based on your students who you have learned so much from while you deliver this important life work. I learned from this time together the amazing spectrum that exists with SD – (AD. AB, jumping larynx). Each of the personal expressions of SD was so very unique.

For me the first ahhhhhh in your office allowed me to recognize what it meant to control my breathing and pitch. Your consult at that first one-on-one meeting gave me immediate results. I learned what a confidential voice was and will use this foundation to begin to expand my pitch range and my voice amplitude. The clinic taught me to be kind to my physical, emotional and spiritual body. I practice this and talk about this all the time with my life-coaching clients. I know that the awareness I have for this way of life will open the opportunity for healing and sustainable health in my voice and my life.

Robbie told me that the re-conditioning would require two hours of homework for the next year. He was responding to a direct question from me. I believe that this is true and at the same time this will also bring holistically for me a better life not just in my speaking voice.

I am continuing to consider this condition to be a blessing that will lead me to greater awareness of who I am and how I want to live my life. I am not my voice and yet my voice is important to my life. Thank you Connie for this important life work that you have claimed.

So bottom line I would rate this clinic on a scale of (1-10) as a 9+. Are there things that could be improved, yes. Are all of the foundational pieces well in place; in my opinion, absolutely. You have established this work on amazing principals Connie. I would describe them this way; first as a life calling with pure intention, with love, with gratitude, with a view of the person as a whole person, with delivering hope for a better tomorrow, with acceptance for what is, with little judgment against the system and what it represents, with an appreciation and respect for the spiritual component. And most importantly one special person at a time! ~ Gary

Candace: AD/SD, essential tremor, reflux. The SD was diagnosed in 1993 by Dr. Dougherty in Miami and Botox was recommended.

Periodic injections in Miami and in NYC by Dr. Blitzer yielded inconsistent results. Last injection was September 2012 with minimal improvement. ***Note by Connie, Candace was never given information about her specific condition in whole. Her mother had SD, hand and head tremors; Candace has essential tremor with hand tremors and she suspects mild symptoms in her adult children. She also has reflux and consistent hoarseness and a history of breast cancer. She was encouraged to get an updated ENT exam to rule out pathology and to consult with her neurologist regarding medication for ET. Learned to elevate my pitch and use more forward resonance and reverse my breathing patterns.

After 20 years of living with SD, I have, for the first time, been given tools to help ease the tremors either without or in conjunction with botox. Through attending Connie Pike’s clinic, I have seen first hand her expertise in treating varied types of SD.

I would encourage any sufferer to experience a consultation with Connie to explore the many options available in treating SD.

Gordon: AD/SD with gradual onset starting in 1993, diagnosed in 1998 in London.

Botox injections with Mr. Gerald Brooks resulted in excellent improvement and he continued every 16 weeks. While there was some variation, and voice was judged to be 80% of “normal” with good projection without tremor, but inability to sing or recite in church. Average improvement with injections lasted 8 weeks. Speaking from personal experience of attendance at this unique clinic, I would have no hesitation in recommending it to anyone with SD (laryngeal dystonia) and especially to those with reservations, objections or adverse reactions to the usually recommended botox injections.

The approach is holistic: addressing body, mind and spirit through varying but interconnected activities. The personal attention devoted to each participant (bearing in mind that all have differing needs) by Connie Pike and her specialist team, is central to the success of the clinic. Significantly more time can be directed towards individual needs than is usually the case elsewhere. Additionally, close interactivity within the participant group is a source of great encouragement.

Last, but not least, the clinic is not held in an institutional environment, but in the tranquil surroundings of Connie’s beautiful waterside home in Florida. The value of this setting should not be underestimated.
I personally came away in better voice than for 14 years, but mindful of the work ahead to maintain the level achieved at the clinic.
Gordon Jewkes, Beaconsfield, UK

Chuck: AD/SD onset in 2008, diagnosed in 2009; also diagnosed with sleep apnea in 2009, requiring CPAP, confirmed acid reflux.

Botox injections 11/09, 3/11. Both resulted in a month of aphonia and short improvement following. Klonopin, Dr. Cooper 5 days in 11/11, never fully recovering. Traditional voice therapy with little improvement. Experienced 50-60% improved voice at the clinic. I was able to identify and reinforce my proper pitch and learn techniques to keep my larynx from moving up, although I have a ways to go on that movement. I learned the proper technique for diaphragmatic breathing.

Without a doubt, this clinic exceeded my expectations. I had a pre-conceived set of ideas on what I needed to work on prior to the clinic, as a result of seeing Morton Cooper in 2011. Connie’s clinic touched multiple additional aspects of the body/life that are important influential factors in SD.

I would say, foremost, Connie’s experience in her own recovery and then relapse make the experience invaluable and effective. The compassion she has for her patients is genuine and helps tremendously in finding and maintaining hope. How often can a practitioner really empathize with a patient dealing with a rare disorder?

The holistic approach is key to the success of recovery from this condition. The approach doesn’t end with breathing, stress reduction, nutrition, etc. The fellowship and spiritual aspect of the 5 days were equally important.

I would like to thank Connie, Dennis, Christine, and Robbie for the program they have developed. This was a Life Clinic as well as a Voice Clinic!

 

 

November 2012 Voice Clinic

November/December 2012 Clinic, Apollo Beach, FL
L-R: Christine, Connie, Dennis (the team); Bonnie, HM, Mary, Walter, Barbara, Tanya


Bonnie: AD/SD diagnosed in August 2012 after symptoms for 5 months: Botox injections initiated in September, which helped temporarily. Reported 50% improvement in her voice at the clinic, learning to speak in a more relaxed manner. She was feeling the effects of her botox injection wearing off. She realized she was holding back her breath and needed to practice deep breathing.

It was a very relaxed, friendly atmosphere and I felt very at home and free from stress. Everything was well organized and professional. It felt like a spa but I learned a lot about neuromuscular massage and healthy posture, breathing properly and voice strengthening exercises. The massages were helpful, sessions with Dennis good for stretching muscles and the sessions with Connie were good for speaking, voice, breathing, and mental aspects of SD.

HM: AB/SD with onset in July 2011, diagnosis in June 2012. Botox was recommended but he declined. Klonopin prescribed and intermittently used. Reported 40% improvement in his voice, with confidence that he had the necessary tools to continue improvement. Became aware of breathing problems and how to change them.

The Free to Speak Clinic has given me hope and has provided me with the tools to go back home and continue my voice rehabilitation. I discovered the specific problems with my voice and other self-reflections that contribute to my problems. I found out my level of anxiety was one cause of my problem and that I need to focus on self-care and relaxation techniques along with good voice practice to continue to improve. It is a journey to recovery and I am happy I came to the clinic.

Mary: AB/SD, symptoms began in 1998. Speech therapy and counseling as initial diagnosis was MTD. After a period of recovery, her voice deteriorated in 1999, continuing a decline through 2008. Another ENT diagnosed MTD and prescribed further speech therapy and massage. In 2009 she was diagnosed with SD and botox was recommended. She had one injection and then resumed speech therapy along with acupuncture. Restored normal voice function until October 2010. Had tried Alexander technique, meditation, Pilates, and Roger Love singing exercises. Felt the voice get better and revert during the clinic. Developed a more open chest, better posture and the neck loosened.

A benefit of the group setting is meeting others with the same condition. This was the first time I had met anyone with SD.

The clinic provided a good overview of SD and a wide variety of tools to try in dealing with it. Having someone like Connie, a speech therapist who has actually had SD is very helpful. She had been there herself and is a great role model. At the end of the clinic, I realized that with SD, there will be ups and downs and to accept that “it is what it is”. Acceptance of myself as someone with SD is a good place to start.

Walt: AD/SD with symptoms starting in the early 1990’s and diagnosed in 1996, Botox injections yearly or semi-annually at the Mayo Clinic in Rochester. Learned not to force the voice and became more conscious of breathing and all things that affect it.

Fantastic… The clinic brought together the main aspects of SD; namely, posture, breathing, emotions. Each element was explored and practical tools were given to help us improve and manage SD. Connie Pike is in the unique position to offer this clinic. She has personal experience with SD and is a speech therapist. She has compassion. The team she brought together is able and caring.

Sharing common experiences with each other as clinic participants was invaluable. Knowing one is not alone gives hope. People of many different callings in life have been stricken with SD.

Barbara: Previous tracheal stenosis; 6 dilatations and then re-section and reconstruction of trachea December 2010. Was told there was nothing she could do to improve her voice, which was very upsetting to her. Surgery to stretch out/ lengthen the vocal folds was offered but with uncertain outcome. She tried massage, herbal teas, and some voice exercises intermittently.

Gained confidence in speaking in a higher pitch, using confidential voice, and breathing in an easier manner without pushing.

If you truly want to recover, you must attend Connie’s clinic. You would be foolish not to. You will be given knowledge and skills by practitioners that are not only genius mentality clinicians, but caring and blessed in their thoughts and practice.

There were 6 of us at the clinic – strangers from different parts of the world – that became united and helpful towards each other – understanding and feeling welcome by people with the same and similar conditions.

Connie, Dennis, and Christine are gifts from God!

I learned to think outside the box!

Tanya: AD/SD with gradual onset starting in 2007, diagnosed in 2010. Voice therapy, homeopathy, yoga, reflux medication, counseling, botox injections in September 2011, December 2011, March, June, and September 2012. Results were inconsistent, lasting 6-8 weeks. Learned how to coordinate breathing and speaking and focus the voice higher to release the blocked, strangled sound. Improved posture and learned to monitor her breathing.

I consider this trip to the clinic the longest journey of my life, not only because I traveled thousands of miles from Bulgaria, but mainly because it dramatically changed my perception of my condition and myself. The most important thing is that I realized what my weaknesses are and what I need to do in order to improve.

I value every minute at the clinic and highly appreciate the supportive and friendly atmosphere. Everyone has been helpful and cooperative. Robbie taught me about visualization, relaxation and ways to become more logical, self-compassionate and less emotional.

I was impressed with Dennis’s knowledge in so many areas and by his optimism and great sense of humor. I highly value his explanations on breathing and neurolinguistic programming, his advice to look for solutions outside the box, use knowledge yet try to overcome limitations and give priority to imagination and will power.

I had invaluable sessions with Connie. She helped me realize that first and foremost, I need unconditional acceptance of myself the way I am. Her personal story was touching and inspiring. She has taught me to ground my voice through humming, speak laughing, yawning, etc.

Christine gave us useful information on the chakras and mantras, basic yoga for relaxation. I felt so relieved after her massage treatment!

As I see it, the steps to solve a problem are to define the exact problem, and find the right tools. Now I have to design my strategy and work on it.

When I came here, I didn’t know anyone, and now I feel I have known the participants for a long time. We shared fears and hopes, helped one another, and sang together. We are united by our common goal – to find our voices and feel free to speak. I feel grateful knowing I can turn to them for advice and share my experience. Words fail me to describe how thankful I am to Connie, Dennis, Christine, Robbie and Bob!

 

October 2012 Voice Clinic

October 2012 Clinic, Apollo Beach, Florida
Left to Right: S.D., Joanne, Kim, Connie, Sarah, Jan, Dennis, Paul

S.D.: Gradual onset of symptoms for 3 years, Diagnosed with SD November 2011, prior diagnosis included acid reflux. Reflux meds did not help, short term improvement with hypnosis.

What I appreciated most about the clinic was that is was a safe, supportive, loving space to come and address an area of my life that has been a source of tremendous vulnerability. Connie, Dennis and Christine bring so much warmth, love, genuine compassion and enthusiasm to their work with clinic participants. For me, sharing this healing journey with them and the other truly special individuals who attended the clinic is an experience I will never forget.

The fact that Connie has struggled with SD and has grown through the process – vocally, physically, spiritually, and emotionally – makes her an excellent and compassionate teacher. She has been there, so she knows in a very real way what we are going through.

The amount of information over five days can seem overwhelming. It is a lot to take in over a short period of time. But the benefit to being given so many options and approaches for tackling this work is that there are bound to be at least several approaches/tools that really speak to and resonate with each attendee. I appreciated the practice time between sessions because it allowed me to figure out where I had questions and where I needed support, so that I would be more equipped to do the work on my own once I returned home. Being home now for 2 days as I write this, I am pleasantly surprised by the amount of information I actually did retain. I know that if there is something I did not recall, I have Connie’s amazing binder as a resource as well as follow-up sessions with Dennis and Connie waiting in the wings. This provides a wonderful feeling of having a safety net to catch me if I fall.

While I expected to come to the clinic to learn lots of voice exercises (which I did), what I did not expect was to reflect as much as I did one the other aspects of my life which have likely contributed to the SD. Understanding how breathing is connected to speaking and how posture is connected to breathing and nutrition, fitness, relaxation and spiritual practice all connect back to our voices was truly transformative for me.

I will now be making changes in my life that will not only help me improve my voice but will also help me lead a happier, healthier life overall. It is clear to me that my recovery will take time and commitment, but I feel I have all the tools and support that I need to move forward with hope and success. I highly recommend this clinic.

Joanne: AD/SD diagnosed in 1995: botox injections in 1995, then resumed in 2010 but with limited improvement, voice therapy, massage, acupuncture, chiropractic, hypnosis

I found the clinic to be a positive reinforcement that SD is NOT hopeless. The clinic helped me change my breathing patterns, posture, and most importantly the pitch and volume of my voice that allows me to speak freely without the tension to force my voice to be heard.

I loved every aspect of the clinic and look forward to continued success. All of the instructors were loving and caring, setting programs for us individually. Connie is truly an angel sent to help those of us with SD and set us on a new path to a wonderful groove. I will forever be indebted to her and the compassion she has shared with me. The interaction with the others in the clinic helped me to empower myself for success. My journey with all of them was a wonderful experience and a great feeling to meet and work with wonderful people from around the world.

My prayer for those with voice disorders is to seek out Connie and her team. It is an experience you will never forget.

Kim: AD/SD, symptoms began in 2001-2002, diagnosed with allergies, and then SD by the NIH in 2003, speech therapy, botox injections every 3-6 months for 8 years, holistic chiropractor and supplements, psychotherapy.

The clinic was a great experience! I met a lot of nice people and I felt comfortable. There was no judgment or criticism about my voice. I love the fact that Connie had gone through SD. Dennis had a great way of showing me the correct way to breathe. I was lacking proper breath support. Christine gave me my first massage ever and it was wonderful. I loved her Yoga class. Everyone was positive and encouraging.

I learned that I am really closer to recovering my voice than I realized. Although I had some apprehension coming to the clinic, I am so glad I made the decision to do it. I laughed and cried. I learned a lot about myself and how to manage my recovery. I am happy with the tools that were provided to me at the clinic.

I would love to share my experience with others. My email is leekrsnetnet@yahoo.com. I encourage others with SD to come to the Free to Speak Clinic. Thank you Connie, Dennis, and Christine!

Sarah: AD/SD symptoms began in May 2011, first diagnosed with Muscle tension dysphonia and acid reflux, speech therapy, voice rest, laryngeal physio, medications, Alexander technique, acupuncture, botox recommended but declined.

Meeting other SD sufferers in the nurturing and supportive environment of Connie’s exceptional home was a great experience. It is a unique clinic and the combination of the talents and dedication of Connie, Dennis, Robbie and Christine provides participants with access to a huge knowledge base of tools, techniques and strategies to overcome SD. There were moments during the five days when I felt empowered and fully in control of my voice for the first time in a long while. That, along with Christine’s fantastic lunches and amazing massage made the trip here from the UK very worthwhile.

Jan: Gradual onset of symptoms in 1995. Diagnosed with SD in August 2011. Botox recommended and declined.

Connie Pike and her loving husband, Bob, have created a sanctuary in Apollo Beach – a sanctuary for healing and exploring full and free vocal expression. From the moment I set foot in their beautiful home, I could sense that something special evolved here. It is tangible and unique and shared from a place of compassion, enthusiasm and love.

Connie has used her own journey of reclaiming her full voice to inform the evolution of a truly holistic approach to vocal recovery. You may come to the clinic thinking you will gain some techniques (and you will), but you will also find a true healing atmosphere in which all aspects of your expression are heard, considered and supported. Although Connie’s specialty has been “speech therapy”, she has a much wider vision of what it takes to open one’s full and resonant voice. She has brought together a team of angels (herself included) who will honor your body, mind, emotions and spirit as they offer tools and techniques for you to play with, and/or work with in your healing journey. At all times I felt encouraged to find my truth, to find which tools best worked for me. I felt supported to experiment and play with the exercises and ideas as I was learning.

Connie, in her gentle, playful, loving and accepting way, provides the core fabric for this experience. She is balanced and sincere and definitely knows her stuff around vocal technique and strategies for opening to more free and fluid expression. Through group and individual sessions, Connie shares her gifts. You come away from the experience loaded with a wealth of exercises, strategies, tools and techniques (and you’ll love this….a big ball, kazoo, computerized voice training program, fabulous books, a binder jammed with ideas, and a heart filled with “can do” optimism!) She also shares freely of her personal journey and the coming and goings of her sky blue voice. Here is a person of deep heart and clear vision, ready and eager to share what she has found, what she understands, and what she is learning to benefit those who are seeking to reclaim their own precious voices. Of special note is her courage... to brave new ground, to dream new dreams, and to advocate for something of true worth in a field that has been stymied by definitions of SD as incurable. (Don’t believe it. She doesn’t, and you won’t either, when you see and hear the resonant potentials in each member of the group!)

The clinic also offers the blessings of three other fabulous beings: Robbie provides a brief, valuable individual review of current psychological aspects and offers suggestions for setting sail in the direction of new freedoms. Christine provides a lovely source of light and nurturing. Not only does she prepare and serve the LUNCHES (yum), she provides her skilled and loving touch for a deeply intuitive and releasing massage. Dennis is a constant presence. Through individual and group sessions, he brings his knowledge and skills in the fields of body-mind interaction, neurolinguistic programming, neuromuscular therapy, and holistic health. Explorations of breath and posture were clear and freeing, opening our “instrument” for full vocal expression. Of great value to me was his ability to gently and precisely reach into the musculature of the throat and neck and provide some skilled contact for releasing habitually over-worked muscles.

A grand thank you to Connie (and husband Bob who kind-heartedly shared his home) and to her team for creating and believing in the healing power of skilled attention and love! Now it is up to us to take the marvelous gifts and use them for attaining the freedoms we seek.

