Followup to the First Group - August 2005 Clinic

Followup comments are in blue

Bonnie (Mixed SD, 12 years)

"Connie definitely has a great understanding of SD, as well as the aspects that involve the throat and facial muscles. She is very sensitive to each person's needs, preferences, and feelings and very approachable. Mike is extremely knowledgeable about breathing mechanics and can find the natural voice in anyone. I feel quite confident that the knowledge and tools I have received will be all I need to continue building on the progress I made here at the clinic.

"The Voice Clinic was just what I needed to show me that it IS possible to overcome SD, and to motivate me to begin my own journey to true recovery. The detailed and specific information I received during the clinic helped me to realize exactly where my problems lie with regards to my voice production. I learned that SD is not one simple problem, but a combination of many incorrect breathing habits and other bad habits we pick up along the way to try to compensate for our "bad" voices. Connie's consistent emotional support and encouragement were great motivators."

“I cannot imagine where I would have found the unique blend of therapies found in the holistic approach and the highly specific expertise that Mike and Connie bring to the clinic. I am SO GLAD I attended because it not only helped me to see the potential in my voice, but changed my entire perspective. As for the future of my voice, I feel that the clinic provided me with the physical tools and a wealth of knowledge so that when I am able to devote the time to my voice, I will definitely make progress. I have to admit I don't feel more control over my life per se, which I realize is because I have not adhered to my compliance contract. (estimated 5-10%) I DO, however, feel drastically more control over my life. The clinic gave me such a boost of confidence and facilitated such an extreme change in my perception of myself that I really feel it was a determining factor in my decision to go through with attending college(out of state). My life is vastly improved—I feel I'm really living life, rather than passively existing and telling myself I'll do such and such when my voice is better. “ VHII decreased 33 points.

L.S. (AB/SD, 5 years)

"Both Connie and Mike are heart-centered in their work and clearly wish for the highest good for their clients. I leave this workshop feeling greatly encouraged that the skills and insights I have gained here will, with continued practice, enable me to steadily progress toward a voice that is functional under all circumstances. Connie and Mike have created a client-centered approach that is both comprehensive and highly individualized. They bring great heart and spirit to work that is much needed in this world."

Responded “yes” to Voice Intensive being a good investment and feeling more control over life and voice. Did not feel the need to use the followup support and had maintained 70% compliance.

“I truly think I have come a long way and know that I am a lot better off vocally than I was a year ago. The work I did with Connie and Mike played a huge part in that and I feel like I have a lot to keep building on. I am doing well and am pleased with my progress.”

July 2008 (almost three years later) – “I’m happy to say that I no longer feel like my voice is an impediment to living on any level, even though it can be problematic at times.”

Brenda (AB/SD, 6 months)

"I was drawn to this clinic because Connie had suffered from SD and knew how I felt. She understood the devastating consequences of SD. She had put to use her knowledge of speech pathology and incorporated other methods, such as Roger Love's to help her overcome SD. I did not come to this clinic with illusions of returning home with a healed voice in 3 ½ days. I came so Connie could teach me the techniques. I was not disappointed. Connie is very up beat and optimistic, I had no where to go but up. She helped me find my optimum pitch and showed me how to practice. I learned through Mike that good breathing is the key to maintaining the voice. I believe I have all the tools I need to strengthen and maintain my new voice, improved 70% since I arrived."

“There is no question that my voice is almost back to normal; I would put it at 90%. My voice has been so much better since attending the clinic that I have had no need for the followup support. Every time one of my grandchildren asks me to read a book to them, my voice has done wonderfully. I do truly believe that my voice is back forever. VHI decreased 60 points.

April 2008: “Your seminar was life-changing for me. I think of you and the group quite often. My voice is at 95% or better. Every now and then, if I am tired or sometimes on the phone, I may have trouble getting a few words out, but I just pitch my voice and try again and get them out. When I attended your seminar, I wanted to be able to read books to my grandchildren. I can, and they love it! You have been a true blessing in my life.”

Jay (AD/SD, 3 ½ years)

"In my experience with SD, I have come to learn that breath support is crucial to maintaining an effortless voice. But it is very difficult to obtain that needed breath support when my vocal folds are tight. The Free to Speak Voice Clinic places a major focus on first freeing your breath, so that you can then produce an improved voice, and do so without effort. My voice improved 70% at the clinic."

Jay has consulted with me for several lengthy phone conversations during which his voice was very good. He continues to experience some embarrassment in his business associations and feel a need to explain his occasional hoarseness, but has been pleasantly surprised when others comment they hear no problem. He continues to practice and has some difficulty in noise and on the telephone. VHI decreased 34 points.

Sarah (Abductor SD/ 7 years) "I have always felt that there must be ways of combating SD by natural means without resorting to botox injections. What is so significant about this course is that it is run by someone with personal experience of this condition who has greatly improved her voice through her own efforts. This in itself offers hope to SD sufferers everywhere. The course teaches a variety of techniques that may help improve one's voice. But more important than particular exercises or immediate benefit is the sense this course instills; that it is possible to improve one's voice by natural means. It is just a question of finding what works for you personally and putting the practice in. I am so please that I did the course as I feel that it has given me a totally renewed impetus and many tools to attack this problem."

Sarah returned home and let life take her over. She did comply to her program and six months later, felt she needed more work. I met with her individually for some intensive therapy, during which she captured the freedom of her good voice. Here are her comments:

“The sessions with you were like a lifeline for me. Everything you said makes sense and fits with my experience of my voice. Now I have a much clearer picture of what is important in terms of voice production and what isn't. Now I see more clearly where I need to focus my energies – particularly on pitch and resonance – and I worry less about other aspects. I still get times where my voice isn't good, but overall I am definitely improved since our sessions and also determined to continue that improvement.”

Followup to the Second Group - January 2006

Nancy - The clinic was a crucial turning point in my voice process. The time spent with Connie was crucial to unraveling some emotional glitches that were undermining my practice times. I definitely feel my life has improved. The most lasting helps were rooted in a changed attitude toward the voice disability and toward myself. I am still in the process of learning the mechanics, and when I am able to devote myself to practice, I feel progress in the voice. VHI decreased 20 points.

Marie - The clinic was an excellent investment. I have improved control over my voice, and appreciate the clinic as a whole. I practiced regularly at first, but now I no longer practice. VHI decreased 50 points; moving from the severe range of disability to no handicap perceived relative to the voice. I thought you might be interested that I met my otolaryngologist in the elevator at the hospital. She looked surprised and said, "Your voice is so much better."

After the incidence in the elevator, Marie took her doctor a copy of my book. The doctor called me and asked if I might be able to train the speech pathologists who she works with at Shands Hospital in Jacksonville. She was very interested in the approach we use. - CP

E.A. - (March 2006) Breakthroughs with increased power and range. "Thanks for creating this clinic, setting the best example and steering me toward this journey of personal growth. I am beginning to identify with you - not just intellectually, but when you say you are thankful for what this illness has done fro you. It's getting me to reexamine what is and the potential of how much deeper and freer things can be once you put your mind to it. I appreciate your dedication to what you do."

August 2006 - "As was my concern, I put my voice on the back burner about two months after the clinic and have just gotten back on the horse, so to speak. I wasn't discouraged. I just reasoned that other things took priority. I am back at it again. I haven't made a lot of progress because I haven't made practicing a regular part of my daily schedule, and this is about muscle memory. On the upside, I have figured out how to project my voice and really feel it resonate in my "mask". Aside from making practice a regular routine, I'm not staying "aware" of my voice after I practice. I just go on autopilot and revert back when I engage in conversation. I have some pretty big hurdles to clear before I see/hear definite progress. I'm glad you checked in to remind me to keep at it."

Micki

I have lived with SD for six years. During that time, I have read, researched, tried to speak differently, and tried every trick I heard of. I could not get a handle on the specific mechanical problems and how to correct them. It was like a condition with a hundred variables with no specific tests to tell what helped or hurt. Through speech therapy, I learned easy onset and soft voicing, but this did not fit my personality or profession. The Roger Love study benefited me greatly and my voice improved, but allergies caused me to lose those gains four months later. This clinic is different in that it is a holistic approach to the problem and the healing. Skilled diagnosticians were able to assess my specific mechanical problems with voice and breathing, and also understand and advise on the human factors that would help or hurt my recovery. The 3 ½ days was more like a healing and wholeness retreat for the voice than a clinic. I made significant breakthroughs with voice and breathing and know what to do to recover my voice fully.