Paul: Voice changes started in the fall of 2010, with roughness and hoarseness, progressing to severe symptoms in February 2011. Diagnosed with AD/SD by four specialists. Reflux medication, speech therapy, three week consultation with Morton Cooper, psychological consultation.

The clinic was an extremely positive experience for numerous reasons. In the second half of the clinic, I was experiencing clear voicing (no breaks) on a regular basis. However, achieving some progress towards clear voicing is just the beginning because the clinic teaches how the journey to move beyond SD is very integrated. It involves vocal mechanics, proper breathing, neuromuscular work, relaxation and emotions, all playing a massive role in the road to recovery.

A lot of information is provided, but Connie and Dennis tailor the information into a road map that I will use after the clinic. The teamwork between Connie, Dennis and Christine is very impressive, helping to insure that I receive maximum benefit of the clinic. Participating in the clinic with others afflicted with SD was the most beneficial aspect of the experience. The group shared stories, SD backgrounds, frustrations, and ultimately, we celebrated everyone’s breakthroughs as a team. Thank you for reaffirming, in a most impactful way, that SD can be managed and overcome in a holistic manner.

 

Free to Speak Voice Clinic July 2012

July 2012 Clinic, Apollo Beach, Florida
Left to Right: Christie, Mike, JT, Rey, Connie, Dennis, Kristy, John

Christie: AD/SD diagnosed in February 2012: speech therapy, acupuncture. Reported 60-70% improvement in her voice at the clinic, learning not to strain and push the voice out.

This clinic was an amazing experience all around. Before attending the clinic, I was told that Botox was the only route and that I would not get better with therapy. I began to lose hope that it could improve. But Connie’s clinic provided me with a renewed sense of hope and most importantly, a significantly improved voice. With the techniques and training that Connie provided and the breathing techniques and tension release techniques from Dennis, I can say with confidence that I am on a path to recovering my voice completely.

The group dynamic of this clinic was so valuable. The encouragement, support, and inspiration from the co-participants in the clinic was priceless, not to mention the bonds made with others going through the same emotional struggles of the disorder.

I fell that I now have the tools and jump start to get my voice fully back. This clinic was the first time that I had heard my normal voice in awhile, and the first time I felt freer to speak. I couldn’t recommend this clinic more highly to someone struggling to get their voice baack. Botox is not the only option and this clinic, and Connie herself, proves it.

Mike: Mixed SD with tremor and atrophy diagnosed in 2007: Prilosec, speech therapy for 1.5 years. Reported 60-70% improvement in his voice, with more resonance, consistency, fewer breaks, and less tremor. Breathing became more automatic, less in the chest, and inhibition of gasping.

If you have unanswered questions about SD, or have been told that it only gets worse, is incurable, that botox is the only treatment, or that speech therapy won’t help you – you owe it to yourself to explore the alternatives. At the very least, you owe it to yourself to have 5 days of exploring your condition in a relaxing, positive, non-judgmental place with other people with similar issues.

With Connie, you’ll explore methods of better vocal production, how to increase resonance, reduce breathiness and breaks and use your appropriate pitch. You will also explore the mental, psychological and emotional aspects of dealing with SD day to day. Because Connie has struggled with and overcome SD herself, her insights, empathy, and experience can’t be found elsewhere. Because she is a world-class SLP, she provides individualized, specific, tools and exercises tailored to each person.

With Dennis, you’ll explore better, easier ways to breathe, which is the foundation of vocal production. He also addresses any biomechanical problems and patterns of negative or unhelpful thoughts and feelings. He also provides concrete, specific exercises that will continue to help after the clinic.

Christine provides nutritious meals and snacks, yoga instruction, as well as Swedish deep-tissue massage. What makes Christine special is her understanding of the unique needs of SD patients and the need to release tension, especially in the head, neck and shoulders.

All three work closely together to address the specific needs of each client. Possibly, the most valuable aspect of the clinic is to meet other SD sufferers, share experiences and history, and to share successes and serve as inspiration and encouragement for one another.

JT: AB/SD, symptoms began in January 2011 following a cold and laryngitis, initial diagnosis of unilateral paresis and gel injection to medialize the vocal fold, 2 botox injections, Artane. Reported 60% improvement in voice and a good understanding of what was needed to continue improvement.

Anyone who has been diagnosed with SD needs to be informed that there is a holistic program that provides an individual with tools to recover from it as well as how to deal with SD during the recovery process. Now that I have attended the clinic, I feel hopeful and have a treatment plan to follow that puts me on the road to recovery.

I understand about the complexity of SD’s affect on the body, mind, and spirit. The kind and caring approach to treatment is evident every day of the clinic. I now am empowered to move forward. Each one of the teachers help you to develop the skills to manage, understand, and begin recovery from SD.

Connie, Dennis, Christine and Robbie are such a wonderful team. I am so thankful to them for all they do, which sets me off on a stable road to recovery. There is so much information that is provided, and tools that will guide you to know how to deal with SD as you recover. I would attend a clinic again, and recommend that anyone who wants to understand SD and how to recover your voice consider this wonderful option. From my perspective, it was worth the financial commitment to attend. The benefit the clinic offers is priceless!

Rey: AD/SD diagnosed in 1998, Botox injections every 3 months, Tagamet. Reported 80% improvement in voice production, learning to project a lower pitch and resonate into the face. Improved breathing mechanics.

Before I arrived, I had faith that I would learn the necessary skills, but did not expect to reach any immediate improvements. By the second day, I began to show remarkable improvement as Connie began to identify the weak areas of my voice and prescribe my specific pitch, relaxation, and breathing patterns that needed change. Dennis helped with the breathing component and corrected wrong mechanics. Connie, with the use of computer software applications and her expertise, helped me to maintain focus on the correct resonance and pitch that supported the best voice quality.

The financial investment and time for the clinic has proven to be valuable, and a launching pad for my voice improvement journey. Prayers be to God who has used Connie and her team to provide an alternative to Botox. May God continue to bless her as she blesses others with her gift.

John: AB/SD diagnosed in 2009 after a year of symptoms, was using whispering frequently to communicate, Botox was recommended but he declined. No prior therapy or treatment. Reported 30% improvement in voice as he learned to stop whispering and was able to produce audible voice at times.

This was a most caring and knowledgeable staff. This was the first time that I agreed and believed in everything that was presented (about my SD).

You would not be disappointed in this clinic. Words cannot express how much better I feel about myself as a person and in my ability to find my voice. I have no doubts that with the tools I have been given, the encouragement of the team and other participants, that I will be, truly, Free to Speak.

 

 

 

June 2012 Clinic

June 2012 Clinic, Apollo Beach, Florida

Left to Right: DC, Connie, Harit, Christine, Diann, EP, Tanya, Dennis, Beth

Harit: AD/SD diagnosed in November 2011; reflux medication, speech therapy. Reported 50% improvement in his voice at the clinic, with drastic reduction in “strangulation/choking” while speaking, improved breathing and better posture.

Just see Connie! If she could find the new groove then so can anyone who has determination. At the clinic you meet others who sound just like you, slightly better or worse.

The teamwork between Connie, Dennis and Christine is amazing. One of the key components is breathing. We take t his for granted, but Dennis shows me that I am at 50%, and opens us to the remaining 50%.

Connie, in her sessions, gives you 100% encouragement and evaluates you. She tries all the different tools to get you to find your pitch and a new groove for your voice. Once you understand that you need a new groove (and it is there), then it is practice you need. It is not an overnight transformation.

For myself, Connie realized that when I spoke in a confidential voice, I was indeed in a new groove. By the time I left, I could speak 50% of the time in the confidential voice. Thank you, Connie!

What can I say about Christine? She is a wonderful person who made my stay memorable. Her massages are out of this world – and I have had massages before!

My fellow participants were just great. They supported and assisted me throughout. They would correct me if I went too high in pitch. Thanks everyone.

Diann: AD/SD diagnosed February 2010, cervical dystonia diagnosed January 2012: Botox injections every 6-8 weeks, massage, chiropractic, voice therapy. 

After researching this “voice thing” labeled as Spasmodic Dysphonia for two years, serendipitously I contacted a former participant who attended Connie’s clinic. He highly recommended that I pursue the journey from Texas to Florida to work with Connie in a group milieu setting that included others working to find their voice and free their voice.

If anyone has seen the movie, Eat, Love, and Pray – I would like to spin off of that title and express the big picture of what I learned from my journey of investigating and capturing moments during the five day clinic of finding my real voice, or the voice I loved before it was relegated into hiding. I would say that Connie’s clinic reminded/supported me of this: Pray continuously, Breathe deeply and with passion, Clean and cleanse the body, and Practice with love/”letting go” to find the beautiful voice.

From this initial sojourn, I believe in due time~ and fun work, my voice will emerge from hiding (or protective mode) to find its perfect purpose to help others and glorify God. True healing must address the whole person (heart/mind/soul/body).  This is a truism and precept that Connie, Dennis, Christine and Robbie live (model) and support in the healing of every person who attends the clinic. They all have huge servant’s hearts.

It was uplifting to see how my cohorts progressed so quickly and seemed to be renewed and transformed by the five precious days we spent together. I have been truly blessed in many ways to be a part of the June 2012 clinic.

EP: AD/SD, symptoms began in 2004, initial diagnosis of reflux, then stress-related dysphonia, and SD diagnosis in 2005. Speech therapy, and 7 years of regular botox injections, requiring increased dosages and frequency. Acupuncture helped temporarily in 2008.

I would definitely recommend the clinic for many reasons. The breadth of techniques and tools used help me consciously and unconsciously open up my voice. I learned specific tools that work with my specific voice issues and get to the point where, within a few seconds of speaking, I could alter my airflow and muscle tension in order to change the quality of my voice production.

I learned how specific anatomical areas (neck, throat, shoulders, rib cage) and my particular breathing style while speaking were contributing to my voice difficulty. I was taught to address these with relaxation, stretching, visualizations, and feedback (hearing, feeling). When I used these strategies, I got positive feedback as my normal voice would appear, at first brief moments and then with increasing frequency and duration.

A huge advantage was the support we all gave each other when we chatted together. Encouraging each other with specifically focused directive statements was a very helpful component of the clinic.

We developed individual specific strategy plans to implement when we get back home, and know that we have our “group” to keep in touch with for continued support.

By my final session with Connie, I was able to record many consecutive sentences of conversation in a nearly normal voice! I know as I continue to use and change my daily tools as I need, I will develop my fully resonant, confident voice.

Tanya: AD/SD diagnosed in 1997 at the age of 19, but later she was told that she probably did not have SD, but rather reflux and muscle tension dysphonia. Symptoms had been episodic over the past 14 ½ years, with periods of severely impaired voice and periods of nearly normal voice. Speech therapy with various therapists, bio-feedback, acupuncture, chiropractic, reflux meds:

It has been an incredible journey, from the initial diagnosis of SD in 1997 until now. I literally tried everything to try to resolve this voice problem and make it go away, wanting to feel normal again. If it has taught me anything, it’s perseverance! This may not have been the easiest road, but it has made me the unique, individual that I am today. I learned to accept, build inner strength, feel at peace, and not allow this to hold my voice hostage. This is what the clinic taught me.

It has been a tremendous blessing to come here and have my wish come true in meeting others with this disorder, resulting in a bodn that will last a life-time. This was more helpful than any other professional advice and instruction I’ve received in the past. I’m so thankful to Dennis, Christine, Robbie and the group. Connie, you’re the best!


Beth: AD/SD diagnosed in June 2011, but with voice loss several times a year in her job as a teacher dating back to 1983. Botox recommended but she declined and tried traditional voice therapy, yoga, massage, chiropractic, Reike, and herbs.

This clinic provided me with the tools and structure to find my healthy voice. It acknowledged me as a whole person in an atmosphere without judgment. I felt surrounded by love and support and I believe I encouraged my peers as well. Connie has created a clinic that is both practical and nurturing. Along with Dennis and Christine, we learned from Connie how our voice is a part of our being, physically, emotionally and spiritually. It is necessary to address all areas to manage our SD and our state of being.

I leave the clinic not only feeling confident that I will be successful in managing my SD, but as a person who has grown in wisdom. Thank you Connie, you have made a positive difference in the lives of many. With heartfelt gratitude to all the facilitators and participants for sharing their knowledge and the clinic experience with me.

 

March 2012 Free to Speak Voice Clinic Group

March 2012 Clinic, Apollo Beach, Florida

Left to right, Michael, Dennis, Diane, Connie, Kay, KS, Kimberly, Alice

 

Michael: AD/SD with MTD with symptoms first noted in late 2009 and diagnosis in January 2010; one week with Morton Cooper, voice therapy, botox injections with varying levels of success, last injection ineffective. This is (as promoted) a very holistic clinic. It definitely covers a lot of areas pertaining to SD; breathing, mind/body, voice exercises, posture and more. I quickly learned I have to get my pitch lower and more relaxed. Listening to the before and after of my voice was quite inspiring. It really helps to listen to my voice and compare. Just learning to massage and lower my larynx is a great tool. I learned how to anchor my voice (and self) when it might go askew. This is such a positive workshop/clinic. Connie and Dennis have done great jobs. This is most definitely, for me, a more viable and workable solution than botox. I will not go back to botox. I will keep low and open. This is the ticket!

Diane: AB/SD following upper respiratory infections 3 ½ years ago, 2 botox injections with severe complications, voice therapy, previous private instruction with Connie and Dennis, followed by thyroidectomy. The surgeon noted the larnyngel nerve tetherd around a large nodule, but there was no vocal fold paralysis. I made great strides at the clinic, with use of lower pitch and stronger tonal resonance. I learned to speak without whisper. I would encourage anyone thinking of attending Connie’s clinic to absolutely do so. The group dynamic is very powerful to help promoting healing and recovery. Connie and Dennis are both skilled and empathetic, which helps you to feel encouraged and hopeful that what you have learned during the clinic, you can easily apply to your home environment. While improving after private instruction, I felt the clinic was necessary for a full recovery, so I decided to attend. I am very happy that I did because the group support is so beneficial. You can share stories, tips for success, and bond in a way that is healing to your mind/body. Thank you Connie and Dennis, Christine and Robbie. I am sure that I am now on a complete and lasting road to recovery from SD.

KS: Mixed SD 15 years, beginning at age 25, intermittent voice therapy, 12 botox injections with little relief, DVR with Morton Cooper 8 years ago, alternative therapies.

I had a shift to easier voicing about a month before the clinic after reading Connie’s books. I found the breathing instruction in the book to be very helpful. My personal experience with SD has been a long road. Everyday has been a struggle for the past 15 years. I feel like only someone with this experience could understand the magnitude of the struggle.

I have tried many approaches to get relief from the vocal spasms. I traveled to California to see Morton Cooper with little results. I have had many botox injections, hoping that this would make a difference. The results were not consistent and resulted in little improvement for me. I have seen many traditional voice therapists who always recommended botox along with the exercises they taught. I tried hypnosis and acupuncture, but the spasms were always present.

Having just completed the 5 day intensive voice rehabilitation clinic with Connie and Dennis, I can honestly say that this is the first time in years that I have an overwhelming feeling of hope that I can be an active participant in life. I feel free to make myself heard. I have the tools to be successful in restoring my voice. The clinic atmosphere has participated a shift within me. I now truly believe that I don’t have to live life giving one word answers. I am excited about my future and look forward to everything that it holds.

Kay: AD/SD since early 2008, following a head tremor in 1998 and hemi-facial spasms in 2000. Botox injections twice yearly for 3 years with variable results, voice therapy. I learned to produce voice with less effort and breaks and to have less fear about what I can produce and better acceptance of how I sound. The most important reason for me to consider the clinic was the realization that Connie had personally overcome her SD and offered tools that could help others with SD. Her honesty regarding the fact that it could be an extended period of work (different for some) and there would be plateaus and highs and lows to the quality of the voice was reassuring and helped me from realistic goals and expectations. I regained hope that I, too, could do the work and re-learn to be free to speak again.

Listening to the recordings of my voice on the 1st day compared to the last day was an inspirational way to leave the safe space of the clinic and go back to my world. Being with others with SD was a valuable experience. They had the same fears and hurts and loss of confidence. It didn’t matter what our voices sounded like, there was no judgment, no need to explain anything.

Everyone involved in the clinic added in positive ways, everyday, to the recovery process. I came to the clinic as a skeptic, and I leave with a change of heart, mind, spirit and a new sense of wholeness. I leave with much gratitude and love.

Kimberly: AD/SD since 1997, regular botox injections until 2003 when she had SLAD/R surgery with Dr. Berke, resulting in a paralyzed vocal fold (medial position) and continued SD in the opposite fold. Tried many alternative treatments such as Reike and acupuncture, and psychotherapy. I recovered the ability to hum, and learned to speak louder with less strain. The clinic was a life changing experience on every level. It gives hope to SD sufferers. The level of attention from experts like Connie and Dennis de-mystified by breath, posture and voice difficulties. The discussion about faith, questioning and letting go on the final day opened my heart to unlimited potential that we all have inside. The Duane Miller tape was truly awe-inspiring, hearing a miracle occur. It could happen for me! Robbie’s consultation was helpful. I loved the yoga class tailored for SD and wanted more of it. Christine is a gifted member of the team.

SD has had a deep impact on my life and the clinic gives me tools to work with. The clinic goes far beyond voice therapy as it seeks to rehabilitate physical, spiritual and mental aspects of SD.

All participants left with stronger voices, upright posture, and brighter faces. It was a joy to witness the transformation.

Alice: AD/SD with symptoms beginning in 2002 and diagnosis in October 2011. She sought a second opinion with Dr. Bastion, and he confirmed the diagnosis and offered botox that day. The shot reportedly resulted in extended whispered voice, squeaky high pitched voice and a return of symptoms. Her son encouraged her to find an alternative.

My voice improved 70% at the clinic. It is less hoarse, higher in pitch and more resonant. My breathing is deeper and fuller.

To anyone with SD considering this clinic, I would say, “Have faith in yourself and a positive mental attitude.” The peer interaction was invaluable.

 

November 2011 Voice Clinic

November 2011 Clinic, Apollo Beach, Florida

Left to Right: Jim, Dorothy, Dennis, Jean, Robert, Carrie, Connie

 

November Clinic 2011, Apollo Beach, Florida

Jim: Slow deterioration of voice beginning over 10 years ago/diagnosed in 2009 with dystonia, chronic constriction of the vocal folds, Spasmodic Dysphonia and/or Muscle Tension Dysphonia. Speech therapy, chiropractic, massage and other alternative therapies as well as botox , none of which helped the voice.

I found the right groove for my voice at the clinic and I learned to breathe more effectively and efficiently, with deeper breathing and better posture.

I highly recommend this clinic to anyone with SD. Connie, Dennis, Christine and Robbie are highly skilled practitioners who have the knowledge necessary for success in gaining voice recovery. I felt very confident during the clinic that my success with the program was their priority. I noticed improvement right away and know that if I follow the plan that was outlined for me, I will be on my way to complete recovery.

My voice got off track years ago, and gradually got worse. This clinic gave me the tools to re-train my system to produce normal voice. Another aspect of the clinic that is great is meeting other people with voice dysfunction who are committed to getting better. The peer support is an important part of recovery and a plan is in place to continue contact with each other.

I went into the clinic not expecting a miracle or quick fix, and this is important, because I gave it a chance and now have the tools that will help me achieve my goal of complete recovery. I can honestly say that it is possible to recover from this dysfunction as I have seen others and myself. If you want to learn how to gain control of your voice, this clinic is the place to go.

Dorothy: Quivering voice in the late 1990’s, diagnosed with Adductor Spasmodic Dysphonia and vocal tremor in 2008, botox injections regularly for several years with inconsistent results.

My voice significantly improved at the clinic; about 75%. I became much more aware of my breathing. Words seem inadequate to express my gratitude for what Connie has done for people with SD. She has discovered an effective mix of actions anyone can take to improve their voice and life. If anyone has SD or vocal tremor, they should sign up for this clinic. You don’t have to suffer and this is a better option than botox.

Jean: Diagnosed with Adductor SD last year; having had it for 8 months 30 years ago. Initially she was not told she had SD, and was treated with voice therapy for 8 months and completely recovered until 2010. She was then told that botox was the recommended treatment after 3 months of unsuccessful voice therapy. The three injections she received “masked the problem” but she did not like the breathy period and returned strain as it wore off.

The clinic helped me become more aware of where I should focus my voice and that exercises and breathing correctly are a large part of the healing. I felt the instructors were caring, knowledgeable and prepared.

I am thankful for the clinic, when the medical world really doesn’t understand SD. Here one can find hope, friendship, techniques, programs and exercises to help them regain their voices. The days are worth the time, effort and expense. The knowledge you gain to manage SD is immeasurable and the encouragement tremendous.

I feel that not only did I gain information, but that after I leave the clinic, I will not be forgotten. I know that if I have questions or need help, it is just a phone call or email away.

Thank you Connie and Dennis!

Robert: Adductor SD diagnosed in 2004 after a bad throat infection, two botulinum toxin injections, then consulted with Connie in London on 3 occasions, Alexander technique, Bowen, and other alternative therapies.

My voice and breathing improved significantly at the clinic. Although I had already met with Connie in London and knew some of the techniques, having the whole “package” refreshed my memory and gave me a clear line of approach to my problem.

For anyone suffering from SD, I would completely recommend that they attend this clinic, as they will receive all the tools necessary to beat this problem. Additionally, meeting others with the same illness is very helpful.

This is a great team of experts who care!

Carrie: Sudden onset of SD in 2001, at age 24. She initially improved with voice therapy, but symptoms returned. She then had Botox injections at the Cleveland Clinic every 10-13 weeks for 5 years, but it became less effective over time. Seeking alternative treatment, she saw Mike White for breathing instruction and signed up for the clinic with the hope that she could stop Botox treatment.

My voice significantly improved at the clinic. There aren’t just one or two specific exercises that worked for me, but a combination of many things along with support from others who know and understand what I am going through. Learning how to breathe properly was very important to me because I was taking a big breath and holding on to it as I was speaking. I also learned how to relax, which makes it much easier to speak. My voice is not perfect, but it is doing well enough that I don’t feel the need for botox anymore. I think that most people don’t even know I have a voice problem now. If anyone would like to contact me for more information, my email is Belle5677@aol.com. Just put Spasmodic Dysphonia or Connie Pike in the subject line.


 


Voice Clinic October 2011

October 2011 Clinic, Apollo Beach, Florida

L-R: Rachel, Connie, Greg, Shelby, Dennis, Valerie, AA, Michael

 

Rachel: Severe muscle tension dysphonia; AB/SD 3 years post-onset , but with brief periods of remission. Had participated in voice therapy, acupuncture, Chinese herbs, and Feldenkrais The clinic was a wonderful opportunity to meet other people with voice issues and to learn from and share with them. The fact that Connie blends personal experience with speech/language knowledge ensures the clinic input is grounded, real, informed and from the heart. There were times at the clinic I felt significant improvement, but it was not consistent. There were times when the voice was almost normal, 85% for bursts, and not improved at all other times. For me, the most valuable thing was knowing that my voice will improve if I stay committed to practicing easy sounds, relaxing, and trusting the process I’m in. It also gave me focus for what I need to do. Prior to the clinic, I was exercising randomly, then getting discouraged and frustrated because it didn’t seem to make a difference. Thank you!

Greg: AB/SD since June 2008, slow onset, botox injection unsuccessful There is nothing this clinic will do except help anyone with SD. This clinic can give you a huge step toward recovery. Connie gives you a road map, and you just have to follow it to get to where you want to go. While the change in my voice during the clinic was not significant overall, there were moments when I could see that my voice is there and can change significantly over time. My breathing improved. It’s like learning a new language, so different from what I was doing before and feels so much better.

Shelby: AD/SD since 1988, participated in studies at Baylor and at NIH, the second utilizing botox injections. Speech therapy was not helpful. Discontinued botox in late 1990 and lived with the condition since that time. It fluctuated from pretty good to very bad. What drew me to the clinic were the videos and testimonials of previous clients as well as Connie’s own story of SD recovery with the program. Once I arrived, I was immediately taken by the atmosphere and staff. The structure of the clinic was conducive to getting to know the other clients through group voice and breathing practice. Sharing the struggles of our common problem and socializing during “down times”. The bonding experience was very strong. Personally, I received great benefit from Dennis’s knowledge of muscle manipulation and overall knowledge of all things internal. His style of presentation is relaxed, humorous, and informative. He validated my belief that this condition is more than a vocal cord problem – it is a mind/body problem and he provided numerous ways to bring the two into alignment. I was very impressed with the variety of tools Connie provided for continued practice and going forward. My family and friends have been amazed at the change in my voice during the clinic. Although I continue to have “moments”, I was instructed to expect them. Overall, the clinic was one of the most beneficial experiences I have ever had. Not only was I given hope that my voice could get better, I got results and my voice HAS gotten better. After 24 years of struggle with SD, Connie Pike’s “Free to Speak” clinic has truly enabled me to speak freely. Thank you Connie, Dennis and Chris!

Valerie: AD/SD since June 2008; 7 days with Morton Cooper in the fall 2008. She recovered her voice until February 2011, when it began to slowly deteriorate. The clinic was truly great. It was a safe environment with love and support. While I already intellectually understood and previously experienced proper vocal mechanics, this clinic helped develop my awareness of the mind/body connection. It is important for both self-health and vocal health to just relax and release. I became more aware of my breathing and learned not to push, but to relax and allow. I think that perhaps a few more days would have been good for me personally. However, a 5-day clinic is truly adequate. I love you guys, and you too, Bob! *(Connie’s husband)

AA: AB/SD with tremor 10 years following a bout of laryngitis; one Botox injection without improvement, 4 weeks with Morton Cooper in December 2001 with dramatic results, but remained “handicapped” and concerned about his voice in conversations and on the phone. The clinic was very well organized and thought-out. It had a heavy focus on central nervous system management and breathing, which are critical components to improve upon when you have SD. There was also a focus on proper voice pitch and resonance. I feel like I got tremendous benefit from the clinic and expect to get even more benefits as I internalize and practice the many techniques that I learned. The incredible sense of community formed with the instructors and other participants added to the efficacy, making the experience and incredibly fun and memorable one.

Michael: Diagnosed with functional dystonia September 2010, MTD with possible SD in October 2010 (both in the UK) and with SD/MTD at Massachusetts General and Massachusetts Eye and Ear in April 2010. Botox was recommended but refused. (Symptoms began in December 2009, possibly earlier). I found the clinic to be a holistic approach and beyond for voice recovery. The multi-dimensional approach of vocal mechanics, breathing, body awareness, nutrition, relaxation techniques, psychosocial, and spiritual aspects attend to the complexity of SD. Mix these modalities with the dynamics of working with others experiencing SD, and you have an accelerant to progress. Working in a group of people with SD is invaluable. It is rare to have the opportunity to meet others with SD and the opportunity to interact with people and the shared experiences. Participants feel safe to socialize. The network created by the group allows participants to coach one another and provide feedback as they practice the exercises and techniques learned. This is not a cookie-cutter approach to treatment, but individualized programs designed for the needs of each participant. The therapists are knowledgeable and skillful at design and instruction. They are compassionate and thoughtful in providing encouragement, guidance and support. The clinic takes place in Connie’s home. This environment and the generosity and graciousness of Connie and Bob create a place to relax and immerse in recovery. It is a home where everyone feels a part of the family. All of these factors contribute to the bottom line; recovery of our voices so that we can be “free to speak”.

 

Left to right, Diana, Deb, Connie, Dennis, Jenny, MY

June Clinic 2011, Apollo Beach, Florida

Diana: Slow deterioration of voice beginning in 2009/diagnosed in 2010 with Abductor SD, also sulcus vocalis and vocal fold atrophy (unilateral). Voice and psychological therapy, medication for reflux, bioenergetics, Reike treatment

I did not improve much in volume or pitch, but I am pushing less and am more relaxed when I am talking. I gained a lot of knowledge and skills to continue to practice on my own.

The clinic is something every SD patient should do, for sure. We have to explore different options and this clinic is one of the best ways to do that because it is holistic and safe, and gives you hope while you enjoy your recovery. It must not be hard or painful.

As a human being, your diseases and health problems could be not physical; but mental, emotional, or a combination of all of them. To treat a condition in a holistic manner could really help you. In my case, I now have a lot of tools to be used in my recovery and a new thought that is not going to be hard, but something I can enjoy. It can be an adventure to discover the miracle of my voice that is now healing inside of me.

I learned that I am not alone in my journey. I have Connie and Dennis and all of my clinic mates’ support. I can also include people who love me to be part of my recovery.

Thanks, Connie, for sharing with us your experience and for helping us with such a sweetness and kindness. I thank God for the opportunity to be at the clinic!

Deb: Voice difficulties beginning in 1981 at age 19; diagnosed with Adductor SD in 1995; treated with psychological therapy, then Botox injections for the past 15 years. Last injection was January 5, 2011, so she felt she came to the clinic with her “baseline” SD voice.

My voice improved somewhat at the clinic, but I feel positive that it WILL continue to improve significantly in the future. I learned how I should be breathing and a lot of knowledge of what I should be doing with the voice.

Connie’s voice clinic is the best thing I have ever done to move towards improving my voice since being diagnosed. With SD 15 years ago until now, I had no tools or insight into how to help myself. The holistic approach to rehabilitation is so key to helping ourselves. I learned many ways to help myself using the different components that make up our health and bodies. Illness and problems do not happen as isolated entities. The clinic gave me insight into so many different aspects of well being, including posture, breathing, relaxation, vocalization, exercise, nutrition, and taking care of my mind and body. I know I can go out and be successful in freeing my voice with all I learned and experienced. Meeting other SD sufferers and supporting one another was very meaningful. And of course, Connie herself, who has been successful in overcoming SD, and working with her is very inspirational and shows us that we can do it too.

Jenny: Voice difficulties beginning in 2008 (glottal fry) that progressed to Adductor SD by 2009. Worked with a speech therapist, and tried botox twice with no improvement and increased difficulty singing. As a professional singer, she did not feel that this treatment was acceptable.

I experienced more control over SD and found a belief that I can go light anytime and it works, with less blocking. I experienced more good voice in general.

The clinic was a lifesaver. The main benefit is having a shining example of success in Connie. She is very open about all aspects of the rehabilitation process, positive and negative. The practical exercises are very, very effective and the one on one sessions ensure you get your specific needs addressed. The camaraderie of the group makes for a feeling of security and safety and empathy – all of which are very valuable to me.

There is a very scientific basis to the voice rehabilitation process, which is mixed in with the more personal/physical and spiritual aspects in good proportion. It is a holistic therapy program. I couldn’t imagine getting over SD without having experienced this clinic.

MY: Diagnosed with Adductor SD in May 2009, and immediately started regular botox injections, with mixed results; but positive effect lasting between one and five months. Last injection was in March, so he was still experiencing benefit at the time of the clinic. Goal was to become less reliant on botox and to extend the effectiveness of the injections if he chose to continue.

In addition to acquiring various techniques and exercises to utilize after the clinic, I gained a high level of hope in dealing with the condition. That feeling of hope combined with my level of determination makes the future something to look forward to rather than fear.

 

Voice Clinic February 2011

February 2011 Clinic, Apollo Beach, Florida

Left to Right, Dan, Dennis, Connie, JH, Anne, Robbie

Dan – AB/SD with first symptoms November 09/diagnosed July 2010:  Speech therapy at Emory Voice Center, 4 botox injections

Don’t come to the clinic with the intention that someone with SD will be “cured” because that is not what Connie teaches. She teaches that you have a choice not to use traditional methods (the gold standard of botox), surgery or invasive methods. Connie teaches that you don’t have to have a perfect voice, as everyone has flaws. For me, that was extremely important mentally! My goal now is to get a functional voice that I can live with.

The benefits of the group setting were very important. Having SD is hard but going through it alone can be very troublesome. Everyone had similar feelings and stories of facing the world when speaking with SD. You have anxiety and tensions that people who can speak freely don’t understand. Ordering a cup of coffee can be difficult. Being able to share stories is important.

I know I have a lot of work ahead to get back a functioning voice, and have learned that it’s ok to have bad days; the world won’t end because of it. The tools and methods I have learned at Connie’s clinic are invaluable and I am glad that I chose the option to attend. I believe that with practice I will attain a functional speaking voice.

JH– Mixed SD 5 years: one month DVR with Morton Cooper a year ago

My voice improved 90% at the clinic. A major shift was that I learned not to try so hard to get the words out. I learned not to be afraid of letting my voice go low in pitch. The clinic helped me balance the previous teaching I had received.

The group sessions helped my confidence in being around other people. I loved the mental focusing with Dennis. I loved hearing Connie describe her ups and downs. It inspired me, as well as her great love in helping people.

Ten days later this from JH – “I just wanted to thank you for the help with my voice. Sunday I sang and preached two services in the morning and did better than I have since I started having voice problems. Then when I did TV recording on Tuesday I did great, and last night during a Wednesday night service it was wonderful. Songs were flowing out of my heart and preaching off the chart! I got a little tired at the end but overall, it was terrific improvement.

It seems the longer I practice the stuff you guys gave me, the less problems I have speaking and singing. In fact, it is going so well that there are times I am experiencing virtually no effort at all. What I love is that this is happening more and more each day I continue to practice. Thanks again.

Anne –Laryngeal dystonia 10 years, Speech therapy, Alexander technique, psychotherapy, 7.5 years of regular botox injections.

I experienced patches of clarity and ease in speaking. My breathing became more open and relaxed. The clinic explored the voice from many angles ranging from the emotional to the practical. It offered individual and group support at tackling the tough challenges of overcoming SD.

I would highly recommend it to any SD sufferer. There are so many helpful and supportive experiences to draw on when I return home.

Connie and Dennis are a great team: they reinforce the message I need, which is to keep tackling SD and never give in to temporary setbacks.

Thank you for warm support and hospitality!

 

November 2010 Clinic, Apollo Beach, Florida

Left to Right, KF, Dennis, Connie, Bob, Kristy, Jonathan, Clara

KF – Mixed SD/MTD 3 ½ years:  Speech therapy and psychological therapy for PTSD

I had gotten to the point with my SD that I had accepted what many medical professionals and books told me, that my voice condition wasn’t curable. Hearing that repeatedly destroys a person’s hope and it was doing that to me. I began to settle for where I was. The voice rehabilitation clinic changed my outlook regarding SD and restored the hope I had lost. I realized how much the negative feedback was impacting my thoughts and manifesting into a voice that was distorted and broken. By understanding the mind body connection, learning tools and techniques to achieve the freedom to speak, and how to breathe from my abdomen so my voice would flow freely, the clinic gave me complete confidence in recovering my voice. Incorporating yoga and exercise helped as well.

I’m blessed and encouraged by knowing Connie Pike and learning from her success in restoring/recovering her voice. I’m fortunate to have a breathing coach like Dennis who also has so much knowledge on NLP, nutrition and ways to maintain the best body. The clinic gave me the opportunity to meet some wonderful people with SD and gain a great support group of friends.

Bob – AD/SD 5 years: Speech therapy, 4 botox injections (unsuccessful)

I found the session to be most helpful. Not only did my voice significantly improve over this five days, I left with the tools and techniques that I know will help me to continue to improve. I am most thankful that Connie has found a way for SD patients to rehabilitate their voices. She has put together a team that understands SD and the physical, psychological, spiritual and emotional aspects that impact SD. Connie, Dennis, Robbie and Christine are outstanding teachers, counselors, and coaches who put their heart and soul into helping their clients. I was particularly happy and blessed that their emphasis on the spiritual aspects based on a Christian foundation. Another aspect that is so helpful is the interaction and support that comes from being around other SD clients and watch them ALL improve while they are at the seminar. I would HIGHLY recommend Connie’s clinic for all SD patients.

Kristy – AD/SD, 2 years, reflux medication, two speech therapy sessions, 4 botox injections which were successful but with side effects

Besides the mechanical/physical skills I learned to correct my voice and restore it to a natural, free flowing voice, one of the biggest benefits of the clinic was the group dynamics and support. I had really gotten to a place or a point where I was completely focused on all the things I couldn’t do. I couldn’t make phone calls, couldn’t work, and couldn’t talk in many situations. I even got to the point where I felt like I couldn’t have a personality because of the limitations of this condition. It was refreshing and inspiring to meet others who shared the same condition, but were still continuing on with all of the normal things people do. Working, interacting with friends and family, expressing their personalities being playful and spontaneous. It made me realize how much I was limiting myself and how much SD was limiting me. I really feel that the holistic approach is very crucial to recovery, as it addresses many mental, emotional and psychological barriers we may have to recovering the true voice. I am walking away knowing exactly what I have to do to be free to speak.