My voice improved during and after the clinic. I then had a course in ZHT therapy designed to loosen the muscles around the vocal cords. This also helped. My voice was improving steadily UNTIL the end of May, when several prolonged stressful situations hit all at once. I was under stress from a big project, a heat wave that lasted all summer, and personal family stressors (taking in a troubled teen and her mother for a month). My breathing deteriorated and my voice practically disappeared. (When I first developed SD, I was also under several prolonged stressors.)

Through hair analysis and saliva tests for adrenal stress index, I was diagnosed in the 7th of 7 stages of adrenal fatigue. I began mineral, herbal and hormonal supplementation, as well as lifestyle changes, to take the stress off my adrenals and build them up.

My voice has come back, and the quality seems to parallel the degree of calmness I feel. On good days I feel very little handicapped by my voice. I have used the techniques I learned to increase resonance and allow air through my nose. However, when my anxiety rises, my breathing gets fast and shallow, and my voice goes also. I see this mainly as a challenge to improve and maintain my physical health and balance.

Connie's original instructions to me were Resonance, Release and have more fun. (I rolled this into R&R for short) and to unstick myself.. I went back to work and got mired again in stress, which took its toll. Connie's intuitive diagnosis was confirmed by lab tests and the orders were the same - destress my life and have more fun.

Followups to the Third Clinic, June 2006

June 7-11, Apollo Beach, Florida. We had an incredibly exciting mix of individuals for this clinic, including several attorneys, a singer/song writer,  and a speech pathology major. The group solidified and provided excellent support and encouragement throughout the clinic. As promised, we addressed not only mechanics of voice and breathing, but attitudes, beliefs, life-style, nutrition, posture, strategies, and spiritual avenues. We had intense work as well as fun times together. The testimonials of the participants tell the story well.

Janet: Adductor SD (9 years) It is a blessing to work with a Speech Pathologist who has been there and has struggled with the grip of SD. She is encouraging, a great coach on what particular strategies may be the most helpful, especially how to optimize what voice one can utilize in the present. She has developed an excellent protocol of disciplines to provide a holistic approach and assembled a great team to help one effectively progress to one's own voice. My voice improved 80% during the clinic.

I now have better confidence and peace with my voice and recognize it as a "barometer". I know I can continue to improve. Life stressors have kept me from complying with the program of exercises I was given, but my voice is moderately to significantly better than before I attended the clinic.

John Paul: Adductor SD (5 years) The Free to Speak Clinic is a breath of fresh air for those who are struggling with Spasmodic Dysphonia. A cornerstone of the clinic is that Connie, a veteran speech pathologist, is herself a SD survivor. Since the prevailing though in Western medicine is that SD is a neurological and therefore an incurable voice disorder, the irrefutable fact of Connie's full recovery -- of both her speaking and singing voice -- gives clinic participants inspiration and profound hope. But the clinic is in no way a one woman show. Connie has assembled a first class team with expertise in the areas of breathing with Michael White as well as neurolinquistic programming/neuromuscular therapy and psycho-social assessment. I found all (facilitators) to be caring, compassionate and committed. Another component of the clinic is the opportunity to interact with fellow participants in a safe and loving environment where one can learn, share, and experiment without fear of sounding or feeling foolish. Finally, the clinic has an element of Christian spirituality to it that I personally found meaningful. While nothing is shoved down anyone's throat, it is clear that Connie's faith in God was the basis of her recovery and she is comfortable sharing her journey in that context. If you are a SD sufferer who has tried everything else to no avail, then I highly recommend and strongly encourage you to consider the Free to Speak clinic. You will acquire all the skills necessary to overcome Spasmodic Dysphonia and leave with a plan of action to continue your recovery.

JP reports feeling more control over his life and his voice since the clinic. He appreciates having a structured program with which to work on his voice, but that compliance has been low (at around 5-10%). He did not utilize the DVD and rates his voice just slightly better than before he completed our clinic. VHI score decreased 16 points.

Dwight: Adductor SD (20 years) A great opportunity to learn techniques and strategies to significantly improve or cure your SD in the long run with continued practice.

Reports no significant change in voice quality at six months but states that the clinic was a good investment and a good experience that helped him to have a better attitude and feel less handicapped by his voice (and secondary dysfluency). VHI score decreased 18 points. He rated his compliance at 50%.

Leslie: Adductor SD (5 years) I am supremely grateful that I was able to attend this (clinic). The atmosphere was very encouraging. We had wonderful workshops and excellent private sessions. The dynamics of the other participants provided a rich dimension. We were all supportive on one another. The stage was set for each of us to have our eureka moments, the times we discovered the voice that we thought was lost. We rejoiced in the midst of our problem. I am leaving wi6ht the tools I need for complete recovery. I go rejoicing.

Leslie’s followup is complicated by the fact that she completed the clinic while under the effects of a botox injection six weeks prior. She was able to prolong the time until her next injection to six months and decreased her dose. Her hopes are to continue to go for longer periods between botox and injections, and to be botox-free in the future. She continues to do the program exercises and uses her followup with Mike and Connie to help her to achieve her goals.

Randy: Adductor SD (9 months) Connie provided exactly what I wanted - specific instructions that I could continue to use when I returned home, encouragement from her own experience that this condition can be overcome, and an experience in which I felt that it mattered to Connie that I get better. She made every effort to see that each of us received more than what we paid for. Her vivacious and warm personality was contagious and set the atmosphere for the entire clinic (experience).

Lost to followup.

Lidia: Adductor SD (2 1/2 years) It far exceeded my expectations. This weekend I had a breakthrough. I found a confidential voice (with Connie) and with Mike, found  that elusive singing voice that I hadn't had for a long time. This clinic is the best because it includes so many aspects, it's the mental and the neuromuscular piece that flowed into the breathing piece, which flowed into the speaking piece. It all came together in a very supportive environment.  Now I begin my quest and my mission with my speech pathologist in Canada. You guys are coming to Canada!

Lidia’s VHI decreased 28 points, moving her from the Severe range of handicap to the Moderate range. She rates her current voice quality as significantly better than it was prior to completing the clinic. She continues with good compliance and has taken advantage of the followups with Connie and Mike.

Long Term Followups – May 2007 Clinic

Jill – Adductor SD 18 months (2 botox injections)

Jill had heard Connie speak at the Tampa SD Support Group along with her physician husband, and decided she should try this approach instead of continuing with botox. She reported that she had been practicing exercises in the book, Free to Speak: Overcoming Spasmodic Dysphonia, several hours per day in the months prior to the clinic and had experienced significant improvements.

"The group dynamics provided the benefit of fun interaction, support, and camaraderie that were invaluable. The common denominator was our voice dysfunction and only that. There is an enormous enrichment one gains in many other aspects of our human condition. There is a positive approach and certainty given to us by our teachers and fellow participants that we will improve and heal. My voice improved 70-100% throughout the clinic. Perhaps miracles do happen and I’ve had my last botox injection."

“The clinic was a good investment in that I received a plan of vocal and breathing exercises. My compliance has been only about 30% and I have not viewed my DVD or taken advantage of the free followup yet. Therefore, there has been no significant change in my voice. I believe this is directly related to the fact that I forget to do my exercises and I need to be more disciplined in order to make an accurate assessment. I have not resumed botox injections because I feel I need to give the program a chance to work by improving my compliance.”

Donna – Abductor SD 7 years; s/p bilateral silastic thyroplasty 3 ½ years ago, vocal tremor

"I learned that emotions play a big part in the quality of my voice and that I CAN practice breathing and voice techniques that make my voice better. A positive attitude is paramount. I can learn to be mindful of giving my best voice each time I speak.

"I would encourage any person with SD to attend this clinic. It was extremely worthwhile in improving the quality of my voice and perhaps more importantly, in changing my attitude so that I’m realizing I can improve my voice through practicing the skills I learned at the clinic. I am very optimistic about re-gaining my normal voice, and even improving that. Voice improved 50%."

“The clinic was a good investment as I know have the tools and techniques to practice to improve my voice and hope that it will continue to improve. My compliance has been around 30%. The DVD was extremely helpful by reminding me of what I should be doing and how much improved my voice was by the end of the clinic. My voice is moderately better than before I attended the clinic.”  VHI decreased 36 points.

Bob – Adductor SD 2 years

Bob had read Connie’s book and taken it to his local speech therapist. They had been working through the exercises together and he had experienced some significant improvements, yet felt that the clinic might yield more rapid progress and a more comprehensive program. He was a good encourager to the more severe cases by telling them that his voice sounded just as bad before he started his voice therapy.

"The whole experience was great. The group setting to me was the best way to understand and work out the problems. Working in a group with similar conditions helps put one at ease and promotes the healing process. Connie and Mike are great to work with and fun. They keep the mood light, which is very important. They are a wealth of information, new ideas and help. The breathing development is so important and the biggest help in my recovery. They good voice was in there. I just had to bring it out. Voice improved 90%”

Bob experienced some major life stressors in the months following the clinic. He was unable to resume his speech therapy.