Clara –AD/SD 2 years; speech therapy

Five days of an intensive variety of coaching, breathing, assessments, techniques, self awareness and tools is what encompassed my experience in Connie Pike’s November 2010 clinic. I now have a better understanding of SD that along with a body, mind and soul holistic approach will improve my quality of life and voice. I am taking home invaluable and necessary tools to aid me in re-grooving my brain with new patterns.

My voice has improved dramatically. I have gained confidence, and have learned that along with all the speech tools I have received, there is a psychological aspect that goes hand in hand. My attitude, the power that words have, the positive affirmations that reinforce grounding myself, recognizing that “I” is the first letter of the alphabet and that I need time to learn to take time to practice, breathe and exercise.

Our daily work schedule was intensive but allowed for time with individual sessions with our coaches, time for practice and group session. The final night was an amazing relaxing dinner with the team and the night ended with karaoke – singing and using our voice to the fullest. Of course, the union, and support of the group was awesome. I have made lifetime friends.

I thank Dennis for his knowledge, love and amusing anecdotes, Christine for her God gifted hands, TLC and massage and most of all, I thank Connie for being a friend, for her courage in researching, combating SD and finding a way of rehabilitation and hope for many. I am looking forward to the next book so I may continue on my path to recovery. We Can Do It!

Jonathan– AD/SD 14 months, speech therapy, 1 successful botox injection

The two most significant components of the clinic, from an operational standpoint, were the group dynamics nicely balanced with individual attention and the holistic approach taken which allowed for a wide range of solutions. These two elements provided a very tailored approach to a condition that has so many causes and manifestations.

Also, not to be undervalued was the personal approach Connie takes in opening herself to the group that, without judgment, is both encouraging and relaxed. Speaking for myself, but reflected in the comments of my co-attendees, this demonstrated and enabled the basic tenant that learning to speak freely comes from a relaxed state not a strenuous, urgent, anxious or forced one. As Connie says, “not hard work, rather hardly working”.

The clinic team was extremely well balanced and complimented one another well. The time too was well orchestrated, providing enough time for each session and collectively, enough breadth to give me confidence that I own the materials.

I can’t overemphasize how my attitude and perspective have been completely changed about my condition and my prospects for the future. Connie has given me both the hope and faith I’ve needed as well as the tools to move to a new, stronger, clearer voice. Thank you, I look forward to my eight month review.

 

October 2010 Clinic

October 2010 Clinic, Apollo Beach, Florida

Left to Right, BJ, Connie, Dennis, Barbara, Jan, Karen, Russ, Lisa

BJ – AD/SD, MTD 2 years:  Prilosec for LPR, s/p thyroidectomy, 6 day treatment with Morton Cooper 2010

I have always been one to search for the natural approach or alternative to healing and the diagnosis of Spasmodic Dysphonia with no known cure is proving to be no exception. I have just completed Connie Pike’s 5 day “Voice Rehabilitation Workshop”.

I found the group process to be extremely beneficial in ways that only an SD sufferer can appreciate. All six of the participants were in the same boat wanting to get our voices back. The group offered positive support for each other’s efforts and sincerely encouraged voice transition which made the experience invaluable to me.

Connie’s “holistic” approach offers a tool box full of exercises for freeing the voice, computer software to hear your improvement, instructions to change ineffective breathing patterns, keys to recognize and change negative thought patterns, and then replace them with affirmations that promote calmness and healing. Books, balls, kazoos, massage and on and on. I feel that I arrived home equipped with all I need to be “Free to Speak” including follow up sessions and further communication to ensure continued support.

Anyone suffering from SD or any other form of voice problems will, without a doubt, find the “Free to Speak” workshop beneficial, supportive, fun, enlightening and a wealth of discovery and information that can only be gained through this unique experience.

Barbara– AD/SD with symptoms since 1992 at age 65, diagnosed after several years visiting various ENT doctors and had regular botox treatments every 3-4 months for 18 years. Botox was successful in managing the condition until an unusual complication in July 2009 resulted in severe breathing problems requiring hospitalization in the ICU and treatment with steroids and oxygen. Previous voice therapy had been unsuccessful.

My voice improved significantly at the clinic as I learned to use a higher pitch and to “hardly work” instead of working too hard (to produce voice). I gained sufficient knowledge to continue to improve on my own. Spending 5 days with people who have SD like myself was invaluable. It was a challenge and an experience to have instructors who understood SD and were eager to help me “re-train” by bad habits and encourage me in everything. I did not come to the clinic for a “cure”. I came for help to deal with this disease. Hopefully, with all I have been taught, exposed to and practiced, that I can now help myself with diligent attention, especially to “hardly work”, breathing and using quiet conversation. I have hope now that I don’t need to drive myself. I can become a better listener, and speak again and be understood.

Jan – AD/SD, onset in 2004 after a bout of laryngitis, diagnosed with SD in 2006, Botox 2006-07 with minimal success, voice therapy

My voice improved 80% at the clinic. I found my “groove”, improved breathing, became aware of my high stress level, and acted to identify and lower my triggers, while identifying tools and strategies to help my voice. Connie and Dennis are extremely knowledgeable and communicate well. Christine was also very helpful. I now want to learn yoga! I appreciated the structure of the clinic schedule: the group and individual sessions and the time to practice what we learned.

The 5 day clinic was a great way to learn all the tools available to me to help with the rehabilitation of my voice. Connie and Dennis helped me learn voice and breathing techniques to help me find my correct pitch and I became aware of how other aspects of my life affect my voice. I learned through the workshop how to make adjustments according to my needs. I highly recommend this clinic for anyone wanting to learn a holistic approach to empowering them to overcome SD. Feel free to contact me at jwest47@aol.com if you would like more detailed information about my experience with the clinic.

Karen– Vocal tremor one year preceded by hoarseness and difficulty speaking since 2006 and head tremor 2005. Pharmaceutical management, 3 Botox treatments

My voice improved 70% at the clinic, with better quality and less tremor. The clinic exceeded my expectations. Meeting and talking with others with similar voice conditions is an empowering experience. The six in our group became a team that provided support, communication partners, humor and friendship.

A day of assessment provided the information needed for the holistic approach to begin working on each voice condition. I felt the commitment of Connie and Dennis to help me overcome the barriers to my voice production. This relaxing, but organized experience gave me the tools to improve my voice and provided recognizable improvement during the clinic.

The clinic has been extremely helpful to me and has given me the faith that I can use the tools provided and the follow-up sessions to greatly improve my voice.

Russ – AD/SD diagnosed in 2005; voice therapy, Botox, surgery for vocal polyp August 2010, reflux medication

My voice improved 70% at the clinic as I learned to focus on pitch and resonance and decreasing tension in the chest and throat muscles. I learned techniques to make breathing easier and to routinely breathe correctly. Observing others participating and observing their improvement and determination provided much assurance that SD can be overcome. The techniques for improving the voice were excellent and the work sessions provided the hands on exposure we need.

Lisa – AD/SD October 2009 following a severe sinus infection, diagnosed at Vanderbilt September 2010. Botox was recommended but declined.

This clinic is an option for SD patients. It is important for all newly diagnosed SD patients to try this option before jumping on the Botox bandwagon. The medical community looks at no other options or strategies for treatment and we have seen and heard the differences in our voices during the clinic. All the “Pike” techniques seem to give you your voice back. Of course, I will continue to practice all the strategies and techniques as I feel improvement will continue. I know my old voice will not come back but my new voice works and will get stronger!

We covered many areas and they all seem to work together to improve the voice quality. When I see how far some of Connie’s previous patients have progressed after a few years of practicing, I am even more encouraged.

Thank goodness a friend (with SD who lives in Birmingham) gave me Connie’s book and the hope it offers. Thanks to Connie, Dennis and Christine for completing the circle of information.


 

April 2010 Voice Clinic - Apollo Beach, Florida
L-R: Jim, RK, Connie, LuAnn, Mike


We had an intimate group for the April clinic. Our Hawaiian friend had a medical emergency, and will join us for our next clinic. The atmosphere was slower paced with more individual attention available for the three and they bonded wonderfully. All expressed satisfaction with their experience at the clinic and experienced significant improvement.

Jim: SD, 20 years with history of gastric reflux

Lost voice while preaching in 1990, and had to resign after a year. Speech therapy 8 months in 1990-1991 did not result in improvement, and 2 Botox treatments in 1991-92 (with continued speech therapy) yielded no improvement. Reported managing the problem using intense muscle control but felt he had forgotten how to speak properly after prolonged “tinkering” with his voice. He also lost his ability to sing. No medications except for hypothyroidism. Had explored chiropractic adjustments for back pain but it did not help his voice.

On his evaluation, under diagnosis, Jim put “HEALED”. He stated that he was leaving with the confidence that his SD is conquered. He regained the ease of speaking and singing lost 20 years ago. He experienced increased ease in breathing as well. Jim stated that he needed some time to think over his complete testimonial and would supply it at a later date. He offered to speak with anyone wanting more information about the program. jallen@elmore.rr.com

RK: AB/SD approximately 2 years, occurring suddenly after a bout of laryngitis and several years of stress. She saw Dr. Blitzer in New York City, who did not recommend Botox for AB/SD. She was offered medication by her neurologist, but chose Chinese herbs and nutritional support instead.

“My voice improved 80% at the clinic. I am able to speak with much more ease and sometimes with a normal voice. I have more space and relaxation, energy and ease in my breathing.

I highly recommend attending this clinic. I received a wide variety of tools, as well as information that created a holistic approach. I felt that throughout the clinic I was given everything I needed to reclaim my voice. I also felt that there was no pressure and no boredom. Everything was engaging, clearly presented and clearly directed. I enjoyed participating; felt supported and received excellent professional coaching.

Luann: AD/SD with tremor

Luann says of the clinic:

“I experienced deeper breathing and relaxation and humming that helped me to better feel how to initiate voice and maintain that through my thoughts. I feel as if I never did breathe right, so full deep breaths and relaxed stomach muscles was freeing. This clinic is not “Speech Therapy”. This is voice rehabilitation and lifestyle change. For those with SD, like me, who have been through all the various voice therapy attempts and have not have success, you will find this clinic to be refreshingly different. Connie, Mike and the team work on many dimensions, which take away the hyper-focus off the “defective voice”. The breathing and voicing techniques they teach bring back a sense of control that I have not felt in 30 years. I am leaving knowing that while I may not ever have a velvet voice, I will have a voice that will allow me to be “free to speak” and that is a tremendous gift.” Perceived improvement of voice was 50%..

 


January 2010 Voice Intensive Clinic

January 2010 Voice Clinic - Apollo Beach, Florida

L-R: Mike, Betty, Connie S, Analee, Lynn, Connie, Richard

Betty – AD/SD, MTD 18 years:  No formal treatment, no medications. History of counseling and alternative treatments including Reike, relaxation techniques, vitamins and supplements, and some hypnosis.

I had a brief bout with childhood stuttering as well as a history of periodic classroom stammering.  My onset of SD is associated with uncovering repressed emotions in 1991-92 over an emotionally abusive upbringing. Counseling was helpful to alleviate symptoms and SD was intermittent until the past 2-3 years, when it had worsened considerably.

At the clinic, I experienced 50% improvement in my voice and breathing. I am highly grateful for the various tools now available to me. SD rehabilitation is not something one can simply read about or intellectualize and try on their own.  It needs to be taught by highly knowledgeable and experienced practitioners such as Connie and Mike, and practiced in a safe and supportive environment with fellow SD sufferers experiencing similar issues. 

Enough cannot be said about the impact camaraderie has on SD.  During the clinic, I was inspired by the breakthroughs and improvement each one of us had experienced.  In addition, after spending 4 days with Connie and hearing her rehabilitated voice, she bravely shared a video of herself from around the time she had first come down with SD.  I saw a lot of myself in her and became especially encouraged and inspired by the post onset Connie that we had been learning from.  If she can do it, so can we.   

Connie S – Ad/SD with symptoms for 11 years, diagnosed in 2000 at Massachusetts Eye and Ear Infirmary. Botox injections from 2001 – August 2009.

My voice improved significantly at the clinic as I found better flow and ease of voicing. I had an incredible breakthrough in a release of tension throughout the core of my being with the breathing.

The clinic was amazing. My voice improved tremendously as I learned the tools and techniques given. As a result, life force came through me and my voice became free flowing and strong. Being with others who struggle with SD made it easy to relate, understand and encourage one another. Wonderful friendships were made.

Connie and Mike are filled with compassion, wisdom, knowledge, experience, kindness, understanding and love. I left the clinic with so much hope and expectation of great things to continue for my voice and overall well being. I am so grateful for such a gift!

Analee – AD/SD with symptoms beginning in the mid 90’s. History of speech therapy, followed by Botox injections for 6 years. Took a sabbatical in 2007 to stop the botox injections and explore alternatives. Tried Reiki, acupuncture and voice exercises from Morton Cooper’s book. Looking to change career to teaching.

My voice improved 75% at the clinic. I experienced a clearer voice, free expression with less tension and recovered my singing voice. I was able to take deeper, longer breaths, and develop a way of meditating that was deep and satisfying where following my breath was easy and natural. I gained lots of tools and a compliance contract to organize and form a plan – excellent!

The clinic was a godsend to me – literally. I have suffered from SD for 15 years, used Botox with mixed results, and had been working on my own with voice rehabilitation exercises I had read about. I found Connie one Sunday afternoon when I “googled” spasmodic dysphonia to see what was new on the disorder on the internet.

I came into the clinic with high hopes, and I not only met those high expectations, I exceeded them. The holistic approach in a group setting was perfect. Connie combines expertise as a speech pathologist with her own personal journey of recovering her voice from the devastation of SD. Mike is a true breathing guru and an effective trainer. Learning to breathe was particularly helpful to me – a new, crucial component to my voice recovery. I am well on my way to full recovery of my speaking and most dear to me, my singing voice.

Lynn –AB/AD, MTD with onset in 1998. Symptoms worsened the past 3 years: speech therapy, chiropractic, allergy testing, acupressure, EFT, yoga.

My voice improved 50% at the clinic. My voice felt better during muscle relaxation, massage, neck tension releases and increased breathing. I would say that my time at the clinic was the best personal investment I could have made in finding the correct ways to improve SD. I now know that I could not have done this on my own as the techniques are far better understood and practiced in person.

Learning my “doing” helped me tremendously. I also feel that the atmosphere in a home-office setting made the experience real and relaxed, and made me feel safe as those around me shared and helped each other.

Connie is a true inspiration and role model that I admire – a true gem. Her determination and ability to teach me what I needed to know has been priceless. I will go on with this journey knowing that I, too, will sound better!

Richard – Essential tremor, vocal tremor 5 years: speech therapy, botox injections 1/2007 – 8/2009, medications for anxiety and acid reflux, Alexander technique, acupuncture, massage, meditation.

In a single word, the Voice Clinic was transformative. The relaxed setting of Connie Pike’s home office provided a comfortable supportive environment where we could let go and be ourselves – 5 people with voice disorders learning techniques to make our voices better. For me, the effects were frequently apparent immediately and offered a window through which I could see how my voice might be on a regular basis if I continued to put into use these new practices.

While I was aware that stress made my voice worse, a huge unexpected bonus was to learn that incorrect breathing affected not only my voice, but my entire physical and emotional being. After trying Mike White’s breathing suggestions I could feel immediate relaxation and calm throughout my whole body. That alone was worth the price.

What made this clinic so special? The whole person was addressed – not only voice and breathing; posture, emotions, etc. and we had a good time while doing it. Additionally, while being able to watch and listen to the voices and stories of the other participants, I was able to see myself and my struggle to speak from a perspective that I otherwise would never have been able to experience.

It’s a great feeling to know that I am finally done with Botox!

Voice Clinic November 2009

November 2009 Voice Clinic - Apollo Beach, Florida

L-R: Mike, Jaya, Gopali, Nicole, Connie, Charlotte, Lorraine, Dale

Jaya - Hyper-functional voice, laryngeal dysfunction, possible AD/SD 3.5 years:  Speech therapy, homeopathy, osteopathy, acupuncture, massage, private consultation with Connie in June 2008, February and September 2009. Recently began work with an Alexander technique teacher and decided to attend the intensive clinic.

In April 2006, my voice started to deteriorate. I saw numerous doctors and specialists who attributed it to stress. I tried many treatments over the years and still no voice. I saw Connie in London in June 2008 and she gave me a lot of hope and encouragement and the necessary resources to start my journey of voice recovery. The past 18 months my voice has become so much stronger but my breathing was still amiss. Coming to the clinic has been very beneficial. I am so very grateful to Connie and Mike for sharing their knowledge and all the great tools they have given me to recover my voice. It has been supportive to share and help fellow participants in a loving environment. I know that I still have work to do, with discipline yet being easy on myself. I can speak freely and easily with confidence and joy. It has been a valuable five days of reclaiming myself. I would highly recommend the clinic to anyone who suffers a serious voice condition.


Gopali–AB/SD 33 years, diagnosed at St. Vincent’s Hospital in Syndey, Australia at age 23 but with problems beginning at age 12 attributed to “nerves”: Speech therapy, Botox injections for 13 years, with average improvement for 5 weeks of the 12 in between injections, acupuncture, Reike, herbs, fasting, meditation, yoga, voice rest ( Had discontinued botox 18 months prior to attending the clinic).

I found the clinic to be an absolutely amazing and healing experience. Everyone who participated had their own unique insights to share and gave so much support to each other. Connie is a deeply caring and personal lady who gave us all so much of herself, constantly going the extra mile and inspiring us at every step. Mike has a wealth of knowledge and tricks to share, always searching for the techniques to help each individual voice. I did not attend expecting my voice to be miraculously cured, but to receive ideas and strategies to use for my on-going rehabilitation. I have complete hope this can happen and am really looking forward to exploring all the different tools I’ve been given and where they take me. Being with others who understand and share the condition was a great way to get over a lot of my fears around using my voice. I leave with GRATITUDE.

Nicole – Hyperfunctional voice, MTD; possible psychosomatic issues 2 years: Voice therapy, medication

This clinic was life-changing! No matter the severity, mild or severe, the instructors give you the tools needed to not only find your voice but confidence. For me, confidence is the key! The group setting and one to one instruction with the “holistic” approach was the key and was different from anything I have heard of or researched. I truly thank Connie for creating and giving such a beautiful gift to others.

Charlotte – MTD or AB/SD 1 year: speech therapy, one botox injection which resulting in 3 weeks of aphonia and no voice improvement

My voice improved 90% at the clinic. I found my “sweet spot”, learned to relax my solar plexus, relax and breathe, and stop pushing my voice out. I feel very prepared for total recovery. Mike and Connie’s knowledge and personal experience and dedication to helping us recover are invaluable. Connie is a beautiful, caring spirit. She has walked the path of SD and knows how to lead each individual to all of the tools necessary for recovery. Mike KNOWS breathing and offers an unlimited amount of tools to help you learn what to do to improve your breathing and health. I will never forget this experience. Thank you both so much.

Lorraine – Spasmodic torticollis 2 years, voice tremor 1 year, AD/SD 6 months: Botox injections for ST two years, voice therapy, yoga

My voice improved 95% at the clinic with improvements in pitch, resonance, volume and significantly less tremor. I learned deeper, abdominal breathing and use of breathing techniques to relax. This voice clinic provides participants with the tools to overcome SD and the support system which makes it possible. Where typical Western medicine touts that SD is incurable and botox the only treatment option, this Voice Clinic is a holistic approach that successfully enables participants’ journey to speaking normally.

Dale – AD/SD with first symptoms in singing voice 1980’s, affecting his speaking voice in the early 1990’s, formally diagnosed with SD 14 years ago: botox injections for several years post diagnosis, 4 weeks DVR with Dr. Cooper in 1997, resumed botox injections for the next 10 years due to the demands of his teaching job. Upon retirement from teaching, he read Connie’s book and experienced improvement using the suggested exercises and decided to enroll in the clinic.

My voice improved 80% at the clinic. I was able to find my middle voice, my real voice, and begin to use it beyond “practice” and into conversation. Mike helped open up my breathing so it was deeper, more natural and less forced. Having struggled with SD for over 18 years, I had tried a variety of approaches to finding a resolution to my voice problems. These included botox injections and DVR with Cooper. However, it was Connie’s “Free to Speak” Clinic that put all of the pieces of this complex puzzle together. The clinic helped coordinate the mechanical, breathing and psychosocial components to find my real voice. Connie and Mike do not provide a cookie-cutter approach, but deal with each person as an individual. The support and encouragement of others who are struggling with SD is a valuable part of recovery.

If you are dealing with SD and are looking for a way to recover or improve without botox, I highly recommend this clinic!

 

July 2009 Clinic

July 2009 Voice Clinic - Apollo Beach, Florida

L-R: Mike, JM, Connie, Johnna, Tom, Betty, Kim (assistant)

 

JM: AD/SD 8 months:  no prior treatment
My voice improved 80%. I changed my breathing  to belly breathing and found my pitch and focus in the mask. I had fuller breathing and better pitch. The expertise was exceptional. Connie and Mike provided the tools to help me “find” my voice and maintain it. The other attendees were absolutely necessary for encouragement and support. One has to have the will to improve, to get better, to have control of one’s voice. The tools are here – use them!

Johnna – AB/SD 4 years: Botox injections Fall 2007 until 2008; some worked but most did not, voice therapy, acupuncture, herbal treatments
When I came to the clinic, I was only whispering. Now I’m not whispering and my voice has more resonance. My breathing and voice were not working together. I had no breath for speech. I would almost hyperventilate. I would recommend Connie’s clinic to anyone with a voice problem. I was at the point of no hope with SD and Connie, Mike and the other clients gave me the encouragement and belief in myself that I could regain my voice. Connie and Mike gave me the tools I will need to complete my journey back to a wonderful voice.

Tom –AD/SD 2 ½ years: voice therapy
My voice improved 70% at the clinic. I learned to practice belly breathing and how my physical posture was affecting my voice. Connie’s personal experience with the SD condition provided immediate empathy for the experiences I had. Her gentle guidance through the clinic experience was a perfect balance for the strong and persistent dedication of Mike White, a living example of proper breathing.

Betty – AD/SD & MTD almost 2  years: previously recovered her voice at the end of the September 2008 clinic but slowly lost it to a whisper.
On Saturday of the clinic, I saw the light and felt the shift. My voice fluctuated from 20% to 80% improved over the week. I left the clinic with a fully functioning voice in September 2008. I was overjoyed and thought I was “cured”. When SD crept back into my life later in the year I PANICKED. I had forgotten the tools I learned at the clinic and lost touch with my core. I even forgot that my voice was still inside me…. I was struggling. I don’t think that Connie and Mike have many people return, but that is what I decided to do. Connie helped me realize and accept the probability that SD will perhaps always be in the background for me, but I don’t have to let it take over. Mike helped me get in touch with my core again…stay grounded. I have given myself permission to speak freely once again. Thank you, Connie and Mike and the wonderful supportive group this five days of the clinic!

May 2009 Voice Clinic, Apollo Beach, Florida
L-R Mike, Brenda, PM, Connie, Sharon, Arlene, Susana, JD (not pictured)

Brenda: AD/SD 15 years:  regular botox injections 10 years, voice therapy

My voice improved 30% at the clinic, with improved voice quality and the ability to self-correct. The breathing training helped my chest to be more open. Connie provided an opportunity to investigate and learn about my whole being. Mike’s work on breathing contributed a vital part in helping me understand the elements which were detrimental to voice production. These techniques work!  Talking with Robbie about my psychological profile was extremely beneficial. The massage with Christine after gaining all of the other insights helped me to understand my areas of muscular tension. All of these services combined explain why Connie’s approach to SD is structured for success. She is extremely knowledgeable, empathetic, sincere and open. She shares her ideas freely and ensures questions are answered. It is a journey and this clinic is the perfect beginning.

PM– AD/SD 10 years: Cooper’s DVR two weeks in 2006 and 2008

My voice improved 50-80% at the clinic. I experienced amazing improvement in my voice for a great deal of the time, with some periodic relapses, never as bad as before I came. I improved significant breathing from my stomach instead of my chest and more relaxed breathing while talking. I have used other resources to try to improve my voice quality, but at best, they resulted in temporary improvement. I believe this is because they did not take a comprehensive approach to the issue. Connie’s clinic is very different in that it deals with the voice issues directly in addition to breathing issues and psychological and emotional issues. The clinic provides help in a very nurturing, compassionate environment. Connie and Mike are incredibly helpful, and the bonding experience with the other participants is a very important and helpful part of the process as well. I highly recommend Connie’s clinic to those who are serious about improving their voices.

Sharon –AD/SD slow onset since 1994: short term voice therapy, botox injections every 2-6 months from 1997 until May 2008, yoga, chiropractic, voice lessons two years, and nutritional support and supplementation

My voice improved 40% at the clinic. My breathing improved in that I experienced less tension in my solar plexus area, building a foundation and less throat tension, and experienced periods of easy speaking. I highly recommend this clinic. Each case of SD is different and Connie and Mike evaluate each person individually and design strategies to overcome the obstacles. Robbie’s evaluation showed me weak areas in my temperament that I can change to help my recovery and my life in general. The group experience is invaluable. Being with others who understand and are experiencing SD is very healing. I have a lot of tools now and can contact Connie and Mike to help me through any “stuck” areas. I now know with certainty that SD can be overcome to the point that it no longer interferes with my life. God Bless!

Arlene – AB/SD 6 years: 1 attempted botox injection, brief consultation with Morton Cooper, yoga

I learned how important breathing and posture are in order to improve my voice. I learned among many things not to breathe out most of my air before speaking. The clinic was wonderful and my voice improved 50% overall. Connie and Mike provided the tools necessary to overcome SD. It was done in a caring and positive manner, integrating many aspects. They have given me my voice back and for that I am grateful.

Susana – AD/SD 3 years:  voice therapy, two botox injections, sacrocranial stimulation, parasympathetic injections, bioenergetics

My voice improved 95% at the clinic, the spasms disappeared and I spoke fluently. I experienced more air, relaxation and more ease in speaking. The clinic gave me the specific and powerful tools to improve my voice and get into the right groove. Already, this has changed my life deeply. I’m back in my life. The knowledge, care and love of Connie, Mike, Robbie and Christine made a huge difference and has allowed me to keep going. Thank you so much, very deeply.

JD – AD/SD & MTD 2 years:  voice therapy, neurontin trial, one botox injection

I learned better resonance and more focus on using adequate air intake. Connie’s clinic offered and delivered a very comprehensive holistic approach to SD. Many options were explored, allowing participants to find what works best for them, and then customize their own program.


Jan 2009 Clinic

January 2009 Voice Clinic, Apollo Beach, Florida
L-R George, EM, Marja, Johnna, Belinda, Amy, Connie, Mike

George - AD/SD 10 years : voice therapy, acupuncture, botox injections every four months from 1998 until December 2006

My voice improved 30% at the clinic and I learned to “let go” when blocks occur and that an awareness of deep full breathing is imperative all the time. Every instructor at the clinic has developed incredible knowledge and techniques which were all helpful. In reality, each technique, service and idea is perfectly introduced as the weakness appears. The ideas make it easier to move back to the basics and then move on with the improvement.

EM– AD/SD with tremor 4 years: no prior treatment   

My voice improved 50% at the clinic. I learned to speak faster so the spasms aren’t allowed to happen. I learned to fully breathe into my belly and to breathe while talking.  Being with others who had SD was beneficial. They supported me and encouraged me. All the various techniques for breathing and voice were helpful. I learned what pitch makes my voice sound better and how to get to that pitch. I appreciated the individual sessions tailored to me and I learned what I should and should not do for my voice to improve. The techniques and instructions will help me to achieve my goals.

Marja –AD/SD 2 years: No prior treatment  (Marja traveled all the way from Finland, coming to the US alone, with English as her second language. We were all in awe of her courage and determination and know she will beat her SD!)

I experienced ease and more resonance in the voice and full breathing. My solar plexus relaxed and my energy was aroused. After being diagnosed with SD, you are facing big challenges. You wonder “Will I ever get my voice back and what are the options for a cure, if any?” I was offered botox and I refused it. I went to the internet and found two places to go: Dr. Cooper or Connie Pike’s clinic. I chose the clinic because of the approach used, with a multiprofessional team and a mind/body/spirit approach. I wanted to be cured as a whole. As I entered the clinic, I met my first SD colleague and was surprised by the variances and of the severity of the disease.

During five powerful days, we shared tools in terms of relaxation, breathing, voice rehabilitation, psycho-social issues, nutrition, spiritual issues, and developed a compliance plan. Being with five others with SD gave me inspiration, courage and caring love to face my SD and get rid of it. Connie and Mike are real pioneers in their fields with the courage to use this approach since 99% of the medical society treats it differently. They have chosen the RIGHT WAY and I am more than privileged to have found them. 

Johnna – AD/SD 19 years but diagnosed 2 years ago: medication, psychological consultation, EMDR, Healing Touch, herbal supplements

My voice improved 50% at the clinic. It became more resonant with fewer breaks and less effort. I gained deeper, easier breathing, awareness of abdominal breathing and supportive posture. Having the hands-on experience with Connie and Mike was invaluable. It enabled me to have “right practice”. These were actual training sessions. They were able to show, demonstrate, mold and correct in ways not possible without their one-on-one touch.

Having training take place with others going through the same process turned this into a loving and healing process for all of us. It was a much more sacred space than I had imagined and allowed for a deeper level of insight and peeling away at the many layers of SD. This could not have been accomplished without such great support. It was a life-changing experience that I am profoundly grateful for and whole-heartedly recommend to anyone who is considering it.

Belinda – AD/SD or possibly functional dysphonia 11 years:  Dr. Cooper’s DVR, individual work with Mike and Connie over the past several years, botox

Belinda did not get the big breakthrough to her voice she had hoped for. She did develop a consciousness not  to whisper and learned relaxation and breathing techniques that were helpful. She found the psychological assessment/consultation a fantastic and wonderful insight and experience, as well as the group dynamics and support. She has a plan in place and renewed hope that she will find her voice.

Amy – AD/SD 3 years:  4 botox injections
2 Corinthians 4:13 “…I believe therefore I speak.”

I have had SD for 3 ½ years. Following my first botox treatment, the medical community literally said these words to me, “Mrs. Harris, you need to accept the fact that you have this disorder and your only hope is botox.” Those became fighting words to me. Although I did receive 3 more botox treatments, I continued to search for other options. Botox always provided some relief from strain but my voice never sounded good.

A friend had heard about Connie Pike and I began to research. I ordered her book and for the first time, I knew someone understood. I have at least six good friends who are speech therapists and they all say that SD is so rare, they really don’t know what to do. One gave me lots of things to try but just never found much of it to be helpful. It took a speech therapist to have this disorder to fight her way out for all of us to have hope. Connie for me was that picture of hope.

The clinic was so important for me because it looked at my individual case and focused on just what I needed. All six of us had unique needs. We all had breathing problems.  Mike’s breathing techniques opened up something within me on the very first day and I could feel my chest open and air actually flow down to my diaphragm. It was a wonderful feeling to BREATHE!  We worked on this throughout the week and my breathing is so much better now. Connie was able to help me with pitch and this was huge for me. We discovered other challenges that SD brings on so there are specific exercises that she gave me to help with those.

I brought home tools (books, computer software, exercises and other devices to help me continue my recovery at home. I now have a voice. I really do! It is like an old friend has not only come for a visit but decided to stay. I have to work really hard on it because I am training my brain to speak in a different way.  This is not for the faint of heart.  If you are ready to fight the good fight, then pack your bags and get the tools you need to win your voice back. This is not a cure – it is hope!  You may always have SD but you certainly find a new pathway from which to speak. It is the equipment for success but you must have the desire and the motivation to just “do it” everyday.
When I left the clinic to fly home, I sat next to a lady and had an hour and a half conversation with her. That in itself was a huge success. At the end of the flight, she said to me “If you had not told me, I never would have known you had anything wrong with your voice.”  For the first time in years, I had a “free to speak” experience.

My prayer for you if you are considering this clinic is that you find hope to fight the good fight against SD and know that success is possible. No one has the right to take away your hope.

 

September 2008 Voice Clinic, Apollo Beach, Florida
L-R Craig, Mike, Connie, Betty, George, Rick

Craig - AD/SD 3 years : 3 botox injections, speech therapy, acid reflux medication

I feel the clinic will be invaluable to recovering my voice. Mike and Connie are wonderful to work with. They really understand how SD not only affects you physically, but how it affects you emotionally. Having the clinic in her home helps make the whole process relaxing. Being with others who have SD really helps bring the whole experience together. By the end of the week, they really felt like family. I felt like I improved 30%, but really feel that the skills they taught me will help me totally recover my voice.

Betty– AD/SD and MTD 1 year: No prior treatment

I have had SD over 11 months. I was “working hard” trying to overcome the disorder on my own. During the clinic, the holistic approach that Connie and Mike used clicked with me and the improvement in my voice, especially on Saturday, was astounding to me (and my husband on the phone). Thank you Connie and Mike!

George –AB/SD 14 years: 5 botox injections, one month DVR with Morton Cooper in 1995

First of all, I owe much of my voice recovery to Dr. Morton Cooper. My voice improved a great deal under his instruction and guidance. Recently I began to get off target with my breathing and my voice was good only under low stress situations. This actually affected the fluency of my speech. I decided to attend the “Free to Speak Voice Rehabilitation Clinic” with Connie and Mike.

Connie and Mike realize that at times this disorder is more complex than just tone, focus and pitch. They deal with SD in more of a holistic approach, considering the physiological and psycho-social aspects. In my case, since I have had SD for some time, I had developed tension in certain areas relative to speech. Even though I could produce a good voice in situations when I was calm and alone, tension took over in other mildly stressful times. They taught me techniques and other resources to help. Tone, focus, pitch and proper breath support are all things you learn at the clinic, but the psycho-social part of this disorder cannot be understated.

Some of the things that I came away with which would be useful to all those with SD in general are:

1. Our speech does not have to be perfect. Many people with SD have type-A personalities (I am definitely included). Sometimes I felt that, because I had a break in my speech, it was awful. That would make me try too hard, which would create tension and affect my voice.

2. Relaxation is very important. If we are relaxed, everything flows, including our voices. Practice should be as relaxed as possible. In addition, practice relaxation techniques. Relaxation Response by Herbert Benson is an excellent book.

3. Don’t be hard on yourself. Cut yourself some slack and be kind to yourself. If you have SD and are not sure if you should attend the clinic or not, I would strongly urge you to attend. Intensive Voice Rehabilitation will give you the tools to regain your voice without surgery or drugs. The medical community wants you to believe that botox and/or surgery are the only ways, but they are not. I have seen many people with SD improve their voices in a matter of days at Connie’s clinic and at Dr. Cooper’s by using their techniques. It is not a magic bullet, but if you take responsibility for your disorder, and are willing to make a consistent effort at regaining your voice by practicing the techniques daily, you will improve and be glad that you attended.

Rick – AD/SD 1.5 years: acupuncture, acid reflux medication

My frantic search for a cure for my spasmodic dysphonia led me to Connie’s clinic. When I first searched the internet to find a solution, I found Connie’s book, her clinic, and Mike’s web site and breathing tests. After reading Connie’s book and talking with her on the telephone, I quickly decided that her spirit, understanding, and expertise matched my needs. Also, it was very important for me to get help from someone who had recovered from SD.

I can’t imagine getting through SD without this comprehensive clinic. Connie and Mike were professional, thoughtful, concerned, helpful, and offered individual strategies for each of the four of us attending. The clinic was well planned and took place in the comfort of Connie’s home on a canal leading out to Tampa Bay. We put in many hours each day on voice improvement and breathing, shared our concerns, laughed and supported one another.

My initial assessment by Connie on the first day was a bit frightening. Speaking caused me anxiety, stress and required much effort. Connie gave me suggestions to work on to find my voice. I then spent an hour with Mike to work on improving my breathing. A few months before the clinic I had already started to correct my poor breathing, but Mike accelerated this process significantly. He quietly observed my breathing, posture and voicing before discussing my lifestyle.