“I realize that stress is a major factor with my voice and am working to control that.  I know that my good voice is in there. I just need to find the key again. My voice is slightly better. The DVD is helpful in that I can hear how much my voice improved at the clinic.”  VHI decreased 5 points.

Bob’s feedback at one year was markedly different. He reported much more control over his voice, with much less effort. “The voice clinic was the best thing for me. It let me know the good voice was there. I just had to work it out. I have been 60% compliant and my voice is significantly improved.” VHI decreased 44 points.

Laura – Mixed SD 6 years
As a Christian Science practitioner, Laura faced the challenge of allowing herself to be here to receive the voice and breathing training we offered. She gained the following insights at the clinic:

"It is ok to be here and I deserve to be able to do this. Good is available in many different forms, under many different names, but it is all the same Mind at work. Using a variety of activities and developing skills – physical and spiritual – is a many pronged approach – a more effective way to achieve the goal.

"I learned practical ideas to take and use, sympathetic support, a family atmosphere among participants and beautiful and relaxing off-campus accommodations. I would have liked more time just because it was warm and fuzzy and I made daily progress. I know that with what I have I can continue to make progress."

Almost two years, after the clinic, Laura apologized for being one of our “disappearing participants.” We often wonder why people are lost to followup, so we were pleased to get her delayed report.

“I admit to not following all the exercises diligently. But I have exercised my dominion by deciding to answer the telephone and do my own calling. I have noticed that my voice gets worse when I am in high stress situations and then relaxes when I am more relaxed. One thing that is consistently true now is that the wall that used to be in my throat blocking both breathing and speaking is now always down. As a result, my voice is getting stronger – I even sit and read to my grandchildren. As I use my voice more, the easier it is to keep using it. I am finding that breathing is behaving itself more too. I think what was more valuable for me from the clinic was simply learning how my voice and breathing should be acting. Now I can monitor them and make adjustments when I catch myself off base.

July 2009:  Laura continues to experience success. "I am constantly getting comments about how much better my voice is now. I had finally decided that "yes, I can talk" and that is what allowed me to mentally let go fo the embarrassment of talking 'not well'. When the SD flares up is when we need to not give in is how I see it. When the SD started there was a constant little voice that kept saying 'you can't talk' and yet I was still talking just fine until that message took over. Now my mantra is "I CAN TALK and I know it." When I am in good conversation under good circumstances with low to no background noise, with those whom I enjoy, then there is no effort and I forget to even make an effort and my voice is 100%. On days when I have worked hard and am tired physically and mentally, the voice is more of an effort but at least I have the tools so that I do not lose my voice entirely. It was a year after the clinic when, through prayer and the realization that I do have the capacity to speak clearly. As a matter of functionally, I'm close to 100% - still working on perfect tone and pitch and projection."

December 2010: Connie I love hearing about your work and the things you are continuing to learn. I’m finding the same things to be true – immersion in work that I love leaves me free to speak without inhibition. I think that the love is the key. And fretting over the raspiness or strength is just a downward spiral. I’m also noticing that walking, or any other exercise that gets me standing up straight and tall (like ice skating) and breathing properly is also a tremendous help.

Just to illustrate how good my voice is getting, I was recently nominated to be the First Reader at our church. Keep up your good work. We love you for it!

Long Term Followups – July 2007 Clinics

Esther – MTD 8 years, s/p medialization of vocal folds, vocal fold paresis, traditional voice therapy.

"I feel so blessed to be able to come to this clinic. I have been struggling with muscle tension dysphonia for 8 years and this clinic has really helped me recover in various ways. I experienced significant changes not only in my voice, but also in my whole being; mind, body and spirit. I still have work ahead but now I finally feel I have the tools needed to end my journey with MTD. Voice improved 75% during the clinic.

“I feel I have more control over my voice and my life. For example, I’m using less effort to speak, I feel more comfortable using the phone and speaking to people. I feel people can hear and understand me better. The voice intensive made me realize the need to make some changes in my life in order to improve my voice. I have taken advantage of the followup and been 70% compliant to the program. My voice is moderately better at this point. A longer clinic with more sessions would be helpful.” VHI decreased 40 points.

Debra – AD/SD 15 months

“This voice rehabilitation clinic was so well organized and it gave me the hope and “encouragement to overcome my SD. I was told by an ENT doctor that my voice disorder was incurable and that the only form of treatment for me was botox injections into my vocal cords every three months for the rest of my life.

After researching for a more holistic approach to this disorder, I found myself enrolled in Connie’s clinic. I can’t thank Connie and Mike enough for their knowledge, determination, professionalism, and overall attitude that a person with SD can, in fact, overcome this disorder with the proper guidance, support, faith, and techniques of voice and breathing needed to find your natural voice. I knew I was determined to overcome this disorder, but I never expected to find my voice again so soon. Thanks to Connie and Mike for giving me back the hope that was taken away from me by my ENT doctor, to regain my voice at your clinic, and having me focus on what I needed to “free my voice. Compared to three months before the clinic, when I could barely speak at all, my voice has improved 100%. I now have a clear, effortless voice.”

“My voice has most definitely significantly improved. It was a great investment. I have viewed the DVD which was helpful, taken advantage of followup by email and I think you guys should keep doing what you are doing. You are great!” VHI decreased 50 points

July 2009: Two years after the clinic, Debra's voice continues to be functional 100% of the time and she visited recently to demonstrate this to me. While she feels difficutly in speaking at times of stress, she realizes that it is just about adjusting the breathing and focus and the voice is consistently there. Her VHI decreased again and is now in the No Handicap range. 

"I am thankful everyday for the changes you brought to my life I no longer that medication for anxiety because of voice problems while teaching. I remember standing in front of my students with sweat rolling down my back because of having to try to speak before your clinic. That is no longer an issue thanks to you and Mike. I have realized how much a part stress plays in how my voice is working, so I have worked to calm down my life No one ever notices or comments on my voice, and it's so great to meet new people who have no idea I ever had a voice disorder."

Peter – AD/SD 15 years – botulinum toxin injections twice yearly (Dysport) for 11 years

Peter is on staff with the Dystonia Society of Scotland and had read Connie’s book and heard her speak at the Dystonia Society of London in May of this year. Peter had learned a variety of “tricks” to help him through the times he was unable to have injections. He was allowed only two shots per year, so the time in between could be difficult. He plans to submit an article on this approach and his success to the U.K. Dystonia Society magazine.

“I have lived with Spasmodic Dysphonia/laryngeal dystonia for over 15 years. I was optimistic that the clinic could help me, but apprehensive too. I have been greatly impressed by Connie Pike and Mike White both by their professionalism and their sensitivity. The programme has dealt with general principles needed for recovery of SD/LD but has also been tailored to deal with my individual symptoms and to create a recovery programme specifically for me. There has been a significant improvement in the quality of my voice and I am hopeful that this improvement will be sustained and improved. I have no hesitation in recommending the clinic to anyone who is seeking either an alternative to botulinum toxin therapy or a complementary therapy to it. Voice improved 75% and breathing became freer and fuller as a result of the clinic.”

“Yes, I have improved control over my voice and my life and consider the clinic a good investment. I now have a tool kit to dip into as problems occur. Compliance has been 80% and my voice is moderately improved.” VHI decreased 32 points.

Rebecca – Mixed SD 3 years, traditional voice therapy, ZHT

“When I arrived at the clinic, I spoke just one or two words at a time and that was difficult, exhausting, and hard for others to understand. I have more work ahead to really integrate what I’ve learned, but today I am speaking full sentences in a mostly clear voice. It’s so much fun to talk again. I especially appreciate Connie and Mike’s holistic approach and the care and empathy they’ve given each of us. Their technical expertise and knowledge is superb. They know what they’re doing and their confidence gave me confidence in myself. The group setting and the total immersion helped make this clinic successful. I felt so much support from the other participants and we had a lot of fun together. Voice improved 40% and my whole body feels more open and larger with regards to breathing.”

January 2009:

Sorry it has taken me so long. It has been hard to face my disappointment. Also, I believe the work you are doing is good and do not want to discourage it. But for me, it didn’t work. I did the exercises religiously for 4 months during which time my speaking steadily deteriorated.

A year ago, I tried botox for the first time. It worked for two weeks during which I could speak softly, very easily, and quickly. Then my spasms started to return at which time I started speaking on inhalation. In a couple of weeks, I was speaking quite easily while inhaling and have dropped my exhaling speaking almost completely, except for practicing.  I tried botox two more times but it did nothing but give me a bad sore throat.