During each of the five days of the clinic, I spent time with Connie and Mike developing my breathing and voicing. New ideas, new exercises, new breakthroughs characterized each meeting. Mike and Connie also met with the group each day to check in, answer questions, and suggest new solutions. All attending discovered that we had to let go of tension in our lives and become more aware of what this tension was doing to our voices.

After the first day I was feeling discouraged; my voice was not better! Of course, my expectations were misaligned with reality, big time. On the second day, I noted improvement. There was more resonance in my voice, I was able to go deeper in my pitch and project the sound into my face more easily. Each day was better overall. Karaoke night, our last evening together, would have strained my voice even before I had SD, but the next morning my voice was stronger, deeper and projected better.

On the final day of the clinic, Connie’s assessment of my progress was very encouraging. Compared with her initial assessment using her computer software, my pitch decreased significantly (this is good), my resonance had improved, and my flow of speaking was much less broken. Our subjective assessment of my improvement was very good also as we heard significant improvement.

I think my progress would have been less significant if I had not been with others struggling with the same challenge. It was extremely important to me to be part of a group. We were able to discuss progress, setbacks, compare life tensions and frustrations contributing to our SD, and laugh and relax together. Before the clinic, I had never met anyone else with SD. There I was with three other people with similar challenges, yet very different stories. The opportunity to share this experience with three new friends was extremely important to me.

At first, I thought the cost of the clinic was high, but after attending, I feel that it is a bargain. Many factors changed my mind about this, including the hours spent with Connie and Mike in private and as a group, the included books and breathing development aids, computer software, lunches and dinner, the follow-up six hours of consultation, and the degree of commitment by Connie and Mike. But the most important reason I feel the clinic is a bargain is because of the improvement in my voice.

As a result of this clinic, I am expecting to improve my voice each week from here on, and finally cure myself of SD. This clinic has improved my voice significantly, probably over 50% in just five days. Before the clinic, I was not certain if I would ever have a normal voice again; now I know I will. Thank you Connie and Mike for your insight, expertise and care.

August 2008 Voice Clinic, Apollo Beach, Florida
L-R Jane, Valerie, Kaye, Ingrid, Silvia, Connie, Jessie, Mike

 

Jane - AD/SD 6 years (but with voice difficulties beginning intermittently in 1978). No treatment other than a one-day consultation with Morton Cooper earlier this year.

For those of you that are suffering with SD, this clinic is well worth your time and investment. I never told people (family, friends, or co-workers) I had SD. I hid behind it for six years-making excuses that I had laryngitis, allergies, a bad cold, or a virus. I depended on email for communication, and I would use every “crutch” in the book, not to have to talk to people or answer the phone, to just get by on a daily basis. I was emotionally and mentally drained from not dealing with this awful disorder. Having SD is a very lonely and frightening place to be. My ENT doctor told me it was incurable and that my voice would get progressively worse, and that botox was the only treatment. I refused botox injections and finding a local speech pathologist proved challenging, as there was no one familiar with how to treat SD. I found Connie through the internet in 2007 and corresponded with her for many months (plus purchased her book) before I made the commitment to the clinic. My five days there were shared with a wonderful group of ladies from all over the country. We bonded immediately and the group atmosphere provides participants with the support and encouragement needed to face and overcome this disorder. Connie is an excellent role-model, leader, mentor, and a wonderful speech pathologist. Her passion for helping people overcome SD is evident from the first moment you meet her. She provides us with her own story, her journey, complete with audio and video of her SD experience and how she overcame it without botox or surgery. She is a true inspiration that you can get your voice back. She is the real deal. My voice improved 70-80% and there were times I learned to speak in a normal voice with no SD at all.

During the five day clinic, we are given the tools, strategies, information, guidance, tapes, ”Hearphones”, computer software, and so many different things to assist us in our personal journey of voice recovery. It is a very intense five days of learning and worth every penny. Although it is a group clinic, every participant is given individual therapy from day one. You are given a comprehensive plan of action for everything from nutrition, posture, breathing techniques, and a lot of voice exercises to address your particular case of SD. When you leave the clinic, you feel empowered to take charge of your voice, your life, and your brain to do the things necessary to get your voice back. I know it will be a lot of hard work, but I know I can do it. Thank you Connie, Mike, Dr. Robbie, and Christine for your love, support, knowledge, guidance, and for being there. Thank you to my fellow participants for being the best group of women ever to go through this clinic with! We will keep in touch as we still need each other to share our joys, tears, and our progress in the months to come.

Valerie– AB/SD 25 years; extensive traditional speech and voice therapy, massage therapy, biofeedback, botulinum toxin injections July 2000, October 2003, and regular injections December 2006 through December 2007 with some improvement but nothing dramatic, psychotherapy and medication.

For most of the 25 years that I have had SD, I have known that my voice was still in there somewhere and I was doing something wrong with the muscles in my abdomen. At times, I had success with speech therapy, but when symptoms would begin to reappear, I couldn’t identify what I was doing “wrong”. I had no idea how to get back to my voice. This clinic was a dream come true for me. I leave feeling relaxed, breathing freely and deeply, speaking perfectly much of the time, and with knowledge of how to get back to my voice when I have slips. I also have five wonderful new friends and two wonderful practitioners to call when I become discouraged or hit a rough voice spell. In addition, I have learned what I need to know to be able to continue to improve my voice, which improved 80% at the clinic. A million thanks!

Kaye –AD/SD 2 years–psychotherapy, traditional voice therapy, acupuncture

After suffering for two years and only hearing the word “botox” for a short fix, coming to this clinic was a gift from God. Connie and Michael are both angels here on earth to help all of us that have the frustration of SD. In just the first day, my voice improved over 50% - Wow! I was, and still am, so excited! It was actually the first time I had heard my true voice in over a year. I was back in the world of being free to speak. What a great feeling that is. It is so hard to explain to someone that has never had a voice problem. Over the past 4 days, my voice has continued to improve with all the tools and exercises given to me by Connie and Michael so that it is about 80% improved. My classmates – 5 wonderful women – were also a gift. WE all learned from each other during this week as we were all so different. But what a great support group we all have – and especially Connie and Mike at the head of it.

Ingrid – AB/ SD 5 years – no treatment

If you are dealing with SD, you could not come to a better place than this clinic. Connie and Mike are the most passionate people in helping victims of SD. They give you the tools to get over the disease. The rest is up to you to stick with it. My voice improved 90% at the clinic.

Silvia – AD/SD 3 years but with symptoms beginning in 1992– short trial of voice therapy, two botulinum toxin injections, acupuncture, chiropractic, Reiki.

I highly recommend Connie’s clinic to any person suffering from SD. Since Connie herself suffered from SD and was able to heal herself, she completely understands the implications of SD and knows how to teach others to do the same for themselves. Connie is very passionate about her work and she is compassionate and sensitive to each individual’s needs. The clinic was much better than I expected. The flow of the sessions, the amount of days and the fact that the clinic was held at her house contributed to a wonderful experience. Also, having a group of only six was a positive aspect because it allowed our group to really bond and create a sisterhood of friendship and support, not only during the clinic, but for the future. It was great to meet other people that are also struggling with the same condition, because you get to learn not only from Connie and Mike, but also from each member of the group and their journey.

I thank Connie for giving me the gift of this experience. She taught me to accept SD as my teacher and to trust that just as she was healed, anyone suffering SD can also be healed. I thank Mike for teaching me how to breathe properly, for giving me many exercises that I can take home to practice so that I can recover my voice. I also thank Robbie and Christine for their contributions. Both were very helpful to me and my own process. Thank you for giving me HOPE!!

Jessie– Dystonia; probably segmental involving the voice, eyes and hands and vocal tremor for over 12 years – no treatment.

If you have SD or suspect you have SD, this is the place to be. Where else can you find a licensed speech pathologist who has had SD with all of the pains, agonies, and disappointments that go with it. Connie teaches from personal experiences rather than textbook theories. Michael White is a well-known breathing expert. His knowledge, techniques, and dedication leave you well prepared to complete all you have learned with handouts to take home. Robbie Goss, the psychologist, helps you identify factors, positive and negative, in your life that can further your development. Feel free to contact me at faithful2008@hotmail.com.

 

June 2008 Voice Clinic, Apollo Beach, Florida
L-R Mike, Sharon, Barada, Rod, Ellen, Tarryn, Olga, Connie

Barada –AD/ SD 7.5 years – four botulinum toxin injections, DVR one month improving voice 45% in 2002, acupressure massage

I attended the clinic because I had a strong intuition that Connie “got it” with SD. Here is a woman who not only had SD and came out on the other side (her voice is lovely), but was obviously dedicated to helping others with this dysfunction find their voices. In person, Connie was as genuine, open and capable as I had thought she would be. She used her huge repertoire of researched therapy tools coupled with her deep spirituality and beautiful female intuition, added to her life experience as a therapist with SD to work with each of us in the way we needed. It was not a one pattern fits all kind of therapy. Each of us worked closely with her and Mike to find his/her own programme. It was professional, safe, inspiring and genuine every step of the way. As for the breath work – there were emotional moments. Learning to breathe and practicing a lot of breathing stirs up a lot. Mike is a brilliant scientist and a patient, genuine practitioner. This is a rehabilitation process. It is not a “Five days and you are cured” program. Rehabilitation takes however long it takes, but it works and will work and has worked for many people. My “programme” of practice is completely different than it was before and my perception of myself and my SD are different as well. The experience was holistic, healing, practical and inspirational. Several friends hearing me on the phone after my return have exclaimed how much more clear, even and less broken my voice sounded. Thank you again and again for this booster shot of hope your own life’s journey and expertise has provided. It has come as a gift of confidence ensuring me that my voice will continue to be more open, free and more beautiful every single day.

Ellen – AD/SD 22 years; traditional voice and stuttering therapy, botulinum toxin injections regularly 2001 – 2004; resumed 2006 – July 2007, chiropractic, acupuncture

While I do not feel I made a huge improvement speaking during the five day clinic, I feel confident that I have the tools to improve my voice. My breathing significantly improved and a lot of tightness has gone so I can breathe deeper with ease. I learned a lot about myself and my voice during this clinic. The way to recover from SD is not by working very hard, but by letting go of the tension and playfully exercising the voice. The sessions with Mike were great, and my voice came back during many of the exercises, making it easier to speak. Connie also gave me good advice and the confidence to regain my voice. The best thing about this clinic is that it really addresses each person’s specific situations and needs. It is not a standardized approach, but a search for what helps each person to recover his/her voice.

Sharon – Mixed SD symptoms 20 years, formal diagnosis 2007 – one botulinum toxin injection; traditional voice therapy

My voice and breathing both improved significantly at the clinic. I would like to tell those with SD that if you have tried everything and still have problems, don’t give up or lose hope. There is help available and it works. You may not get it right away, but eventually you will find the help you need. You will finally get it and know what it is like to speak freely and not have to worry about it. God Bless! This cross is not as heavy as you think!

(On the second day of the clinic, Sharon’s husband did not recognize her on the phone. She had wonderful comments from other friends and family members she spoke to throughout the week and a DVD to prove to herself that her true voice was there inside her)

Tarryn – AD/ SD 7 years – traditional voice therapy, DVR one month in 2006 with 50% improvement

I experienced significant improvement in my voice and breathing at the clinic. SD is something that needs to be shared. Only by attending such a clinic do you have the opportunity to meet people with a similar condition to yours. This makes the clinic a safe place to speak and be free to be yourself, which allows for better progress. Connie is able to tailor advice and suggestions for improvement to the individual and this is crucial as SD is a process and people are typically at different stages. Mike is able to assist with getting in touch with your breathing and finding your voice. If your breathing is stuck/restricted you are not going to beat SD. SD is beatable. Connie is a living testament to this and an inspiration. Keep up the amazing work!

(Several weeks following the clinic, Tarryn reported this in an email: “I have been really pleased with the results so far – I have maintained, which for me is great, and I have been through a lot of tests – my voice has held out – not perfect all the time but GOOD ENOUGH! The feedback is positive.”)

Rod – AB/SD 1.5 years – short trial of voice therapy, three botulinum toxin injections

The change in my voice during my time at the clinic was more of an internal change. I absolutely know my voice is better. I have deeper, more relaxed breathing and have learned to use my breath to “calm” my voice down. Prior to the clinic, I had taken a medical leave from teaching and had effectively “given up” on speaking. A typical day might include speaking 30 words (no exaggeration) with absolutely no phone, drive up windows, etc. After spending five days with Connie and Mike, my confidence and willingness to speak has soared. While my voice is nowhere near 100%, it is now to a level where I am willing to use it and actually look forward to trying it out with family and friends. I am not ready for phone calls to strangers, but I feel I am close! Most important of all, I leave the clinic with a broad array of tools and strategies to continue building my voice, a wonderful group of new friends and absolute belief that my full voice is on the way back. Thank you Connie and Mike; you are truly gifts from God to all of us!

Olga – AD/SD 7 years –voice therapy, chiropractic, herbal supplements

I felt that my voice improved 80% at the clinic. I developed more confidence in myself and a connection with my inner, powerful spirit. The clinic gave me the opportunity to allow myself to connect with others, my breath, my voice and my inner self. I have gained so much more confidence in myself as a whole. I now view SD as a gift, not as something negative. I have a journey ahead of me to enjoy every second of. From the deepest part of my heart, I thank Connie and Mike and all of my new friends that I made for sharing this “awesome” experience. I am POWERFUL!


March 2008 Voice Clinic, Apollo Beach, Florida
L-R Wendy, Linda Jo, Lidia, Jackie, Mike, Ronda, Connie

Wendy – AD/SD with tremor 2.5 years – one botulinum toxin injection, acupuncture

I feel that I gained tools to help me overcome my tremors. The instructors were very knowledgeable and helpful. Having an instructor who understands the emotional as well as the physical components of SD was invaluable. I appreciated the individual sessions, which helped focus on my personal recovery. But I also found the group sessions to be very constructive in expressing myself in front of others. It has truly been healing and inspirational to share this experience with others who struggle with the same disorder. I am enjoyed making some good friends too.

Linda Jo – MTD – 2 years; traditional voice therapy: one botulinum toxin injection

During the clinic I learned how to use less effort in voicing and not push or force my voice. My voice improved 70% as I learned to hum to focus my voice into my face. I learned how to breathe more deeply into my belly and fill up to a greater capacity.

The empathy and understanding from the participants was wonderful. The group dynamics cannot be achieved with individual consultation and therapy. Just to share a common problem and frustration with those who are experiencing the same is “great company”. With Connie’s SD and her ability to truly relate to this disability is priceless. Her expertise and sincere desire to help achieve the voice within is a rare find. Being equipped with the tools and techniques that really work to improve voice and breathing will help me to recover my voice. After attending the clinic, I can and I will be able to be “free to speak” again.

Lidia AD/SD with MTD 4 years – botulinum toxin injections; traditional voice therapy; repeating the clinic experience since June 2007 following increased voice demands at work and a spinal fracture.

My voice has started to improve after a set-back. I recognized the need to “check-in” and relax and let go of effort. The body-work during the clinic reminded me to pay attention to this area. Life has a tendency to interfere with any part of rehab, and due to at set-back, I felt I needed to return to the clinic. I was very glad I did. I had made progress but needed some reminders of the basis techniques. The intensive nature or the clinic provides you with that uninterrupted time to look after yourself, always guided by two selfless, experienced, committed, dedicated professionals. The approach is holistic, which ensures a more complete strategy in overcoming this disorder. Having a professional actually having gone through this is invaluable. Spending time with other SD sufferers gives you support and understanding that cannot be easily found. Every SD sufferer owes it to him/herself to come to this clinic. It’s not a quick fix – it is a lot of work, but it is much easier than dealing with the life sentence that others claim/assert that SD is.

Jackie – Mixed SD 21 years – psychiatric treatment, four botulinum toxin injections, self-directed holistic treatment

At the clinic, I acquired a smoother, stronger and more confident voice. I learned to breathe into my belly and my diaphragm is no longer “stuck”. Voice improved 50% and I am overwhelmed with the amount of new information I have learned about SD and what I can do about it. I feel I can be in control of my recovery from this disorder, finally!

This was an amazing gift to myself. I am coming away a more healed and whole woman. I am confident that I have tools to mend my voice and my broken spirit. The healing began on the second day of the clinic and continued to improve every day. With the support of Connie and Mike, I know that I will be free from the fear of speaking with an SD voice. This has plagued me for so long… a great burden is floating away.

RondaAD/SD 26 years – psychiatric treatment, 20 botulinum toxin treatments, with up to 9 injections per treatment; worsening symptoms the past two years.

Ronda has lived with SD since the young age of 23. She was diagnosed before there was any type of standard for treatment and was told that there was little if anything that would help her. Eventually, botox was accepted as a treatment, yet it did not seem to help her. Ronda did an incredible job just living life, raising two children and working to support herself and them despite her voice disability. Her mother began to research alternative options as Ronda’s voice worsened. They had been told that it would not get worse, yet it did. Ronda’s speech intelligibility was deteriorating, so she agreed to try our clinic.

“I learned that my tongue and palate get in the way (of producing voice) and the tools to help improve that. I learned how to breathe full deep breaths into my belly. It was wonderful to be around people that know how you are feeling and what you have been going through. That was a plus for me. The tools that I came away with will help me find my voice, I know! Attend this clinic!”

 

January 2008 Voice Clinic, Apollo Beach, Florida
L-R Mike, JD, Connie, Jared, Leslie

Apollo Beach, Florida - January 2008 Clinic

We had an intimate group for the first of the New Year. It was a great opportunity both to jump start our new expanded program in full, as well as to welcome back a previous participant for a second time around. We realized that a repeat of the program is not a failure and that there are reasons our clients might want or need to come back for a “refresher”. Leslie helped us to define some of those situations. She had attended the first clinic at maximum benefit from a botox injection, and had returned to small doses after the clinic, which had worked well for her. Leslie wanted to continue her voice rehabilitation program, and had suggested a “refresher course” once the botox had worn off. We are open to continuing to expand, clarify and commit to whatever is needed to overcome SD! This can certainly include those who receive benefit from botulinum toxin injections in conjunction with voice rehabilitation, with the goal of maximizing functional control of the voice and re-programming of voice production.

JD – AD/SD 4 years – botulinum toxin injections regularly 3 years with voice therapy

“Connie and Mike generously shared their knowledge of skills and attitudes shown to improve our SD voices – all in a relaxing, positive and compassionate group setting. Voice production improved 50% at the clinic.”

Jared – Hyperfunctional Voice/ AD/SD– 2 years; traditional voice therapy 6 months

“With SD, you get overwhelmed with all kinds of information. What I have discovered is that a majority of the information is incorrect or misguided. Connie’s clinic helped me put some perspective around SD; what it is, and what can be done to counteract it. I just needed guidance and a plan. Most of all, she and Mike provided the biggest thing we all need – which is HOPE. When all of our renowned, well-schooled doctors and therapists tell us it won't get any better or to look into temporary relief, Connie and Mike provide help and hope for a permanent solution. Not everyone is the same, and that is difficult with SD – some programs and exercises work for one person and totally different programs/exercises work for another. There is no magic pill, no quick fix; but over time, with devotion, faith and dedication, many people have overcome this sometimes paralyzing disorder. To those who have SD; empower yourself with the right information and attend this clinic. Give yourself a chance. To those who have overcome SD, I look forward to joining you in the months ahead!”

Leslie – AD/SD 7 ½ years – botulinum toxin injections; traditional voice therapy

“I would really encourage anyone to take the clinic the first time and even a second if needed. Both Mike and Connie have quite a depth of resources to help, and are more than willing to help you adjust your particular remedy for the specific problem. They are great at diagnosing each one’s particular problem, which is unusual with SD. Other healthcare professionals tend to deal in a more generalized manner with SD. It was a great experience.”

 


Voice Clinic November 2007, Apollo Beach, Florida
Left to Right - Mike, Joanna, Christine, Pam, Debbie, Connie, Adam, Loreen

 

Joanna – AB/SD 2.5 years

“I believe that my stay at this voice rehabilitation clinic has provided me with the springboard to recovery. It has given me the confidence and determination toward recovery. I have been given expert advice on how to use the necessary tools and exercises to re-educate my body and voice. I realize my voice is still there. I am the only one who can really work out my own programme.”


Christine - Mixed SD/MTD 15 years – botulinum toxin injections 10 years, traditional voice therapy

“I knew I had developed a lot of bad habits but didn’t know what to do about them. Now I do, and it works! Hearing my loud, strong, clear voice for the first time in 15 years was an experience I can’t even find the words to describe. Overall voice improvement was 30% but with moments of 100%. “

Pam – AD/SD 5 years – traditional voice therapy

“I have such wonderful things to say about these five days with Connie and Mike. I have learned so much from them and from the other five participants in the clinic. We have become a great big family. The group experience is the way to go! The clinic is intensive, but we also learned to relax and let go of things that restrict in many ways. We have learned to be more positive and encouraging. We have laughed, cried and grown! A dynamic experience! I realize the ability to change my voice; to drop or unlearn bad habits by replacing them with good habits and techniques. Voice improved 80%.”

Debbie – AB/SD 1.5 years

“I definitely understand the combination of breathing, voice, mental and relaxation therapy. But the essential glue to the mix is group therapy. The clinic held in Connie’s home is ideal for making sure that everyone is relaxed and supported by one another. I started the clinic with trepidations and ended up completely calm and prepared to fulfill my goals. The friendships that I formed will work toward developing into a support group that will only benefit my progress. I have seen such improvement, even when my voice still comes and goes, that I will stick to the program. I can fix my voice, improved 50% at the clinic.”

Adam – AB/SD – 2 years – traditional speech therapy, homeopathy

“For those suffering with SD, be assured you are not alone. This clinic is the perfect tool to put you on the road to recovery, run by Connie Pike, who has first hand experience with suffering SD and is now dedicated to helping others overcome SD. She is accompanied by Mike, a breathing specialist who has great knowledge and expertise to get the breathing back on track, which will contribute to good voice production. The program requires dedication and I know that I have to practice all I have been taught to enable me to fully recover my voice. For those suffering, there is a light at the end of the tunnel. For me, the journey has just begun. I wish to thank Bob and Connie Pike for welcoming us into their home and making us feel at home. I would like to thank Bob, Connie, Mike and Robbie Goss (psychologist) for the compassion and understanding shown throughout the clinic and Christine for the wonderful upper body massage – wow! OM, Shanthi, Peace!”

Loreen – AB/SD – 9 years – botulinum toxin injections ineffective

“I learned how to breathe and became extremely conscious of how bad my breathing was. Years of stress and emotion can compound to create SD. I learned that I try too hard and strain to push words out. I can change the way I approach SD and reprogram/re-groove the way I use my voice. I understand the holistic approach and that SD is truly far more than a vocal cord issue. Voice and breathing improved significantly at the clinic.”

 

Voice Clinic: July 26-30, 2007: Apollo Beach, Florida

L-R Mike, Rebecca, EM, Connie, Toni, Peter, Esther, Debra

Esther – MTD 8 years, s/p medialization of vocal folds, vocal fold paresis, traditional voice therapy.

“I feel so blessed to be able to come to this clinic. I have been struggling with muscle tension dysphonia for 8 years and this clinic has really helped me recover in various ways. I experienced significant changes not only in my voice, but also in my whole being; mind, body and spirit. I still have work ahead but now I finally feel I have the tools needed to end my journey with MTD. Voice improved 75% during the clinic.


Debra – AD/SD 15 months

“This voice rehabilitation clinic was so well organized and it gave me the hope and “encouragement to overcome my SD. I was told by an ENT doctor that my voice disorder was incurable and that the only form of treatment for me was botox injections into my vocal cords every three months for the rest of my life.

After researching for a more holistic approach to this disorder, I found myself enrolled in Connie’s clinic. I can’t thank Connie and Mike enough for their knowledge, determination, professionalism, and overall attitude that a person with SD can, in fact, overcome this disorder with the proper guidance, support, faith, and techniques of voice and breathing needed to find your natural voice. I knew I was determined to overcome this disorder, but I never expected to find my voice again so soon. Thanks to Connie and Mike for giving me back the hope that was taken away from me by my ENT doctor, to regain my voice at your clinic, and having me focus on what I needed to “free my voice. Compared to three months before the clinic, when I could barely speak at all, my voice has improved 100%. I now have a clear, effortless voice.”

Peter – AD/SD 15 years – botulinum toxin injections twice yearly (Dysport) for 11 years

Peter is on staff with the Dystonia Society of Scotland and had read Connie’s book and heard her speak at the Dystonia Society of London in May of this year. Peter had learned a variety of “tricks” to help him through the times he was unable to have injections. He was allowed only two shots per year, so the time in between could be difficult. He plans to submit an article on this approach and his success to the U.K. Dystonia Society magazine.

“I have lived with Spasmodic Dysphonia/laryngeal dystonia for over 15 years. I was optimistic that the clinic could help me, but apprehensive too. I have been greatly impressed by Connie Pike and Mike White both by their professionalism and their sensitivity. The programme has dealt with general principles needed for recovery of SD/LD but has also been tailored to deal with my individual symptoms and to create a recovery programme specifically for me. There has been a significant improvement in the quality of my voice and I am hopeful that this improvement will be sustained and improved. I have no hesitation in recommending the clinic to anyone who is seeking either an alternative to botulinum toxin therapy or a complementary therapy to it. Voice improved 75% and breathing became freer and fuller as a result of the clinic.”

Toni – AD/SD diagnosed 3 years but with symptoms the past 30 years. 4 weeks DVR January 2007.

“I learned so much from both Connie and Mike during the clinic that I can’t begin to thank them. The opportunity to work with a skilled speech pathologist with many years of understanding the dynamics of SD should not be missed. Connie has walked in our shoes and shares with love her insights on what must be done to overcome it. Her understanding of the mechanics of voice production guided me towards rediscovering my lost voice. With Michael, I finally found someone who could teach me to breathe properly, which is one thing SD sufferers do not know how to do. That will be the foundation of my recovery. A magnificent, inventive man, he treats each client’s problems with unique solutions. He will not give up or allow you to give up. Both he and Connie are sensitive, caring people who rejoice in our successes as much as we do, and when the emotions of this devastating condition become too much, they are there to gently hold you while you cry. I feel that I finally have the tools, exercises and knowledge needed to overcome SD. It will take time and some life-style changes but I know now I can get my life back. The professional psychologist helped us deal with the psychological component – a major “ah-ha” moment for me.”

Rebecca – Mixed SD 3 years, traditional voice therapy, ZHT

“When I arrived at the clinic, I spoke just one or two words at a time and that was difficult, exhausting, and hard for others to understand. I have more work ahead to really integrate what I’ve learned, but today I am speaking full sentences in a mostly clear voice. It’s so much fun to talk again. I especially appreciate Connie and Mike’s holistic approach and the care and empathy they’ve given each of us. Their technical expertise and knowledge is superb. They know what they’re doing and their confidence gave me confidence in myself. The group setting and the total immersion helped make this clinic successful. I felt so much support from the other participants and we had a lot of fun together. Voice improved 40% and my whole body feels more open and larger with regards to breathing.”

EM – AD/SD 3 years

“50% voice improvement, deeper and longer, less intentional breathing patterns, discovered the ability to speak clearly and project the voice.” Complete testimonial to follow.

 



Voice Clinic: July 5, 2007, Apollo Beach, Florida

Scott: - Mixed SD 4 years (2 botox injections, 1 week DVR, voice therapy)

“I think that learning or realizing that my breathing is forced and not relaxed is my biggest insight/discovery. I feel like once I learn to constantly relax my abdominals during speech, the throat and larynx will follow. It is going to take time for me to re-groove my breathing and release tensions. Once I do, I feel my voice will be effortless. I felt the clinic was a true overall mind/body/voice clinic, which is what it should be to be effective.”

Lisa – AD/SD 24 years (approximately 98 botox injections, SLAD/R (failed), s/p silastic thyroplasty 3 years prior)

Lisa was finding less and less relief from her botox injections and had switched to myobloc as Botox lost it’s effectiveness. She had purchased Connie’s book and had been practicing the exercises for several months prior to the clinic. She felt the clinic experience resulted in a 50% improvement in her voice.

“I wish I had known about this approach before any surgeries. I don’t have to be fearful and my voice is not as much of a handicap as I think. Connie and Mike have designed a thorough, holistic approach to overcoming SD. Connie is an inspiration to anyone who wants to improve their voice. She knows exactly how you feel and what you are going through. Mike is a brilliant breathing coach who can teach lifelong good habits for overall health as well as improving voice. Every aspect of my life was affected by SD, and Connie knew that and brought in expertise from different fields. They used singing to getting over the fear of videotaping and recording the voice, used a computer program to assist in achieving goals. You can feel the passion they have to help others in all they do. They have thought of everything, including a counselor to help change negative thought processes that keep you disabled and a massage therapist to help relax muscles. I felt comfortable and did not ever want to leave Connie’s home and family. We even had a karoke party with her family signing backup with us. I’ll never forget the love I felt. This experience has changed my life forever for the better.”

Ruth – AD/SD with intermittent symptoms for 3 years, but diagnosed 3 months ago

“This clinic has been extremely helpful. I have gained new insight into my abilities and feel that I can let go of the fear. I feel that I have been given the tools to regain my voice and with hard work on my part, I expect that to happen. Mike and Connie’s coaching were invaluable in giving me support to let go of my anxiety and find my voice. I’d highly recommend the clinic to anyone with SD.”

Jann – AD/SD 1 ½ years

“The clinic is phenomenal. Every aspect of SD seems to have been addressed. Just to be aware of the many ways we can help ourselves by using all the tools provided at the clinic gives so much hope. We all have been so excited and encouraged by our progress. Both Connie and Mike have tremendous knowledge in their areas of expertise and they zero in on each person’s individual needs. This holistic approach makes total sense – the body will heal when given the chance. Connie is proof. She has been there and has a great sense of understanding of all aspects of SD. The support and connection with the others has been wonderful and a very important part of the experience. We have had joyful times to relax around each other and just be ourselves and connect from a comfortable place within. It is an empowering, well-rounded program.”

Jeroen – AD/SD 1 ½ years

Jeroen came over from Holland, and we enjoyed his colorful clothing and hearing him belt out Elvis tunes on Karoke night! His Dutch specialist told him he had classic SD and that therapy would not work.

“If you want to get rid of SD, if you want to be free and you want to work with it, then this is the best way to start your road. These people find the key to unlock the door and they want you to succeed. I would recommend the clinic because you get FAITH! You will see, hear and experience results. Forget about what the doctors tell you. They don’t know what is possible. You are given a choice, and choice means freedom. You don’t have to be dependent on expensive drugs the rest of your life. You are given tools to work with your body and voice. You have to do the work. Don’t come if you want a quick fix. You will receive support from your trainers and from your friends in the group. When you get home after the clinic, they are still here for you. If you overcome this voice inconvenience, you will have so much more power in your life, and you can make a difference to other SD people who are now in the dark. You can make your own miracle. Nothing is incurable except death.”

Ron – AD/SD 1 year (2 botox injections)

Ron had a long history of episodic spasmodic torticollis since 1988. He had been successful in managing it with physical therapy and biofeedback so thought the clinic would be a good option when he was diagnosed with SD. We were all amazed at Ron’s singing voice and the awesome resonant sound that would come and go in his speaking voice. Getting control seemed elusive, but overall, Ron felt his voice improved 25%.

“This clinic was an amazing experience. The instructors were dynamic, engaging, and very attentive to individual needs. I had a productive and wonderful time interacting with others with the same condition.”

May, 2007 Voice Intensive, Apollo Beach, Florida.
Left to Right - Jill, Mike, Connie, Robin, Laura, Donna, Bob

The May clinic was another unique experience, as each clinic has been. It is always exciting to see the variety of personalities and hear the journeys of each as we make our way through the maze of the various manifestations of SD/MTD and see the improved voices emerging. The participant testimonials speak well of the experience:

Jill – Adductor SD 18 months (2 botox injections)

Jill had heard Connie speak at the Tampa SD Support Group along with her physician husband, and decided she should try this approach instead of continuing with botox. She reported that she had been practicing exercises in the book, Free to Speak: Overcoming Spasmodic Dysphonia , several hours per day in the months prior to the clinic and had experienced significant improvements.

"The group dynamics provided the benefit of fun interaction, support, and camaraderie that were invaluable. The common denominator was our voice dysfunction and only that. There is an enormous enrichment one gains in many other aspects of our human condition. There is a positive approach and certainty given to us by our teachers and fellow participants that we will improve and heal. My voice improved 70-100% throughout the clinic. Perhaps miracles do happen and I’ve had my last botox injection."

Robin – Adductor SD 1 ½ years

"Through this clinic, I discovered a viable route to recovery. I’m not there yet, I would have liked more time, but the way forward is clear. The first component of this involved assessment. Something was terribly wrong, what was it? Once that became clearer, the means to correct the problem became much clearer as well. Now comes the practice and right repetition..

"I am very motivated to achieve my goal – my old voice – and to do what I need to maintain it. Part of this will require vigilance to make sure the old habits don’t creep back in and the other part is to be aware of old habits and address them as they do occur. I can’t wait to get my groove. Voice improved 35% at the clinic."

Laura – Mixed SD 6 years

As a Christian Science practitioner, Laura faced the challenge of allowing herself to be here to receive the voice and breathing training we offered. She gained the following insights at the clinic:

"It is ok to be here and I deserve to be able to do this. Good is available in many different forms, under many different names, but it is all the same Mind at work. Using a variety of activities and developing skills – physical and spiritual – is a many pronged approach – a more effective way to achieve the goal.

"I learned practical ideas to take and use, sympathetic support, a family atmosphere among participants and beautiful and relaxing off-campus accommodations. I would have liked more time just because it was warm and fuzzy and I made daily progress. I know that with what I have I can continue to make progress."

Donna – Abductor SD 7 years; s/p bilateral silastic thyroplasty 3 ½ years ago, vocal tremor

"I learned that emotions play a big part in the quality of my voice and that I CAN practice breathing and voice techniques that make my voice better. A positive attitude is paramount. I can learn to be mindful of giving my best voice each time I speak.

"I would encourage any person with SD to attend this clinic. It was extremely worthwhile in improving the quality of my voice and perhaps more importantly, in changing my attitude so that I’m realizing I can improve my voice through practicing the skills I learned at the clinic. I am very optimistic about re-gaining my normal voice, and even improving that. Voice improved 50%."

Bob – Adductor SD 2 years

Bob had read Connie’s book and taken it to his local speech therapist. They had been working through the exercises together and he had experienced some significant improvements, yet felt that the clinic might yield more rapid progress and a more comprehensive program. He was a good encourager to the more severe cases by telling them that his voice sounded just as bad before he started his voice therapy.

"The whole experience was great. The group setting to me was the best way to understand and work out the problems. Working in a group with similar conditions helps put one at ease and promotes the healing process. Connie and Mike are great to work with and fun. They keep the mood light, which is very important. They are a wealth of information, new ideas and help. The breathing development is so important and the biggest help in my recovery. They good voice was in there. I just had to bring it out. Voice improved 90%."

L - R  Michelle, Connie, Karen, CS, Carl, Lorraine, BT, Mike is hiding inside!

January 2007 - Apollo Beach, FL

We all decided that Florida is THE PLACE to be in January as we watched the rest of the country ice over. We had six wonderful participants from as close as South Florida and as far as Sydney, Australia. The clinic experience seems to get better each time as Mike and I expand our model and incorporate more of the mind-body experience in healing the voice. The weather was too perfect not to take the boat out for our Sunday morning devotions. Kudos to Bob Pike for making that happen!

Testimonials from January:

Michelle - AB/SD 3 years

My experience at the clinic wasn't just about my voice. It was about all of me. The knowledge that was instilled into me will help me heal all of me, including my voice. Four of the most worthwhile days of my life. Voice improved 80-90%.

Karen - AD/SD 6 years, s/p Type II thyroplasty 2004

The Intensive Voice Clinic is intensive in many ways, not least in the sense of acceptance of where you are in your healing process and who you are as a person. It is a time for letting go of any heaviness of body and spirit and accumulated feelings, and a time for discovering and experiencing your free, easy and resonant voice.

Mike and Connie serve as guides, coaches, and inspirations. They have each traveled a path of healing and recovery, and their personal experience is enhanced by the incredible tools and skills they share as professionals and experts in their fields.

They are like midwives, helping to bring to birth new hope and a future for persons with SD. Sometimes the births/breakthroughs are dramatic; sometimes there are glimmers of the new voice or a new feeling of ease in voicing. It all helps to get us into a new groove and gives us a new normal to visualize and work toward.