I get by with inspiratory speaking – people often tell me I am speaking much better. But I consider that like telling someone on crutches they are walking good. To me, I figure I can’t talk at all. I’ve also lost my ability to sing and had to leave the choir I loved.

I have not completely abandoned hope and try to keep listening for what the universe is offering. I wish you all the best.

EM – AD/SD 3 years

“50% voice improvement, deeper and longer, less intentional breathing patterns, discovered the ability to speak clearly and project the voice.”

“ I returned from the clinic with a better understanding of what was going on with my voice and how my body was reacting. I felt that I gained a little control over my voice at the clinic that stayed with me. I have just begun to do the therapy on a consistent basis and hope that will result in more control as I go along. The clinic was a good investment, not only for the education on breathing and voice, but also for the interaction that it facilitates among people with SD. Even without continuing the exercises, I feel the clinic was a good investment. The lessons with Connie on Voiceprint were helpful. The visual feedback was great. Connie and Mike pointed out specific areas that I needed to focus on and the feedback was very helpful. It also helped me become more accepting of my voice. I did not comply with the program until about a month ago. Now I am close to 100%. I have not taken advantage of the followup or viewed the DVD yet. My voice is slightly to moderately better at this point.” VHI decreased 35 points.

Lisa – AD/SD 24 years (approximately 98 botox injections, SLAD/R (failed), s/p silastic thyroplasty 3 years prior)

Lisa was finding less and less relief from her botox injections and had switched to myobloc as Botox lost it’s effectiveness. She had purchased Connie’s book and had been practicing the exercises for several months prior to the clinic. She felt the clinic experience resulted in a 50% improvement in her voice.

“I wish I had known about this approach before any surgeries. I don’t have to be fearful and my voice is not as much of a handicap as I think. Connie and Mike have designed a thorough, holistic approach to overcoming SD. Connie is an inspiration to anyone who wants to improve their voice. She knows exactly how you feel and what you are going through. Mike is a brilliant breathing coach who can teach lifelong good habits for overall health as well as improving voice. Every aspect of my life was affected by SD, and Connie knew that and brought in expertise from different fields. They used singing to getting over the fear of videotaping and recording the voice, used a computer program to assist in achieving goals. You can feel the passion they have to help others in all they do. They have thought of everything, including a counselor to help change negative thought processes that keep you disabled and a massage therapist to help relax muscles. I felt comfortable and did not ever want to leave Connie’s home and family. We even had a karoke party with her family signing backup with us. I’ll never forget the love I felt. This experience has changed my life forever for the better.”

“I now have improved control over my voice and my life. The clinic was a good investment. I have taken advantage of followup by phone and email and have been 90% compliant. My voice is moderately improved.” VHI decreased 44 points.

Ruth – AD/SD with intermittent symptoms for 3 years, but diagnosed 3 months ago

“This clinic has been extremely helpful. I have gained new insight into my abilities and feel that I can let go of the fear. I feel that I have been given the tools to regain my voice and with hard work on my part, I expect that to happen. Mike and Connie’s coaching were invaluable in giving me support to let go of my anxiety and find my voice. I’d highly recommend the clinic to anyone with SD.”

“I do feel that I have improved control over my voice, which also has improved my control over my life. Before, I was letting my voice control me; avoiding people – including family members and hiding from my voice problem. I was scared, but it did me a lot of good to just bite the bullet and tell myself that you have to do something to fix it – no one can do it for you. The clinic was an extremely good investment. Not only did I acquire the tools to help my voice, I realized that I’m not alone. There are other people like me struggling with SD, and I made some lasting friendships at the clinic. The group dynamics were wonderful. I have been about 40% compliant and have not taken advantage of the followup, although I am not sure why. My voice is moderately improved.” VHI decreased 37 points.

Jann – AD/SD 1 ½ years

“The clinic is phenomenal. Every aspect of SD seems to have been addressed. Just to be aware of the many ways we can help ourselves by using all the tools provided at the clinic gives so much hope. We all have been so excited and encouraged by our progress. Both Connie and Mike have tremendous knowledge in their areas of expertise and they zero in on each person’s individual needs. This holistic approach makes total sense – the body will heal when given the chance. Connie is proof. She has been there and has a great sense of understanding of all aspects of SD. The support and connection with the others has been wonderful and a very important part of the experience. We have had joyful times to relax around each other and just be ourselves and connect from a comfortable place within. It is an empowering, well-rounded program.”

“My voice is really about the same. I thought I could return to work after the clinic but have gone on disability. I still feel the clinic was a good investment and that my voice is in there, I’m sure. I was compliant for the first 4 months, but my voice felt strained, so I stopped. The video was helpful and the clinic was well thought out. I have had some encouraging emails from fellow participants and realize that I was putting too much effort into my exercises. It was exhausting. I became overwhelmed and worried. I am going to try to incorporate a small amount of practice everyday and back off when I feel strained.”

Ron – AD/SD 1 year (2 botox injections)

Ron had a long history of episodic spasmodic torticollis since 1988. He had been successful in managing it with physical therapy and biofeedback so thought the clinic would be a good option when he was diagnosed with SD. We were all amazed at Ron’s singing voice and the awesome resonant sound that would come and go in his speaking voice. Getting control seemed elusive, but overall, Ron felt his voice improved 25%.

“This clinic was an amazing experience. The instructors were dynamic, engaging, and very attentive to individual needs. I had a productive and wonderful time interacting with others with the same condition.”

“I feel improved control over my voice and my life. About three weeks after the clinic, I panicked that I was not going to be ready to go back to teaching in the fall and had a botox injection. It caused breathiness and weakness for over four weeks. It set me back on my rehabilitation until the effects wore off. I was then able to work toward recovery using the methods from Connie and Mike. I estimate that I am about half-way through my recovery now. I am having longer periods of good voicing. I have taken advantage of email followup and viewed the DVD. My compliance is currently at 80%. My voice is moderately improved. The overall balance of therapy, breathing and psychology seems right. The holistic approach is key, as every element has been helpful.” VHI decreased 41 points.

At almost one year, Ron’s experience with his voice recovery was remarkable. An email from 6/30/08 summarized this well. “My voice is at about 95-100%, continuing to improve. What I absolutely love about this voice is that I’m sensing that it is better now than it was BEFORE the dysphonia. I notice how lively the voice sounds now, and how expressive it is at a range of levels, tones and cadences. I’m having fun with my voice in ways that I never even thought possible. The process of “slowing down” has been key to my overall neurological makeover, including the neck. Also, I have been so much more aware of proper breathing that I now integrate it effortlessly into my daily life, without doing any formal exercises.”

July 2009:  "What is interesting to me is that when my voice is in the 100% range, it's better than I ever remembered it being before the onset of SD. And even when it slips a bit, I still have really good resonance. I think a lot of our concerns about how our voices sound comes from being more in tune with our voice mechanics, which is a very good thing. I pay more attention to other people's voices, and based on that, I would rate your voice, Connie, and mine as among the best I've heard, when the vocal cords are performing at the top of their ability"

April 2010: “My voice is the best it has ever been – and I mean prior to the dysphonia. I did have to overcome some slippage with the voice; some increased hoarseness and tightness that lasted for a few months late last year and early this year. But now, in the middle of one of the most stressful periods for me as graduate director of our Department, where everything has come due, and in the midst of working on two book projects, my voice has an energy and vitality that I’m very proud of.”

See Ron's YouTube Video at http://www.youtube.com/watch?v=iXGsAsGV1S8

Followups from May 2009 Clinic

Brenda: AD/SD 15 years:  regular botox injections 10 years, voice therapy

My voice improved 30% at the clinic, with improved voice quality and the ability to self-correct. The breathing training helped my chest to be more open. Connie provided an opportunity to investigate and learn about my whole being. Mike’s work on breathing contributed a vital part in helping me understand the elements which were detrimental to voice production. These techniques work!  Talking with Robbie about my psychological profile was extremely beneficial. The massage with Christine after gaining all of the other insights helped me to understand my areas of muscular tension. All of these services combined explain why Connie’s approach to SD is structured for success. She is extremely knowledgeable, empathetic, sincere and open. She shares her ideas freely and ensures questions are answered. It is a journey and this clinic is the perfect beginning.

May 2010 - Brenda did not return the feedback but emailed that she had not improved significantly and was planning on returning to botox injections, which had served her well for 10 years. She persisted with the program, however, and at one year, she had not found it necessary to resume botox injections and her VHI-30 had decreased 37 points.

PM– AD/SD 10 years: Cooper’s DVR two weeks in 2006 and 2008

My voice improved 50-80% at the clinic. I experienced amazing improvement in my voice for a great deal of the time, with some periodic relapses, never as bad as before I came. I improved significant breathing from my stomach instead of my chest and more relaxed breathing while talking. I have used other resources to try to improve my voice quality, but at best, they resulted in temporary improvement. I believe this is because they did not take a comprehensive approach to the issue. Connie’s clinic is very different in that it deals with the voice issues directly in addition to breathing issues and psychological and emotional issues. The clinic provides help in a very nurturing, compassionate environment. Connie and Mike are incredibly helpful, and the bonding experience with the other participants is a very important and helpful part of the process as well. I highly recommend Connie’s clinic to those who are serious about improving their voices.

PM reported more control over his voice, but not yet completely satisfied. “My voice was best right after the clinic and I have good moments and days, as well as bad voice days. At least I feel like there are things I can do to help bring the voice back. I am glad I went and feel it was worth the effort and cost. I wish there was a more formal, in person feedback session with Connie and Mike. Breathing instruction has had the most lasting impact and feel that breathing is the most important aspect to long-lasting improvement in my voice. My compliance was 80% just after the clinic and declined to around 40% by 7 months later. The follow-up video was helpful. My voice is moderately improved.” VHI not returned.

Arlene – AB/SD 6 years: 1 attempted botox injection, brief consultation with Morton Cooper, yoga

I learned how important breathing and posture are in order to improve my voice. I learned among many things not to breathe out most of my air before speaking. The clinic was wonderful and my voice improved 50% overall. Connie and Mike provided the tools necessary to overcome SD. It was done in a caring and positive manner, integrating many aspects. They have given me my voice back and for that I am grateful.

Arlene was unable to maintain the gains she made at the clinic, reporting back that she felt only slightly improved 8 months later. She reported somewhat better control of her voice and felt that the clinic was a good investment for her voice and her life. She estimated about 20% compliance to her program and had viewed her video, finding it helpful. VHI had not improved.

Susana – AD/SD 3 years:  voice therapy, two botox injections, sacrocranial stimulation, parasympathetic injections, bioenergetics

My voice improved 95% at the clinic, the spasms disappeared and I spoke fluently. I experienced more air, relaxation and more ease in speaking. The clinic gave me the specific and powerful tools to improve my voice and get into the right groove. Already, this has changed my life deeply. I’m back in my life. The knowledge, care and love of Connie, Mike, Robbie and Christine made a huge difference and has allowed me to keep going. Thank you so much, very deeply.

Susana reported improved control over her voice and her life and rated the clinic as a good investment. She reported 70% compliance in the beginning, but later stopped practicing as she felt her voice improved when she stopped worrying about the exercises. She viewed her video and found it helpful.

“My voice is moderately improved. There have been times during which I have spoken normally for up to 12 days. I couldn’t believe it, and thought I had recovered my voice completely but for some reason went back to where I had been. I can keep generating a normal voice when I am speaking to big groups or someone I know is a leader. I don’t know why I can’t keep generating that.” VHI decreased27 points, moving from the Severe to the Moderate range of handicap.

Sharon –AD/SD slow onset since 1994: short term voice therapy, botox injections every 2-6 months from 1997 until May 2008, yoga, chiropractic, voice lessons two years, and nutritional support and supplementation

My voice improved 40% at the clinic. My breathing improved in that I experienced less tension in my solar plexus area, building a foundation and less throat tension, and experienced periods of easy speaking. I highly recommend this clinic. Each case of SD is different and Connie and Mike evaluate each person individually and design strategies to overcome the obstacles. Robbie’s evaluation showed me weak areas in my temperament that I can change to help my recovery and my life in general. The group experience is invaluable. Being with others who understand and are experiencing SD is very healing. I have a lot of tools now and can contact Connie and Mike to help me through any “stuck” areas. I now know with certainty that SD can be overcome to the point that it no longer interferes with my life. God Bless!

May 2010 - The clinic was a good investment and gave me more control over my voice and my life. I have been 85% compliant and followed up with Mike in North Carolina in September four months after the clinic. My voice is slightly better, but I have begun to work with an Alexander teacher and am working on unraveling tensions and see this as a vital piece for me. The clinic was a vital piece of my recovery, but I needed further help. VHI-30 score decreased 17 points.

JULY 2009 Followups

JM: AD/SD 8 months:  no prior treatment
My voice improved 80%. I changed my breathing  to belly breathing and found my pitch and focus in the mask. I had fuller breathing and better pitch. The expertise was exceptional. Connie and Mike provided the tools to help me “find” my voice and maintain it. The other attendees were absolutely necessary for encouragement and support. One has to have the will to improve, to get better, to have control of one’s voice. The tools are here – use them!

My voice is slightly better, and fluctuates, depending on the situation. I am more aware of what I should be doing and more confident in speaking. I know I can do better! Compliance has been around 50% with a set back after knee surgery. VHI-30 decreased 11 points.

Johnna – AB/SD 4 years: Botox injections Fall 2007 until 2008; some worked but most did not, voice therapy, acupuncture, herbal treatments

When I came to the clinic, I was only whispering. Now I’m not whispering and my voice has more resonance. My breathing and voice were not working together. I had no breath for speech. I would almost hyperventilate. I would recommend Connie’s clinic to anyone with a voice problem. I was at the point of no hope with SD and Connie, Mike and the other clients gave me the encouragement and belief in myself that I could regain my voice. Connie and Mike gave me the tools I will need to complete my journey back to a wonderful voice.

The clinic has allowed me to meet the challenges of my voice head on. Before the clinic, I wouldn’t mingle with co-workers or go out of my way to have a conversation, but now I do. I still don’t have the control over my voice that I want, but it has improved, and over time I believe it will get better. I would do the clinic all over again, it was a good investment. My quality of life is much better. I know that I can’t give up. I will keep working to improve my voice. It is moderately improved. VHI-30 decreased18 points.

Betty – AD/SD & MTD almost 2 years: previously recovered her voice at the end of the September 2008 clinic but slowly lost it to a whisper.

On Saturday of the clinic, I saw the light and felt the shift. My voice fluctuated from 20% to 80% improved over the week. I left the clinic with a fully functioning voice in September 2008. I was overjoyed and thought I was “cured”. When SD crept back into my life later in the year I PANICKED. I had forgotten the tools I learned at the clinic and lost touch with my core. I even forgot that my voice was still inside me…. I was struggling. I don’t think that Connie and Mike have many people return, but that is what I decided to do. Connie helped me realize and accept the probability that SD will perhaps always be in the background for me, but I don’t have to let it take over. Mike helped me get in touch with my core again…stay grounded. I have given myself permission to speak freely once again. Thank you, Connie and Mike and the wonderful supportive group this five days of the clinic!

My voice has significantly improved. I am mindful of the process daily. I developed a positive, fearless attitude and it was a good investment, giving me more control. Voiceprint was my favorite and I use it daily. VHI-30 decreased a total of 40 points.

November 2009 Followups

Jaya - Hyper-functional voice, laryngeal dysfunction, possible AD/SD 3.5 years:  Speech therapy, homeopathy, osteopathy, acupuncture, massage, private consultation with Connie in June 2008, February and September 2009Recently began work with an Alexander technique teacher and decided to attend the intensive clinic.

In April 2006, my voice started to deteriorate. I saw numerous doctors and specialists who attributed it to stress. I tried many treatments over the years and still no voice. I saw Connie in London in June 2008 and she gave me a lot of hope and encouragement and the necessary resources to start my journey of voice recovery. The past 18 months my voice has become so much stronger but my breathing was still amiss. Coming to the clinic has been very beneficial. I am so very grateful to Connie and Mike for sharing their knowledge and all the great tools they have given me to recover my voice. It has been supportive to share and help fellow participants in a loving environment. I know that I still have work to do, with discipline yet being easy on myself. I can speak freely and easily with confidence and joy. It has been a valuable five days of reclaiming myself. I would highly recommend the clinic to anyone who suffers a serious voice condition.

September 2010 – “I am much better with my confidence since the clinic. I value how I have changed my mind set about going back into the world again and it has been a real blessing to teach yoga again. I look forward to the time when I can go into a noisy place and feel heard without straining. Overall, I feel great improvement. Thank you so much, Connie. Keep up the fantastic work you are doing.” Jaya rated her voice as moderately to significantly improved although her VHI did not significantly decrease since the clinic. She had experienced a 30 point decrease after working with Connie privately over a 15 month period (several appointments in London). When asked, she was puzzled, and stated, “hummmm... I don't think I feel as *handicapped*. But I do still have moments when it’s awful! Not as often I’m pleased to say ... I definitely feel more confident since the clinic, a lot more!! Hence my starting to teach again ;))) Noisy places are still a bad place, I feel like I go 10 steps backwards “ Jaya had not yet viewed her DVD from the clinic and I encouraged her to do so to accelerate her progress.