I leave the clinic knowing what I need to do to recover fully. And I leave having made new friends and with renewed hope and joy. Voice improved 50%.

Lorraine - AD/SD with tremor - 2 years; cancelled RLN surgery scheduled July 2006

There is another way to handle SD other than surgery or Botox injections. Voice therapy is the positive approach. Voice improved 95%

Carl - AD/SD 7 years

This clinic not only provided me with the tools, support and hope that I needed, but it also gave me valuable insights into my overall well-being. Thank You! Voice improved 50%.

BT - AD/SD 6 years

The clinic provides a comprehensive evaluation of mind, body and spirit. A safe environment to explore and reveal the ability to regain the use of the voice. Meeting and working with a group of individuals who share a common purpose - to heal the mind, body and spirit. Voice improved 95%.

CS - AD/SD with tremor- 3 years

All of the techniques at the clinic are very beneficial, including the audio/visual techniques. "The Secret" was very inspirational. My pitch is higher and I have stronger resonance. I am more relaxed and able to speak without Botox. I realized I can have control of my voice by lifting my pitch and letting my voice flow smoothly.


L to R is Mike, Sarah, PG, JC, Gillian, Connie, Shona, KS.

December Clinic 2006 - Windsor, United Kingdom

We were pleased to offer our first international clinic with the gracious donation of a boardroom by the Oakley Court - Windsor. While Michael and Connie were in a state of shock over the poor performance of our dollar against the British pound, we were pleased to be able to offer the clinic locally and to provide a talk to the Dystonia Society/London. While no further international clinics are currently planned, we invite our UK friends to join us for a US clinic. We promise elegant, affordable lodging and food, as well as delightful weather and shopping! The following testimonials were provided by the clinic participants.

Our participants included one of our veterans from the very first clinic, Sarah , who felt she had put her voice rehab on hold and needed a jump-start to get back on track. Sarah's voice soared, and her comments at the end of the clinic were: "Now I know this really works. Just do it, its brilliant."

Shona: AD/SD 10 years

Having been a dystonia sufferer for 10 years with Botox as the only treatment, this was the first time anyone had offered an alternative solution. At this point my life changed, and for the first time ever, I took control of my dystonia. The clinic was an inspirational experience that I would love everyone who suffers from this condition to have the opportunity to attend. Whether my voice returns or not (and I believe it will), the insights I received, the discoveries I made, will completely re-shape my life. I have a new understanding of my mind, body and voice that I would not have gained in any other way. I can now see, hear, and feel my voice. I know it is there. I discovered it during the clinic with my toolbox of therapies. I know I will bring it out permanently over time. Thank you so much Connie and Mike.

JC: Mixed SD with tremor from age 15

During the clinic I gained a new understanding of what was happening with my voice and breathing, and learned some effective ways of doing things differently. I know that they work because I heard the difference. The whole experience was very supportive and brought about more change than I imagined possible in the length of time of the clinic.

Gillian: AD/SD 10+ years

This clinic has totally and utterly given me hope that my SD can be healed, whereas I have never believed before that it could be. Connie and Mike are gifts from God who have provided me not only with the practical help in the form of exercises/instructions to heal, but also the inspiration and motivation that healing is possible. My voice has made a dramatic improvement since I started practicing the breathing and voice exercises and I am confident that my progress will continue. Everyone with SD should have the opportunity to do this course and it should be available on the NHS!

 

 

Left to right: Mike, Connie, Jim, Lorelei, Marsha, Margaret, KR not pictured.

October, 2006 Clinic, Maggie Valley, North Carolina

The October clinic in Maggie Valley, NC was attended by five SDers from various states in the US. Despite the fact that both Mike and Connie were stricken with laryngitis, we managed through to significant improvements in all voices, including our own! We were able to watch as the fall colors began to emerge and celebrate the emerging voices as well. As usual, the group dynamics and support were priceless. Margaret (AD/SD, MTD) 1+ years:

This clinic was absolutely a wonderful experience, not only for working on the voice, but the whole person. The bodywork was phenomenal and it was amazing to see what just a few adjustments to the body could do for the voice. SD is most definitely a disorder that goes beyond the voice mechanism and needs to be treated in a holistic manner. This clinic provides just that in a warm and comfortable environment. It was evident that Connie and Mike truly care that each one of us succeeds. I leave with the knowledge that this is definitely curable and with the tools and techniques to completely recover my voice. My voice improved significantly in 4 days.

Lorelei (AD/SD, MTD) 2+ years:

Attending the clinic is the best thing that I have done for myself since I have had this voice problem. Just being with people that have the same issue and witnessing the improvement in a short time is truly encouraging. I hope that information about the clinic will reach everyone that develops SD or MTD, especially prior to meeting the (wrong) doctor.

Marsha (AD/SD) 2+ years:

This clinic with Connie, Mike and Robbie effectively touched my mind, body and soul. With compassion, tenderness and expertise, Connie and Mike guided me to get in touch with myself by teaching me tools and exercises to continue my journey to wholeness and restoring my voice. When I return home, I plan to share what I have learned to help and support others with SD.

Jim (AD/SD) 2 years:

The personal attention and individual approach to treatment provided an ideal setting for every participant to acquire a specific strategy for a complete cure. I personally experienced improvement during the four days of the clinic and am confident I will now have a complete recovery from the debilitating effects of SD.

KR (AD/SD) 3 years:

I truly appreciate Connie's approach to treating the whole person and not just the voice. I learned so much about myself and my potential. The group sessions were a wonderful way to connect, and gave all of us a chance to hear what the others needed as encouragement. The private sessions were great to identify the specific things we needed to work on. We were given great resources (books, CD, DVDs) to use during and after the clinic. This has been a wonderful experience and I am blessed to have Connie and Mike in my life.

 

Third Voice Intensive Rehab Clinic June 2006 Apollo Beach, Florida | More Photos

 

June 7-11, Apollo Beach, Florida. We had an incredibly exciting mix of individuals for this clinic, including several attorneys, a singer/song writer,  and a speech pathology major. The group solidified and provided excellent support and encouragement throughout the clinic. As promised, we addressed not only mechanics of voice and breathing, but attitudes, beliefs, life-style, nutrition, posture, strategies, and spiritual avenues. We had intense work as well as fun times together. The testimonials of the participants tell the story well.

Janet: Adductor SD (9 years) It is a blessing to work with a Speech Pathologist who has been there and has struggled with the grip of SD. She is encouraging, a great coach on what particular strategies may be the most helpful, especially how to optimize what voice one can utilize in the present. She has developed an excellent protocol of disciplines to provide a holistic approach and assembled a great team to help one effectively progress to one's own voice. My voice improved 80% during the clinic.

John Paul: Adductor SD (5 years) The Free to Speak Clinic is a breath of fresh air for those who are struggling with Spasmodic Dysphonia. A cornerstone of the clinic is that Connie, a veteran speech pathologist, is herself a SD survivor. Since the prevailing though in Western medicine is that SD is a neurological and therefore an incurable voice disorder, the irrefutable fact of Connie's full recovery -- of both her speaking and singing voice -- gives clinic participants inspiration and profound hope. But the clinic is in no way a one woman show. Connie has assembled a first class team with expertise in the areas of breathing with Michael White as well as neurolinquistic programming/neuromuscular therapy and psycho-social assessment. I found all (facilitators) to be caring, compassionate and committed. Another component of the clinic is the opportunity to interact with fellow participants in a safe and loving environment where one can learn, share, and experiment without fear of sounding or feeling foolish. Finally, the clinic has an element of Christian spirituality to it that I personally found meaningful. While nothing is shoved down anyone's throat, it is clear that Connie's faith in God was the basis of her recovery and she is comfortable sharing her journey in that context. If you are a SD sufferer who has tried everything else to no avail, then I highly recommend and strongly encourage you to consider the Free to Speak clinic. You will acquire all the skills necessary to overcome Spasmodic Dysphonia and leave with a plan of action to continue your recovery.

Dwight: Adductor SD (20 years) A great opportunity to learn techniques and strategies to significantly improve or cure your SD in the long run with continued practice.

Leslie: Adductor SD (5 years) I am supremely grateful that I was able to attend this (clinic). The atmosphere was very encouraging. We had wonderful workshops and excellent private sessions. The dynamics of the other participants provided a rich dimension. We were all supportive on one another. The stage was set for each of us to have our eureka moments, the times we discovered the voice that we thought was lost. We rejoiced in the midst of our problem. I am leaving wi6ht the tools I need for complete recovery. I go rejoicing.

Randy: Adductor SD (9 months) Connie provided exactly what I wanted - specific instructions that I could continue to use when I returned home, encouragement from her own experience that this condition can be overcome, and an experience in which I felt that it mattered to Connie that I get better. She made every effort to see that each of us received more than what we paid for. Her vivacious and warm personality was contagious and set the atmosphere for the entire clinic (experience).

Lidia: Adductor SD (2 1/2 years) It far exceeded my expectations. This weekend I had a breakthrough. I found a confidential voice (with Connie) and with Mike, found  that elusive singing voice that I hadn't had for a long time. This clinic is the best because it includes so many aspects, it's the mental and the neuromuscular piece that flowed into the breathing piece, which flowed into the speaking piece. It all came together in a very supportive environment.  Now I begin my quest and my mission with my speech pathologist in Canada. You guys are coming to Canada!

 


Group shot of Jan 2006 participants - Left to right Nancy, EA, Marie, Micki, Connie Pike, M.A., CCC-SLP,
Mike White, Optimal Breathing Coach. Mascot is Connie's dog, Congo. More Photos

Overview of Second Clinic January 2006 Apollo Beach, Florida

by Connie Pike

The January clinic took on a different climate. It was conducted in a retreat-like setting in Apollo Beach, just south of Tampa, FL. The intensity of the clinic remained intact, but was contrasted by times of relaxation by the pool, in the hot tub, or viewing the Manatees in the warm channel waters. Healthy drinks and snacks were plentiful and participants expressed their delight in the sunny warmth of a Florida "winter". As with the initial clinic, group dynamics and support were a key component. All participants gained insight into their specific problems; and agreed that while the work was intense, the fun times offered rest and relaxation and lots of laughter. Karoke night was a big hit!

Here are some testimonials from the January clinic:

Nancy (Adductor 20+ years):

I feel that I was led to a path that will prove fruitful. I benefited greatly from the knowledge and skills of the facilitators, as well as the empathy, compassion and wise counsel. I felt the time at the clinic helped me unravel some of the variables that have been blocking my voice progress. The holistic approach taken at this clinic is unique and helpful, as this disorder needs to be confronted via the emotional and spiritual journey as well as the physiological level. Connie's testimony was crucial for me as she is a terrific role model of persevering with composure, faith, grace and confidence - at the same time being honest and real about the struggle.

E.A. (Abductor 9 years):

One of the best things of the clinic is the personal one-on-one. SD is so individual that it needs to be repeatedly assessed and a recovery plan personally tailored for each person. The clinic was the one place where all of us were "normal" and Connie's true understanding of what it felt like was really important to me. It also helped to hear from each other what techniques were helpful. I can now actually see that SD is not always a life sentence, and it certainly isn't the worse thing to happen to me. If Connie could do it, so can I.

Micki (Adductor 6 years):

I have lived with SD for six years. During that time, I have read, researched, tried to speak differently, and tried every trick I heard of. I could not get a handle on the specific mechanical problems and how to correct them. It was like a condition with a hundred variables with no specific tests to tell what helped or hurt. Through speech therapy, I learned easy onset and soft voicing, but this did not fit my personality or profession. The Roger Love study benefited me greatly and my voice improved, but allergies caused me to lose those gains four months later. This clinic is different in that it is a holistic approach to the problem and the healing. Skilled diagnosticians were able to assess my specific mechanical problems with voice and breathing, and also understand and advise on the human factors that would help or hurt my recovery. The 3 ½ days was more like a healing and wholeness retreat for the voice than a clinic. I made significant breakthroughs with voice and breathing and know what to do to recover my voice fully.

Marie (Abductor 5 years):

I had had botox treatments which only minimally improved my voice. Not only that, but the botox injections would have to be continued indefinitely. This program has dramatically improved my voice (75%), but probably most importantly, it has given me the tools and insight to continue to help myself. I know that my SD will eventually resolve completely.

 

The first group. Left, Mike White, Optimal Breathing Coach. Right, Connie Pike, CCC-SLP | More Photos | Before and After Speech Samples

Overview by Connie Pike, M.A., CCC-SLP

August 18-21, 2005 - We held our first intensive voice rehabilitation clinic in Tampa, Florida. Connie organized the clinic format based on the model she used to restore her own voice over the past year (AD/SD) and outlined in her book Free to Speak: Overcoming Spasmodic Dysphonia. She was assisted by Michael White, Optimal Breathing Specialist. Robbie Goss, licensed mental health practitioner, consulted with each participant as well. We had five participants for the first clinic; one Adductor, one Mixed with secondary dysfluency, and three Abductor. Length of time from diagnosis ranged from 6 months to 12 years.

Intensive sums up the experience well. The first day consisted of individual assessments, including breathing analysis with Mike, Connie performing computerized acoustic analysis to determine habitual pitch levels, voice evaluation and beginning video tapes. Robbie had provided a psycho-social evaluation tool prior to the clinic, which he discussed with each participant. The second day, the hard work began. Connie and Mike both met with each participant for an hour individually to begin unraveling the mechanical issues at hand. Voices began to free up and strategies were explored and breathing blocks removed. Each person was uniquely different in their manifestations of the SD and their reactions to it.

In addition to individual work, we also had some group training around optimal breathing release techniques, laryngeal massage, and Roger Love's singing exercises. Each person was trained on a computer program which helped them visually identify their pitch level, and provided immediate auditory feedback of speaking samples. During times that they were not in a treatment session, stations were set up so that one could choose an activity of choice such as working at the computer, doing a taped relaxation exercise, reading selected stories, articles, and books, or narrating what they were learning on an audio tape. We also found that the interaction between various members of the clinic as they encouraged one another and provided feedback on their voice improvements proved invaluable.

We met as a group in the morning and evening on Saturday and Sunday to practice our best voices as we circled up and talked in a group. All five were very pleased with the increased ease in speaking in front of others and in sharing the strategies that were working for them. They were also given a choice of what to target for the last day. Some felt they needed more breathing work with Mike and some felt they wanted to work more with Connie.

There were a few highlights of the weekend that added to the camaraderie and fun which was a contrast to the intensity of our work. The first was when a delivery guy from the deli brought our lunch in. Mike and I were in sessions so one of our participants took the food. The young man asked what we were doing working on a Saturday and was told it was a voice course. When I came out to pay him, he asked, "So what kind of voices do you guys do?" to which I laughingly replied, "any kind we can.".

That evening, everyone was invited to Connie's house for a social. My teenage daughter was in and out and was introduced to everyone. As she left, she asked who all those people were. I explained that they were my voice clients and that I was helping them to get their voices back like I had. She said, "Oh, well they all sound fine to me." They were pleased when I shared her comment the next day!

On Sunday, we all went to a restaurant together. Everyone ordered their own food with ease, teased the waitress, and there was non-stop chatter and laughter the entire lunch. The waitress made the comment that we certainly seemed to have a good time together. No one overhearing us would have found anything strange or different about the voices that emerged. I was so proud of the group.

Each participant left with an armful of materials and brain full of strategies and information to use, a compliance contract, and renewed hope for continued success. Each completed an evaluation, and reported anywhere from 30-75% improvement in their voices over the weekend. Here are the testimonials of some of the individual participants:

Bonnie (Mixed SD, 12 years) "Connie definitely has a great understanding of SD, as well as the aspects that involve the throat and facial muscles. She is very sensitive to each person's needs, preferences, and feelings and very approachable. Mike is extremely knowledgeable about breathing mechanics and can find the natural voice in anyone. I feel quite confident that the knowledge and tools I have received will be all I need to continue building on the progress I made here at the clinic.

"The Voice Clinic was just what I needed to show me that it IS possible to overcome SD, and to motivate me to begin my own journey to true recovery. The detailed and specific information I received during the clinic helped me to realize exactly where my problems lie with regards to my voice production. I learned that SD is not one simple problem, but a combination of many incorrect breathing habits and other bad habits we pick up along the way to try to compensate for our "bad" voices. Connie's consistent emotional support and encouragement were great motivators."

L.S. (AB/SD, 5 years) "Both Connie and Mike are heart-centered in their work and clearly wish for the highest good for their clients. I leave this workshop feeling greatly encouraged that the skills and insights I have gained here will, with continued practice, enable me to steadily progress toward a voice that is functional under all circumstances. Connie and Mike have created a client-centered approach that is both comprehensive and highly individualized. They bring great heart and spirit to work that is much needed in this world."

Brenda (AB/SD, 6 months) "I was drawn to this clinic because Connie had suffered from SD and knew how I felt. She understood the devastating consequences of SD. She had put to use her knowledge of speech pathology and incorporated other methods, such as Roger Love's to help her overcome SD. I did not come to this clinic with illusions of returning home with a healed voice in 3 ½ days. I came so Connie could teach me the techniques. I was not disappointed. Connie is very up beat and optimistic, I had no where to go but up. She helped me find my optimum pitch and showed me how to practice. I learned through Mike that good breathing is the key to maintaining the voice. I believe I have all the tools I need to strengthen and maintain my new voice, improved 70% since I arrived."

Jay (AD/SD, 3 ½ years) "In my experience with SD, I have come to learn that breath support is crucial to maintaining an effortless voice. But it is very difficult to obtain that needed breath support when my vocal folds are tight. The Free to Speak Voice Clinic places a major focus on first freeing your breath, so that you can then produce an improved voice, and do so without effort. My voice improved 70% at the clinic."

Sarah (Abductor SD/ 7 years) "I have always felt that there must be ways of combating SD by natural means without resorting to botox injections. What is so significant about this course is that it is run by someone with personal experience of this condition who has greatly improved her voice through her own efforts. This in itself offers hope to SD sufferers everywhere. The course teaches a variety of techniques that may help improve one's voice. But more important than particular exercises or immediate benefit is the sense this course instills; that it is possible to improve one's voice by natural means. It is just a question of finding what works for you personally and putting the practice in. I am so please that I did the course as I feel that it has given me a totally renewed impetus and many tools to attack this problem."

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