Gopali–AB/SD 33 years, diagnosed at St. Vincent’s Hospital in Syndey, Australia at age 23 but with problems beginning at age 12 attributed to “nerves”: Speech therapy, Botox injections for 13 years, with average improvement for 5 weeks of the 12 in between injections, acupuncture, Reike, herbs, fasting, meditation, yoga, voice rest ( Had discontinued botox 18 months prior to attending the clinic).

I found the clinic to be an absolutely amazing and healing experience. Everyone who participated had their own unique insights to share and gave so much support to each other. Connie is a deeply caring and personal lady who gave us all so much of herself, constantly going the extra mile and inspiring us at every step. Mike has a wealth of knowledge and tricks to share, always searching for the techniques to help each individual voice. I did not attend expecting my voice to be miraculously cured, but to receive ideas and strategies to use for my on-going rehabilitation. I have complete hope this can happen and am really looking forward to exploring all the different tools I’ve been given and where they take me. Being with others who understand and share the condition was a great way to get over a lot of my fears around using my voice. I leave with GRATITUDE.

October 2010 – Rated her voice as only slightly better, but “I have been fully recognized as having a disability and can now receive a disability pension which makes me feel acknowledged and gives me more time. There is an occasional improvement in control over my voice when all elements are in place; correct breathing, focus and mood. The clinic was an unforgettable experience full of support, acknowledgement and helpful strategies. I loved the whole experience. VHI had decreased 21 points.

Nicole – Hyperfunctional voice, MTD; possible psychosomatic issues 2 years: Voice therapy, medication

This clinic was life-changing! No matter the severity, mild or severe, the instructors give you the tools needed to not only find your voice but confidence. For me, confidence is the key! The group setting and one to one instruction with the “holistic” approach was the key and was different from anything I have heard of or researched. I truly thank Connie for creating and giving such a beautiful gift to others.

September 2010 – “There was definite improvement in my voice after the clinic. My fear is no longer prevalent. The clinic does a great job – I would incorporate even more ‘out of the box’ techniques and focus on root cause as well as functional aspects. I wonder why I can speak 100% in one setting but not another. This implies the mechanics are ready to work but something mental is not allowing a full voice.” Nicole rated her voice as moderately to significantly improved and VHI had decreased 42 points.

Dale – AD/SD with first symptoms in singing voice 1980’s, affecting his speaking voice in the early 1990’s, formally diagnosed with SD 14 years ago: botox injections for several years post diagnosis, 4 weeks DVR with Dr. Cooper in 1997, resumed botox injections for the next 10 years due to the demands of his teaching job. Upon retirement from teaching, he read Connie’s book and experienced improvement using the suggested exercises and decided to enroll in the clinic.

My voice improved 80% at the clinic. I was able to find my middle voice, my real voice, and begin to use it beyond “practice” and into conversation. Mike helped open up my breathing so it was deeper, more natural and less forced. Having struggled with SD for over 18 years, I had tried a variety of approaches to finding a resolution to my voice problems. These included botox injections and DVR with Cooper. However, it was Connie’s “Free to Speak” Clinic that put all of the pieces of this complex puzzle together. The clinic helped coordinate the mechanical, breathing and psychosocial components to find my real voice. Connie and Mike do not provide a cookie-cutter approach, but deal with each person as an individual. The support and encouragement of others who are struggling with SD is a valuable part of recovery.

If you are dealing with SD and are looking for a way to recover or improve without botox, I highly recommend this clinic!

October 2010 - “The clinic was a good investment. Learning to relax during phonation and use airflow properly were the most lasting helps. I took advantage of the feedback, was 75% compliant, and viewed my DVD. It allowed me to go back and hear my good voice. My voice is moderately improved since the clinic. “ VHI had decreased 36 points.

January 2010 Followups

Betty – AD/SD, MTD 18 years:  No formal treatment, no medications. History of counseling and alternative treatments including Reike, relaxation techniques, vitamins and supplements, and some hypnosis.

I had a brief bout with childhood stuttering as well as a history of periodic classroom stammering.  My onset of SD is associated with uncovering repressed emotions in 1991-92 over an emotionally abusive upbringing. Counseling was helpful to alleviate symptoms and SD was intermittent until the past 2-3 years, when it had worsened considerably.

At the clinic, I experienced 50% improvement in my voice and breathing. I am highly grateful for the various tools now available to me. SD rehabilitation is not something one can simply read about or intellectualize and try on their own.  It needs to be taught by highly knowledgeable and experienced practitioners such as Connie and Mike, and practiced in a safe and supportive environment with fellow SD sufferers experiencing similar issues. 

Enough cannot be said about the impact camaraderie has on SD.  During the clinic, I was inspired by the breakthroughs and improvement each one of us had experienced.  In addition, after spending 4 days with Connie and hearing her rehabilitated voice, she bravely shared a video of herself from around the time she had first come down with SD.  I saw a lot of myself in her and became especially encouraged and inspired by the post onset Connie that we had been learning from.  If she can do it, so can we. 

January 2011 - In June, five months after the clinic, Betty was granted a leave of absence from her teaching job for the 2010/2011 school year. She worked with Connie to obtain disability due to her SD. She continued to experience difficulty with her voice, and in September, decided to try Botox.

“After an initial improvement in the quality of my voice during the clinic as well as about a week afterwards, my voice progressively deteriorated. I highly value my experience there, being introduced to a wide variety of techniques, the camaraderie of my fellow participants, and the inspiring example of Connie’s rehabilitated voice. With my further declining voice, I made the difficult decision to go ahead and try Botox for the first time. The side effects were horrendous and lasted an entire month. Once through that, over the past three months I have experienced the joyous return of my voice, which has inspired me to continue this fight. I have pursued emotional release therapy and it has been extremely beneficial. Connie was very helpful in filling out my disability paperwork and both she and Mike were supportive.” With Botox working effectively, Betty rated her voice as significantly improved.

Connie S – Ad/SD with symptoms for 11 years, diagnosed in 2000 at Massachusetts Eye and Ear Infirmary. Botox injections from 2001 – August 2009.

My voice improved significantly at the clinic as I found better flow and ease of voicing. I had an incredible breakthrough in a release of tension throughout the core of my being with the breathing.

The clinic was amazing. My voice improved tremendously as I learned the tools and techniques given. As a result, life force came through me and my voice became free flowing and strong. Being with others who struggle with SD made it easy to relate, understand and encourage one another. Wonderful friendships were made.

Connie and Mike are filled with compassion, wisdom, knowledge, experience, kindness, understanding and love. I left the clinic with so much hope and expectation of great things to continue for my voice and overall well being. I am so grateful for such a gift!

January 2011 - Connie rated her voice as moderately improved at the follow-up and her Voice Handicap Index score had decreased 36 points, moving her from the severe to the low-moderate category of handicap. She also sent a DVD of her speaking at church about the healing that was occurring in her life and it was very moving and her voice was strong, even in a public presentation!

Analee – AD/SD with symptoms beginning in the mid 90’s. History of speech therapy, followed by Botox injections for 6 years. Took a sabbatical in 2007 to stop the botox injections and explore alternatives. Tried Reiki, acupuncture and voice exercises from Morton Cooper’s book. Looking to change career to teaching.

My voice improved 75% at the clinic. I experienced a clearer voice, free expression with less tension and recovered my singing voice. I was able to take deeper, longer breaths, and develop a way of meditating that was deep and satisfying where following my breath was easy and natural. I gained lots of tools and a compliance contract to organize and form a plan – excellent!

The clinic was a godsend to me – literally. I have suffered from SD for 15 years, used Botox with mixed results, and had been working on my own with voice rehabilitation exercises I had read about. I found Connie one Sunday afternoon when I “googled” spasmodic dysphonia to see what was new on the disorder on the internet.

I came into the clinic with high hopes, and I not only met those high expectations, I exceeded them. The holistic approach in a group setting was perfect. Connie combines expertise as a speech pathologist with her own personal journey of recovering her voice from the devastation of SD. Mike is a true breathing guru and an effective trainer. Learning to breathe was particularly helpful to me – a new, crucial component to my voice recovery. I am well on my way to full recovery of my speaking and most dear to me, my singing voice.

January 2011 - Eight months after the clinic, Analee reported that she was very pleased with her voice quality overall. She was able to see that anticipation of difficulty and public speaking caused her voice to be weak and shaky. She was teaching 5th grade and experiencing good voicing in the classroom. She stated, “I feel so fortunate to have found you and Mike so I could finally, finally really get my voice back.”

Analee reported improved control over her voice and her life and felt the clinic to be a good investment. She felt that she had been 50-75% compliant to her program and that her voice was moderately improved. Her VHI had decreased 48 points, moving her from the severe to low moderate range of handicap. She stated in an email that certain situations still triggered shakiness in her voice but that “I’m in the process of recovering my voice, I know it.”

Lynn –AB/AD, MTD with onset in 1998. Symptoms worsened the past 3 years: speech therapy, chiropractic, allergy testing, acupressure, EFT, yoga.

My voice improved 50% at the clinic. My voice felt better during muscle relaxation, massage, neck tension releases and increased breathing. I would say that my time at the clinic was the best personal investment I could have made in finding the correct ways to improve SD. I now know that I could not have done this on my own as the techniques are far better understood and practiced in person.

Learning my “doing” helped me tremendously. I also feel that the atmosphere in a home-office setting made the experience real and relaxed, and made me feel safe as those around me shared and helped each other.

Connie is a true inspiration and role model that I admire – a true gem. Her determination and ability to teach me what I needed to know has been priceless. I will go on with this journey knowing that I, too, will sound better!

January 2011 - Lynn was not experiencing improvement in her voice at the time of feedback. She felt that she had been 100% compliant, but that her attitude had recently shifted from “correction of a speech problem” to “dealing with letting go of emotional fear related to post-traumatic stress and gaining self-confidence”. She reported a 21 point decrease in her VHI, which is statistically significant, but her score remained in the severe range. I encouraged her to work diligently on the emotional component and then resume her voice rehabilitation, using her clinic DVD to remind her of what she could accomplish.

Later she wrote:

Connie - Thank you so much for the support! WOW, your comments are right on the money!!  Especially when you stated that "when underlying mindbody issues are strong, they work against my attempts to regroove the voice."  Yes, yes, that describes my situation to a tee.  UGH, SO frustrating!!

I stumbled across a psychotherapist while I was pursuing physical therapy and biofeedback. I've been talking to her once a week for almost 4months....she, too, had told me that it's possible that I have latched on to the voice problem in order to divert attention from painful emotions within my subsconscious (fear, guilt, confidence).  I'm not so sure I believe in that kind of "reasoning", but I suppose it makes sense, especially since I now recognize how long I've been holding on to alot of emotions for many years.  (we also did hypnosis, but i didn't find it to be beneficial or longlasting).
So now it begs the question, now that I have awareness, HOW do I release myself from these emotions???  That's what I haven't been able to do, even with therapy I'm struggling with what I need to do to get better.

Also, as you say "a shift in consciousness, awareness, acceptance, action process so that the voice is released"...again, you're right on the money!!  I am now in the "awareness" phase, and now seeking an action process.  Meditation has never been one of my strong points. I've tried many many techniques, types, classes, tapes at home, etc....my mind wanders often and i'm just not the type of person that can meditate.

I have found, however, that massage therapy is SO therapeutic for me, it's been the only thing that relaxes me. My job consists of about 9hrs a day, then i workout, so I only have about 2hrs a night for "me" time.  The cost of weekly massage therapy is high, so if you have any  addt'l "action process" suggestions, i'm all ears!  :-)

Your comments have been very enlighting, thank you so much for taking the time to offer your thoughts and motivation.  It's SO helpful indeed!

Richard – Essential tremor, vocal tremor 5 years: speech therapy, botox injections 1/2007 – 8/2009, medications for anxiety and acid reflux, Alexander technique, acupuncture, massage, meditation.

In a single word, the Voice Clinic was transformative. The relaxed setting of Connie Pike’s home office provided a comfortable supportive environment where we could let go and be ourselves – 5 people with voice disorders learning techniques to make our voices better. For me, the effects were frequently apparent immediately and offered a window through which I could see how my voice might be on a regular basis if I continued to put into use these new practices.

While I was aware that stress made my voice worse, a huge unexpected bonus was to learn that incorrect breathing affected not only my voice, but my entire physical and emotional being. After trying Mike White’s breathing suggestions I could feel immediate relaxation and calm throughout my whole body. That alone was worth the price.

What made this clinic so special? The whole person was addressed – not only voice and breathing; posture, emotions, etc. and we had a good time while doing it. Additionally, while being able to watch and listen to the voices and stories of the other participants, I was able to see myself and my struggle to speak from a perspective that I otherwise would never have been able to experience.

It’s a great feeling to know that I am finally done with Botox!

January 2011 - Richard obtained his goal of becoming free to speak without Botox! His feedback included “The clinic was pivotal, and my friends who could hear me before and after would certainly agree. Thank you, Connie, for doing what you do and doing it so well.” He rated his voice significantly better, and VHI decreased 39 points, moving from the moderately handicapped range into the no handicap range (score of 14).

February 2010 Followups

Jim: SD, 20 years with history of gastric reflux

Lost voice while preaching in 1990, and had to resign after a year. Speech therapy 8 months in 1990-1991 did not result in improvement, and 2 Botox treatments in 1991-92 (with continued speech therapy) yielded no improvement. Reported managing the problem using intense muscle control but felt he had forgotten how to speak properly after prolonged “tinkering” with his voice. He also lost his ability to sing. No medications except for hypothyroidism. Had explored chiropractic adjustments for back pain but it did not help his voice.

On his evaluation, under diagnosis, Jim put “HEALED”. He stated that he was leaving with the confidence that his SD is conquered. He regained the ease of speaking and singing lost 20 years ago. He experienced increased ease in breathing as well. Jim stated that he needed some time to think over his complete testimonial and would supply it at a later date. He offered to speak with anyone wanting more information about the program. jallen@elmore.rr.com

February 2011 - Jim reported more control over his voice and life. Best helps included Roger Love’s book, placing the voice forward, the kazoo and straw exercises and Voiceprint. Jim did not take advantage of the follow-up time as he did not feel that he needed it. He did not specifically follow the protocol of his compliance contract but rather developed his own routine of voice exercises out of what he had learned. He rated his voice as significantly improved. Jim noted, “The trauma of SD was as much or more psychological as physical. The clinic helped with that aspect of the problem in addition to improving mechanical voice production. The clinic was well structured and executed. I will always be grateful and would strongly encourage any SD sufferer to avail themselves to the Free to Speak Clinic.” VHI decreased 29 points.

RK: AB/SD approximately 2 years, occurring suddenly after a bout of laryngitis and several years of stress. She saw Dr. Blitzer in New York City, who did not recommend Botox for AB/SD. She was offered medication by her neurologist, but chose Chinese herbs and nutritional support instead.

“My voice improved 80% at the clinic. I am able to speak with much more ease and sometimes with a normal voice. I have more space and relaxation, energy and ease in my breathing.

I highly recommend attending this clinic. I received a wide variety of tools, as well as information that created a holistic approach. I felt that throughout the clinic I was given everything I needed to reclaim my voice. I also felt that there was no pressure and no boredom. Everything was engaging, clearly presented and clearly directed. I enjoyed participating; felt supported and received excellent professional coaching.

February 2011 - Attending the clinic last April was a significant step in the healing of my voice. It was comforting to meet others who were afflicted by the same experience and how they were seeking positive change from it. In particular, it was very inspiring to see how Connie had gained back her freedom to speak. It also was a time to set intentions to heal the various aspects in my life that needed addressing that were contributing to the worsening of my SD.

Towards the end of the seminar and a short period afterwards, I was able to speak with much more freedom than I had in a long time, which was great. I continued with the exercises I learned and adhered to my program 100% for a month. However, I lost some of that freedom and was plagued by strong spasms, which I found frustrating.

I then started a therapy directed at removing toxic agents from the body. It (Field Control Therapy) was very powerful, and eliminated the presence of spasms in my throat almost completely. I made so much progress; I no longer pursued the exercises with the same vigor as before. I still hum a lot, but that is basically it.

Attending the clinic was a very good investment; as it put me in touch with others who had the same difficulty, helped me set clear intentions, and identify the need to remove major stressors in my life. Today, compared to before the seminar, my voice is 90% normal, 100% of the time. VHI decreased from 71 (Severe) to 7 (normal); a total of 64 points.

October / November 2010 Followups

BJ – AD/SD, MTD 2 years:  Prilosec for LPR, s/p thyroidectomy, 6 day treatment with Morton Cooper 2010

I have always been one to search for the natural approach or alternative to healing and the diagnosis of Spasmodic Dysphonia with no known cure is proving to be no exception. I have just completed Connie Pike’s 5 day “Voice Rehabilitation Workshop”.

I found the group process to be extremely beneficial in ways that only an SD sufferer can appreciate. All six of the participants were in the same boat wanting to get our voices back. The group offered positive support for each other’s efforts and sincerely encouraged voice transition which made the experience invaluable to me.

Connie’s “holistic” approach offers a tool box full of exercises for freeing the voice, computer software to hear your improvement, instructions to change ineffective breathing patterns, keys to recognize and change negative thought patterns, and then replace them with affirmations that promote calmness and healing. Books, balls, kazoos, massage and on and on. I feel that I arrived home equipped with all I need to be “Free to Speak” including follow up sessions and further communication to ensure continued support.

Anyone suffering from SD or any other form of voice problems will, without a doubt, find the “Free to Speak” workshop beneficial, supportive, fun, enlightening and a wealth of discovery and information that can only be gained through this unique experience.

September 2011: I feel my voice has improved slightly and that the clinic was a good investment. The breathing techniques, practice of voice pitch, and the lasting friends and support were the biggest helps. I was approximately 20% compliant to my contract and did not follow-up with Connie. VHI decreased 20 points.

Barbara– AD/SD with symptoms since 1992 at age 65, diagnosed after several years visiting various ENT doctors and had regular botox treatments every 3-4 months for 18 years. Botox was successful in managing the condition until an unusual complication in July 2009 resulted in severe breathing problems requiring hospitalization in the ICU and treatment with steroids and oxygen. Previous voice therapy had been unsuccessful.

My voice improved significantly at the clinic as I learned to use a higher pitch and to “hardly work” instead of working too hard (to produce voice). I gained sufficient knowledge to continue to improve on my own. Spending 5 days with people who have SD like myself was invaluable. It was a challenge and an experience to have instructors who understood SD and were eager to help me “re-train” my bad habits and encourage me in everything. I did not come to the clinic for a “cure”. I came for help to deal with this disease. Hopefully, with all I have been taught, exposed to and practiced, that I can now help myself with diligent attention, especially to “hardly work”, breathing and using quiet conversation. I have hope now that I don’t need to drive myself. I can become a better listener, and speak again and be understood.

July 2011: My voice is moderately improved and I feel the clinic was a good investment. I learned to be patient and how to breath properly and exercise my voice. My doctor noticed that my voice was very much improved, that I was no longer missing words like a cell phone cutting out. The speech therapy with Connie and the week at the clinic was invaluable. VHI decreased 26 points, moving from the Severe range to the Moderate range of handicap.

Karen– Vocal tremor one year preceded by hoarseness and difficulty speaking since 2006 and head tremor 2005. Pharmaceutical management, 3 Botox treatments

My voice improved 70% at the clinic, with better quality and less tremor. The clinic exceeded my expectations. Meeting and talking with others with similar voice conditions is an empowering experience. The six in our group became a team that provided support, communication partners, humor and friendship.

A day of assessment provided the information needed for the holistic approach to begin working on each voice condition. I felt the commitment of Connie and Dennis to help me overcome the barriers to my voice production. This relaxing, but organized experience gave me the tools to improve my voice and provided recognizable improvement during the clinic.

The clinic has been extremely helpful to me and has given me the faith that I can use the tools provided and the follow-up sessions to greatly improve my voice.

July 2011: I loved the clinic and it met my expectations. I am not using botox now, but continue pharmaceutical management for the tremors. Compliance was around 20% and voice is slightly better. I am more out-going and social and I haven’t given up.

Lisa – AD/SD October 2009 following a severe sinus infection, diagnosed at Vanderbilt September 2010. Botox was recommended but declined.

This clinic is an option for SD patients. It is important for all newly diagnosed SD patients to try this option before jumping on the Botox bandwagon. The medical community looks at no other options or strategies for treatment and we have seen and heard the differences in our voices during the clinic. All the “Pike” techniques seem to give you your voice back. Of course, I will continue to practice all the strategies and techniques as I feel improvement will continue. I know my old voice will not come back but my new voice works and will get stronger!

We covered many areas and they all seem to work together to improve the voice quality. When I see how far some of Connie’s previous patients have progressed after a few years of practicing, I am even more encouraged.

Thank goodness a friend (with SD who lives in Birmingham) gave me Connie’s book and the hope it offers. Thanks to Connie, Dennis and Christine for completing the circle of information.

July 2011: The clinic was totally a great investment – I know my experience with Connie directly related to my 99% improvement of my voice. I was 90% compliant to my contract. When I viewed my DVD, it was a bit scary to hear the old SD voice but was very insightful. My voice is normal now, and some days I never think about it. I think that the clinic, along with gabapentin have contributed to my success. VHI decreased 45 points, moving from the moderate range of handicap to No handicap. I don’t yet have my singing voice back to the level it was before SD but I am considering returning to theater roles.

Bob – AD/SD 5 years: Speech therapy, 4 botox injections (unsuccessful)

I found the session to be most helpful. Not only did my voice significantly improve over this five days, I left with the tools and techniques that I know will help me to continue to improve. I am most thankful that Connie has found a way for SD patients to rehabilitate their voices. She has put together a team that understands SD and the physical, psychological, spiritual and emotional aspects that impact SD. Connie, Dennis, Robbie and Christine are outstanding teachers, counselors, and coaches who put their heart and soul into helping their clients. I was particularly happy and blessed that their emphasis on the spiritual aspects based on a Christian foundation. Another aspect that is so helpful is the interaction and support that comes from being around other SD clients and watch them ALL improve while they are at the seminar. I would HIGHLY recommend Connie’s clinic for all SD patients.

July 2011: My level of progress (slightly better voice) is solely my own fault and circumstances. I learned that if I do the things I learned at the clinic, my voice will improve. I was 25% compliant, but have had major stressors in my life. I hope to devote more time to my recovery in the future. VHI decreased 23 points.

Kristy – AD/SD, 2 years, reflux medication, two speech therapy sessions, 4 botox injections which were successful but with side effects

Besides the mechanical/physical skills I learned to correct my voice and restore it to a natural, free flowing voice, one of the biggest benefits of the clinic was the group dynamics and support. I had really gotten to a place or a point where I was completely focused on all the things I couldn’t do. I couldn’t make phone calls, couldn’t work, and couldn’t talk in many situations. I even got to the point where I felt like I couldn’t have a personality because of the limitations of this condition. It was refreshing and inspiring to meet others who shared the same condition, but were still continuing on with all of the normal things people do. Working, interacting with friends and family, expressing their personalities being playful and spontaneous. It made me realize how much I was limiting myself and how much SD was limiting me. I really feel that the holistic approach is very crucial to recovery, as it addresses many mental, emotional and psychological barriers we may have to recovering the true voice. I am walking away knowing exactly what I have to do to be free to speak.

July 2011: I definitely do think I gained more control of my voice and my life, with less struggle. There is no way I would have made it through without botox shots the way my voice was before the clinic. Even if I do go back to botox, I think I will have a healthier perspective of the ups and downs of my voice. I enjoyed my follow-up visit and I felt it was so easy to talk to Connie and my voice felt almost normal. I watched the DVD frequently and rate my voice as moderately improved. The breakthrough at the clinic was dramatic but the progress curve has been slower than I had imagined. VHI decreased 31 points.

*In December 2011, Kristy decided to return for a botox treatment.

Clara –AD/SD 2 years; speech therapy

Five days of an intensive variety of coaching, breathing, assessments, techniques, self awareness and tools is what encompassed my experience in Connie Pike’s November 2010 clinic. I now have a better understanding of SD that along with a body, mind and soul holistic approach will improve my quality of life and voice. I am taking home invaluable and necessary tools to aid me in re-grooving my brain with new patterns.

My voice has improved dramatically. I have gained confidence, and have learned that along with all the speech tools I have received, there is a psychological aspect that goes hand in hand. My attitude, the power that words have, the positive affirmations that reinforce grounding myself, recognizing that “I” is the first letter of the alphabet and that I need time to learn to take time to practice, breathe and exercise.

Our daily work schedule was intensive but allowed for time with individual sessions with our coaches, time for practice and group session. The final night was an amazing relaxing dinner with the team and the night ended with karaoke – singing and using our voice to the fullest. Of course, the union, and support of the group was awesome. I have made lifetime friends.

I thank Dennis for his knowledge, love and amusing anecdotes, Christine for her God gifted hands, TLC and massage and most of all, I thank Connie for being a friend, for her courage in researching, combating SD and finding a way of rehabilitation and hope for many. I am looking forward to the next book so I may continue on my path to recovery. We Can Do It!

June 2011: Clara reported that she was unable to maintain the gains she made at the clinic and that she had decided to use botox treatment. She was pleased with the results of the injection and planned to continue. VHI had decreased 27 points.

2011 Followups